Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 I was very happy to see your post. Don't get me wrong. I am sorry your husband has suffered so. I have chronic pancreatitis due to high triglycerides. I have a metabolic defect wherein my body doesn't metabolize triglycerides like it's supposed to. My fasting triglyceride levels hover around 1800 when I don't take Tricor. Tricor keeps my levels down; however, the damage has already been done to my pancreas. In 1999, I underwent a fundoplycation to repair a hiatal hernia. During the procedure my pancreas hemorrhaged + I developed ARDS (Adult Respiratory Distress Syndrome). I was flown to Tucson Medical Center where I was put on a ventilator (life support) with a 10% chance to live. After 14 days on it, I miraculously began breathing on my own again. In May of 2001, I was approved for SSDI. I take MS Contin for pain. I hate getting admitted to the hospital, so my primary doctor prescribes me demerol to inject myself with when needed. Take care. Chris. -- On Thu, 23 May 2002 12:45:37 Maimer Nunya wrote: > >Hello, > >I dont have pancreatitis so I won't pretend to know how you all feel but my husband was diagnosed with it two years ago and I have seen the hell that he has been through. I found this group when I was finding more to read on this subject(I read all I can get my hands on to see what I can do to help). I tell you that I feel totally helpless when I see him go through so much pain. He recently got approved for his ss but the insurance covers no meds which is a real struggle. His pancreatitis is caused by extremely high triglycerides but he still gets asked how much he drinks whenever he has to see a doctor. Right now the only doctor he sees is a general practionioner. All of his other doctors released him and said there was nothing they could do for him so there was no sense in coming back. His family doctor is very compassionate but I'm afraid not very knowledgeable on the subject of chronic pancreatitis. But sometimes compassion is just what he needs instead of someone question ing his pain. Sometimes it feels good to get some of this off my chest because noone else seems to understand. I hope to chat with you all soon in the chat room. Thanks for listening. > >Amy > >Kentucky > > > > > >--------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Amy, get your husband in to see a pancreatitis specialist at a university hospital. That would be the best thing you can fo for him right now. I know what your going through - a gastrenterologist told me, " I can't help you. Don't come to see me anymore. " Jerry/NC *********************** im new here > > Hello, > > I dont have pancreatitis so I won't pretend to know how you all feel but my husband was diagnosed with it two years ago and I have seen the hell that he has been through. I found this group when I was finding more to read on this subject(I read all I can get my hands on to see what I can do to help). I tell you that I feel totally helpless when I see him go through so much pain. He recently got approved for his ss but the insurance covers no meds which is a real struggle. His pancreatitis is caused by extremely high triglycerides but he still gets asked how much he drinks whenever he has to see a doctor. Right now the only doctor he sees is a general practionioner. All of his other doctors released him and said there was nothing they could do for him so there was no sense in coming back. His family doctor is very compassionate but I'm afraid not very knowledgeable on the subject of chronic pancreatitis. But sometimes compassion is just what he needs instead of someone questioning his pain. Sometimes it feels good to get some of this off my chest because noone else seems to understand. I hope to chat with you all soon in the chat room. Thanks for listening. > > Amy > > Kentucky > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Amy: The worse thing you can do when you have this.....is drink. Don't get upset with the doctors for asking. They are trying to help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Amy, Thanks for letting us know of another compassionate spouse. I know that I am not alone when I say that I wish there was something we could tell our better half to do or help with, sometimes to see the look on your faces is harder to deal with than the pain or nausea of this horrible disease. Since I suffer from cp, I can only imagine the helplessness you must feel. I know I see it on my husbands face and it kills my very soul to know there is nothing I can do for myself, much less for him. I will ask you for one favor though. I know it is important to help him, but it is just as important that you help yourself. What I mean by that is do something special for yourself. If you get too frustrated or hurt for him too bad, you can start to shut down emotionally and that would probably do more harm than good to your marriage. I don't want to sound like I am preaching, it is just the voice of experience. I have also been the caretaker of my previous husband that died from complications of diabetes. Be as kind to yourself as you are your husband. Seek support for your frustrations and fears as well. Treat yourself as your own best friend. Remember, if we pass on, you and all the other spouses have a wonderful life to live for us. ;-) Forgive me if I stepped on any toes, it is just something I thought needed to be said. Take good care of yourself, Joy im new here Hello, I dont have pancreatitis so I won't pretend to know how you all feel but my husband was diagnosed with it two years ago and I have seen the hell that he has been through. I found this group when I was finding more to read on this subject(I read all I can get my hands on to see what I can do to help). I tell you that I feel totally helpless when I see him go through so much pain. He recently got approved for his ss but the insurance covers no meds which is a real struggle. His pancreatitis is caused by extremely high triglycerides but he still gets asked how much he drinks whenever he has to see a doctor. Right now the only doctor he sees is a general practionioner. All of his other doctors released him and said there was nothing they could do for him so there was no sense in coming back. His family doctor is very compassionate but I'm afraid not very knowledgeable on the subject of chronic pancreatitis. But sometimes compassion is just what he needs instead of someone questi! oning his pain. Sometimes it feels good to get some of this off my chest because noone else seems to understand. I hope to chat with you all soon in the chat room. Thanks for listening. Amy Kentucky --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Amy, Thanks for letting us know of another compassionate spouse. I know that I am not alone when I say that I wish there was something we could tell our better half to do or help with, sometimes to see the look on your faces is harder to deal with than the pain or nausea of this horrible disease. Since I suffer from cp, I can only imagine the helplessness you must feel. I know I see it on my husbands face and it kills my very soul to know there is nothing I can do for myself, much less for him. I will ask you for one favor though. I know it is important to help him, but it is just as important that you help yourself. What I mean by that is do something special for yourself. If you get too frustrated or hurt for him too bad, you can start to shut down emotionally and that would probably do more harm than good to your marriage. I don't want to sound like I am preaching, it is just the voice of experience. I have also been the caretaker of my previous husband that died from complications of diabetes. Be as kind to yourself as you are your husband. Seek support for your frustrations and fears as well. Treat yourself as your own best friend. Remember, if we pass on, you and all the other spouses have a wonderful life to live for us. ;-) Forgive me if I stepped on any toes, it is just something I thought needed to be said. Take good care of yourself, Joy im new here Hello, I dont have pancreatitis so I won't pretend to know how you all feel but my husband was diagnosed with it two years ago and I have seen the hell that he has been through. I found this group when I was finding more to read on this subject(I read all I can get my hands on to see what I can do to help). I tell you that I feel totally helpless when I see him go through so much pain. He recently got approved for his ss but the insurance covers no meds which is a real struggle. His pancreatitis is caused by extremely high triglycerides but he still gets asked how much he drinks whenever he has to see a doctor. Right now the only doctor he sees is a general practionioner. All of his other doctors released him and said there was nothing they could do for him so there was no sense in coming back. His family doctor is very compassionate but I'm afraid not very knowledgeable on the subject of chronic pancreatitis. But sometimes compassion is just what he needs instead of someone questi! oning his pain. Sometimes it feels good to get some of this off my chest because noone else seems to understand. I hope to chat with you all soon in the chat room. Thanks for listening. Amy Kentucky --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 I'm new here, but ive been diabetic for ten years this december. I dont know about anybody else here but im not doing so well health wise. Im 20years old and my weight, glucose levels and hunger is completely out of control. I have tried to get an appointment with my diabetes centre but the soonest appointment they have is four months away. I have been going to the gym three times a week, trying to loose the weight and lower my sugar levels but its not working. Does anybody have any advise? im getting desperate. I just want to feel at least semi normal ratehr than a fat freak who cant eat what and when she likes, im counting calories, sugar content and fat contents in everything i eat. It doesnt feel like my life means anything anymore. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 , Please do not despair. Please contact your nearest mental health organization, and tell them how you are feeling. See a therapist, call 911. Life is good in spite of this disease, I prefer to think of it as a challenge. Thereare great therapists, a minister, support groups, antidepressants, natural things too. FReel free to e-mail me i am a good listerner. Helen in South Dakota. hdlong@... [alldiabeticinternational] im new here I'm new here, but ive been diabetic for ten years this december. I dont know about anybody else here but im not doing so well health wise. Im 20years old and my weight, glucose levels and hunger is completely out of control. I have tried to get an appointment with my diabetes centre but the soonest appointment they have is four months away. I have been going to the gym three times a week, trying to loose the weight and lower my sugar levels but its not working. Does anybody have any advise? im getting desperate. I just want to feel at least semi normal ratehr than a fat freak who cant eat what and when she likes, im counting calories, sugar content and fat contents in everything i eat. It doesnt feel like my life means anything anymore. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 In a message dated 5/13/2004 5:33:57 AM Pacific Standard Time, djkitty62@... writes: > Eat snacks but make them healthier ones like raw veggies or if craving > carbs I eat cheerios from the box. They are crunchy without all the fat and salt > of chips. > You made a good decision about joining a support group and sharing your > feelings with us. It helps to know we are not alone in this. We are always here > to help you along when you need us. > I agree with you . Cheerios can solve a lot of problems. From satisfying cranky toddlers (I always carried cheerios necklaces, made on plain dental floss, in my purse. Came in handy in a store, or church. Just keep an eye on them to remove it before they decided to eat the floss!) to having zip lock bags ready for a snack on the run. Less sweet and sticky raisins, but raisins were the number 2 choice! I also agree with yiu about support groups, it is wonderful to talk with someone who knows your fears and concerns as well as when you have a spectacular day and want to say " YEAH FOR ME! " many hugs, Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 I am to - really. & T1 --> Brand new Quote Link to comment Share on other sites More sharing options...
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