Introducing myself

July 31, 2000

Dear

At least with all this happening we can never be classed as boringly

predictable can we?

Sue

Re: Re: Introducing myself

In a message dated 7/30/00 8:10:35 AM Eastern Daylight Time,

hordermason@... writes:

<< Or , could it just because we're so used to pain.

Sue >>

Hello the House,

Hi Sue, your probable right, I'm not cognizant of pain till I hear

others mention it and then I realize I have had the same thing. This might

sound a little metaphysical to you, but it almost seems like there is

something in my body controlling where then next ache is going to be. I will

ache in spots that there seems no reason to be aching there. It comes and

goes, but its not intolerable. Crazy eh.

E

------------------------------------------------------------------------------

August 2, 2000

Hi!

I have had four children and really no problems with any of the pregnancies.

The only thing I noticed with my last one was my hips were sore a lot--but

I blamed it on my age (36) at the time. My kids are spread out a little, my

little boy will be 2 on the 23rd, daughters 10, 12, & 14. I wouldn't worry

to much about prenancy.

As far as neuroligists-I went to one about 4 or 5 years ago when they

diagnosed CMT and haven't been back since. I dont' want to go through their

" painful nerve and muscle tests " . I know what is wrong now and prefer to

deal with it on my own.

Jane

>From: jacee17@...

>Reply-To: CMTUS (AT) e

>To: CMTUS (AT) e

>Subject: Re: Introducing myself

>Date: Sat, 29 Jul 2000 02:11:56 EDT

>

>In a message dated 7/28/2000 10:08:14 PM Pacific Daylight Time,

>Liligirl20@... writes:

>

><< Although I am not planning a family right

> now, I would like to have one someday and would like to know what to

>expect

> in terms of carrying a child. Also, would like to know how often people

>go

>to

> their neurologists. The one I saw in the spring suggested I come in

>about

> once a year just for checking in, but I am wondering if that is really

> necessary. Don't want to make any unneccesary trips to the doctor, I

>have

> seen enough of the inside of hospitals for one lifetime!!

>

> Thanks for your time and I look forward to hearing from you!

> Kate >>

>HI Kate, I have had 5 babies. Not anything unusual during pregnancy other

>then I got really heavy the last month and didn't do much walking when I

>was

>gaining weight. I never see a Dr. Why bother unless you have a problem.

>They

>depress me.

>

________________________________________________________________________

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April 6, 2001

Hi Caroline--Welcome! I had surgery with Dr. Anthone in Oct 99. Did

you know there is a whole list dedicated to patients of Dr.

Anthone/Crookes? Here's the address:

http://groups.yahoo.com/group/ds_usc. Please visit my home page to

read my story, as well as, our Message/Information board! Take care

for now.. heidi

Home Page: http://www.mywls.com

April 6, 2001

Hi Caroline--Welcome! I had surgery with Dr. Anthone in Oct 99. Did

you know there is a whole list dedicated to patients of Dr.

Anthone/Crookes? Here's the address:

http://groups.yahoo.com/group/ds_usc. Please visit my home page to

read my story, as well as, our Message/Information board! Take care

for now.. heidi

Home Page: http://www.mywls.com

April 6, 2001

Hi Caroline--Welcome! I had surgery with Dr. Anthone in Oct 99. Did

you know there is a whole list dedicated to patients of Dr.

Anthone/Crookes? Here's the address:

http://groups.yahoo.com/group/ds_usc. Please visit my home page to

read my story, as well as, our Message/Information board! Take care

for now.. heidi

Home Page: http://www.mywls.com

April 6, 2001

--- Caroline Powser humngbrd2001@...> wrote:

> Hello: My name is Caroline.....

Welcome, Caroline. I joined the group about a month

ago and I love reading every single email. You will

hear some real inspiring stories, get answers to all

your questions, hear the good and the bad about the

BPD, get wonderful information without being pushed

into anything (this surgery needs to be your

decision), and all this done with quite a few chuckles

thrown in!!! :0) Good luck in your journey!

BMI 61

consult 6/7/01

Dr. Herron

Mt. Sinai

=====

Age 41

BMI 61

Consult 6/7/01

Dr. Herron

__________________________________________________

April 6, 2001

--- Caroline Powser humngbrd2001@...> wrote:

> Hello: My name is Caroline.....

Welcome, Caroline. I joined the group about a month

ago and I love reading every single email. You will

hear some real inspiring stories, get answers to all

your questions, hear the good and the bad about the

BPD, get wonderful information without being pushed

into anything (this surgery needs to be your

decision), and all this done with quite a few chuckles

thrown in!!! :0) Good luck in your journey!

BMI 61

consult 6/7/01

Dr. Herron

Mt. Sinai

=====

Age 41

BMI 61

Consult 6/7/01

Dr. Herron

__________________________________________________

April 6, 2001

--- Caroline Powser humngbrd2001@...> wrote:

> Hello: My name is Caroline.....

Welcome, Caroline. I joined the group about a month

ago and I love reading every single email. You will

hear some real inspiring stories, get answers to all

your questions, hear the good and the bad about the

BPD, get wonderful information without being pushed

into anything (this surgery needs to be your

decision), and all this done with quite a few chuckles

thrown in!!! :0) Good luck in your journey!

BMI 61

consult 6/7/01

Dr. Herron

Mt. Sinai

=====

Age 41

BMI 61

Consult 6/7/01

Dr. Herron

__________________________________________________

April 6, 2001

Welcome Caroline to our group. Jump right in an ask anything. People here

are wonderful.

Angels hover ever near,

INTRODUCING MYSELF

> Hello: My name is Caroline..... I am soooo happy to

> have found this list. I know I will learn a lot from

> this group.

> To make a long story short, I had a vertical banded

> gastroplasy in 1986 and short version of this story...

> I never lost more than 50 pounds and have gained the

> weight back plus.

> I have been in touch with Dr. Anthone's office

> after *devouring* every word on the web about him and

> this procedure. He thinks he might be able to help

> me. My local doctor will send my records and films to

> him this coming week.

> I live in Charlotte, North Carolina so this is

> going to be quite a venture if it comes to pass.

> Thanks, for establishing this list.

> Lovingly,

> Caroline

>

> __________________________________________________

>

September 18, 2001

I'm sure you'll get a ton of replies this one, but you should

definitely see a derm, preferably one that understands rosacea and it

up on the latest treatments. For example, the metrogel will not

help the pimples, you'll need a separate product, but talk to a

derm first. Diet and nutritional changes will definitely help. Be

prepared for a fair amt of experimentation, but above all, please

don't get discouraged! Good Luck. GT

> I have suspected that I have rosacea for several years, but was only

> officially diagnosed a few weeks ago. I have been a

" flusher/blusher "

> for as long as I can remember. I received laser treatment for

spider

> veins on my face about 10 years ago, but at the time I thought it

was

> simply a cosmetic issue. Finally, about 6 months ago, I started

> developing pimples on my nose. I made a point of visiting my family

> doctor when not wearing any makeup and he agreed that I had rosacea,

> even though he rolls his eyes to the heavens every time I diagnose

> myself.

>

> So far he has only give me Metrogel to try for a couple of months.

I

> see some improvement, but I'm still getting occasional pimples and

> there is no change in the flushing. I've started making some

> lifestyle changes, but I don't expect an overnight miracle.

>

> I'm wondering if I should push to be referred to a dermatologist or

> for a slightly more aggresive treatment.

>

> Marg

September 20, 2001

What kind of pimples are they? If they do not have pus, then Metrogel will

help them.

Re: introducing myself

> I'm sure you'll get a ton of replies this one, but you should

> definitely see a derm, preferably one that understands rosacea and it

> up on the latest treatments. For example, the metrogel will not

> help the pimples, you'll need a separate product, but talk to a

> derm first. Diet and nutritional changes will definitely help. Be

> prepared for a fair amt of experimentation, but above all, please

> don't get discouraged! Good Luck. GT

>

> > I have suspected that I have rosacea for several years, but was only

> > officially diagnosed a few weeks ago. I have been a

> " flusher/blusher "

> > for as long as I can remember. I received laser treatment for

> spider

> > veins on my face about 10 years ago, but at the time I thought it

> was

> > simply a cosmetic issue. Finally, about 6 months ago, I started

> > developing pimples on my nose. I made a point of visiting my family

> > doctor when not wearing any makeup and he agreed that I had rosacea,

> > even though he rolls his eyes to the heavens every time I diagnose

> > myself.

> >

> > So far he has only give me Metrogel to try for a couple of months.

> I

> > see some improvement, but I'm still getting occasional pimples and

> > there is no change in the flushing. I've started making some

> > lifestyle changes, but I don't expect an overnight miracle.

> >

> > I'm wondering if I should push to be referred to a dermatologist or

> > for a slightly more aggresive treatment.

> >

> > Marg

>

> --

> Please read the list highlights before posting to the whole group

(http://rosacea.ii.net/toc.html)

>

> See http://www.drnase.com for info on his recently published book.

>

> To leave the list send an email to

rosacea-support-unsubscribe

>

July 26, 2002

In a message dated 7/26/2002 5:16:29 AM Pacific Standard Time,

janetc@... writes:

> I am always hungry, with my thoughts either fixed on what I have just eaten

> or on whatever I plan to eat next. I stopped losing weight nearly a year

> ago, and have had a few pounds creep back, which is super-scarey. I'm

> mentioning the " d " word more and more, if only to myself.

>

I am teetering on the brink as we speak - so I don't know yet what the final

outcome will be. I am at 2 years post-op, with a distal procedure. My

weight was stable between 138 - 142 for 6 months, and in the last two months

3-4 more pounds have appeared. My approach, in part due some lower lab

levels, was to move from 1 up to 3 protein shakes a day. I am battling the

desire to constantly eat with hard candy. It's definitely an oral obession

with me. So, in 2 weeks, I am down 2-3 pounds. So far, so good.

Kate

July 26, 2002

Yes, I understand completely. The doctor operated on my stomach, not my

head. The same food " demons " still inhabit my brain. Some days I control

them and some days they control me. However, since the surgery I have far

more days when I am in control than pre-op and for that I'm thankful. I

will always enjoy eating as an activity and not just to keep me nourished.

I can no longer eat sugar (about 2 teaspoons is my maximum before I make

myself sick) and am very very grateful to the surgery for that.

Keep the faith.

(RNY April 11, 2001; 108 pounds gone, 60 more to go).

>From: kateseidel@...

>To: Graduate-OSSG

>Subject: Re: Introducing Myself

>Date: Fri, 26 Jul 2002 10:06:01 EDT

>

>In a message dated 7/26/2002 5:16:29 AM Pacific Standard Time,

>janetc@... writes:

>

> > I am always hungry, with my thoughts either fixed on what I have just

>eaten

> > or on whatever I plan to eat next. I stopped losing weight nearly a

>year

> > ago, and have had a few pounds creep back, which is super-scarey. I'm

> > mentioning the " d " word more and more, if only to myself.

> >

>I am teetering on the brink as we speak - so I don't know yet what the

>final

>outcome will be. I am at 2 years post-op, with a distal procedure. My

>weight was stable between 138 - 142 for 6 months, and in the last two

>months

>3-4 more pounds have appeared. My approach, in part due some lower lab

>levels, was to move from 1 up to 3 protein shakes a day. I am battling the

>desire to constantly eat with hard candy. It's definitely an oral obession

>with me. So, in 2 weeks, I am down 2-3 pounds. So far, so good.

>

>Kate

>

July 26, 2002

Yes, I understand completely. The doctor operated on my stomach, not my

head. The same food " demons " still inhabit my brain. Some days I control

them and some days they control me. However, since the surgery I have far

more days when I am in control than pre-op and for that I'm thankful. I

will always enjoy eating as an activity and not just to keep me nourished.

I can no longer eat sugar (about 2 teaspoons is my maximum before I make

myself sick) and am very very grateful to the surgery for that.

Keep the faith.

(RNY April 11, 2001; 108 pounds gone, 60 more to go).

>From: kateseidel@...

>To: Graduate-OSSG

>Subject: Re: Introducing Myself

>Date: Fri, 26 Jul 2002 10:06:01 EDT

>

>In a message dated 7/26/2002 5:16:29 AM Pacific Standard Time,

>janetc@... writes:

>

> > I am always hungry, with my thoughts either fixed on what I have just

>eaten

> > or on whatever I plan to eat next. I stopped losing weight nearly a

>year

> > ago, and have had a few pounds creep back, which is super-scarey. I'm

> > mentioning the " d " word more and more, if only to myself.

> >

>I am teetering on the brink as we speak - so I don't know yet what the

>final

>outcome will be. I am at 2 years post-op, with a distal procedure. My

>weight was stable between 138 - 142 for 6 months, and in the last two

>months

>3-4 more pounds have appeared. My approach, in part due some lower lab

>levels, was to move from 1 up to 3 protein shakes a day. I am battling the

>desire to constantly eat with hard candy. It's definitely an oral obession

>with me. So, in 2 weeks, I am down 2-3 pounds. So far, so good.

>

>Kate

>

September 20, 2002

Hi Wendi!

Welcome to the group! My name is Alyssa and I have a son who is 3 and a daughter who is 20 months. has no known allergies but is anaphylactic to peanuts/nuts. He is also allergic to dairy and soy which cause him eczema. My pediatrician said to eliminate dairy first to see if cleared up the eczema. It didn't, so then I eliminated the soy as well from his diet and his skin cleared up. I then brought back the dairy and he broke out in eczema again..I did the same thing with soy and once again...eczema. So eliminating both of them works wonders for his skin. I would recommend you trying that, if you already haven't. There are some great websites that talk about the allergies. www.peanutallergy.com is a great site. You don't have to become a member to read what everyone has to say. It talks about different manufactures and restuarants, ect. Also www.foodallergy.com is another great site. That talks about soy being a close relative to the peanut. I hope that those will help you a little. It is very scary to have a food allergic child.

What type of lotions and soaps do you use? Have you found any that work?

I look forward to chatting with you more! Glad that you joined!!! :-)

Alyssa

Introducing myself

Hi all!My name is Wendi, I am the single-only parent of one child (, 4). I had a feeling about peanut allergy when was about 6 months old and my sister-in-law had given a very small amount of peanut butter. Actually, she had given a peanut butter sandwich and after one bite would not eat it. I am guessing that just KNEW something wasn't right. After that I hadn't given any peanut products until one night I gave her a spoonful when she was 2 1/2. Anyway, we ended up in the hospital with an anaphylactic reaction. Talk about nightmare! has always had eczema since birth. I am going to speak to the allergist about doing different food allergy testing. So far we have only done the peanut. The other tests ran had to do with "hayfever", since we live in a agricultural, oil, and industrial area. Our valley has a high percentage of people with "hayfever" and asthma. s allergy to olive trees (in bloom) is almost as high as her peanut allergy. Go figure! She can eat olives, and would eat a whole can if I let her. In addition to carrying the Epi-Pen Jr., a bottle of Benadryl, and special lotions and soap, we now have to carry FloNase.Anyway, enough with my book. I am glad that you have this group. I too wanted to join a support group and found that there were too many members in the other threads. A little too easy to forget who is who, or get lost in the shuffle!I hope to chat with you all soon.Wendi -------- s Mom

November 10, 2002

WELCOME DIANA. your a great inspiration to us all as well.Please know your

questions, answers, posts are always looked forward to & enjoyed

LOVE & HUGS, grandmomBEV

introducing myself

Hello,

I am new to your group. I have been a member of Cystic L on and off for a

few years. Today I got a message in my e-mail inviting me to join your

group. I am very pleased to join you. I didn't really post much on the other

list because alot of the issues dealt with adults managing their own care.

Those people were the " experts " in my opinion, so I just sat back and read

the posts, and learned as much as I could from them. But as parents of

children with CF, I realize there is so much that I can learn from you also.

My name is . My son is 14 and he has CF. He was diagnosed at the

age of 5, and I'm sure I don't have to tell you how it went from there. The

fear, the why us, the feeling that life was over from that point on. I'm

glad to tell you that we've come a long way since then. I read all the

books, but after living the reality for nine years, I now know that we can't

actually " live " with the constant fear of dying.

We have been lucky in alot of aspects of this disease. Josh has always been

able to maintain his weight well with out the use of enzymes. In fact he

only started taking them in the last year. he only needs a " tune-up " every

18 mos or so. At least until he started the " motrin study " . Apparently, the

Motrin thinned his blood. He had a section of his lung that had been prone

to infection, and this area started to bleed. When he was lying down, he

felt like he was literally drowning in his own blood. I would call his

doctor and of course, they thought I was over reacting. I really can't blame

them. Any sign of blood from your childs lungs would cause most parents to

freak. But this was ALOT of blood. Finally they told me (in a condecending

way) that if I really felt that he needed to be seen< I would have to bring

him to the ER and chances were that they would keep him. Well, since he was

still bleedind, I grabbed a gallon ice cream bucket that I was storing baby

toys in and told him if you need to cough up anything, use this. By the time

we got to the ER it was 1/4 full! This got results. Everyone went into a

panic. They wouldn't let him stand to get his weight, afraid that he might

pass out. There was talk of a transfusion if he didnt stop bleeding. Let me

tell you, I was taken seriously from then on!! This was about 3 years ago,

he still bleeds when he get's an infection, but nothing like before. What is

so strange to me, is that none of the parents on the other list ever

mentioned any bleeding. Only the adults. So it seems that this may be the

place for me. If anyone has had any experience with bleeding I would

apprecieate any advice.

Well, I feel that I've written a book here. A big thank you for the

invitation to join you. And good night!

aka " Josh's mom "

November 10, 2002