Re: Pain?

[Guest guest]

Hi. I'd suggest a book written by a retired urologist from UCLA

called " You Don't Have to Live With Cystitis " which contains a

wealth of information about urologic health issues. I just saw a

urologist and am being scheduled for urodynamics. If you'd like to

share urology notes feel free to email me privately.

Gerri

>

> OHHH, one thing I almost forgot. This may not even be related but

> just thought I would throw this in. My regular gyno check up last

> September showed I had blood in my urine. Did a follow up, same

> thing. So I saw a urologist, he told me that blood in urine for

> some ppl is normal. He performed a cystoscopy and dilated my

> urethra. Said my bladder looked fine. Follow up, I told him I

> didn't think the dilation helped any, he blew me off. Follow up

> still had blood in urine. This concerns me terrible because my

> mother died from bladder cancer. It is not supposed to be

> heriditary...........but, it still scares me.

> I have another cystoscopy scheduled for June.

>

> Question, any opinions on whether blood in my urine could be

related

> to the heavy bleeding, fibroids and cysts.

>

[Guest guest]

This post will just be a brain-storming of ideas you've probably

already thought of:

< " wait and see " was their course of action>

The detective work for any problems that may be separate from

fibroids and cysts may affect how you approach the fibroid when

the time comes, I guess.

Cysts or Polycystic Ovary Syndrome? There's a great PCOS site

called Soul Cysters with useful links too.

Make sure your birth control pill is appropriate for cysts and

fibroids. For instnce, the minipill /POP may not be ideal if ovarian

cysts give you problems and have been treated in the past.

Check that out if appropriate.

< Never have gotten an answer on

why my tail bone hurts. I've been to the chiropractor, had

physical therapy, even bought a tens machine, nothing helped>

Acupuncture is another thought. Do you do any sport that might

put pressure on it? I know fiboids can cause pressure

symptoms like back ache, frequent urination and constipation .

Could it tie in with the latter? Have you had any acident years ago

that might have hurt the coccyx, in the way that old sprained ankle

injuries can flare up years later?

< Everyone talks about pain on here. Maybe I'm crazy but it

seems my pain started after my ultrasounds, and I'm speaking

of the vaginal ultrasound. I had a little bleeding afterwards but I

just assumed that was normal.>

Was it an internal ultrasound? What type of fibroids do you have?

*Pedulculated fibroid can twist on their stems,

*fibroids can sometimes degenerate without treatment (see red

degeneration in book indexes and web searches) and that can

also be painful.

*Ovarian cysts can burst very painfully.

*Endometriosis?...

* polyp?

*....skin grazed inside?

* An infection?

*...allergy to chemicals/materials?

* An accidental bruise or cut internally?

* just the intact fibroid making it's presence known

I am on Yasmine BCPs and my GP told me if I didn't

> want a period because of my heavy bleeding to take the pills

> continuously, not to take the sugar pills. It is glorious not to

> have a period, but I worry that this is not the best for me.

A clue?

< The pain was so bad all I could do was cry and lay

around. >

This sounds like a description of a post UAE shrinkage I heard

about. Ask the gynaecologist if your fibroid could be degeneratng

by itself.

I've heard of people getting pain from both causes....burst cysts

and fibroid problems

< am in need of weight loss also >

Fibroids can make women look bloated and even pregnant.

Sufferers of PCOS can have weight problems, but having a cyst

isn't necc. the same as having PCOS (String of pearls cysts).

Fibroids gave me lower back and front aches on certain days,

and I suspected it related to the monthly cycle.

You could have a browse in some library books and on the

nternet nd get either peace of mind on what you were told and/or

possible new leads to follow up.

Some places that might have support groups....Delphi

Forums...About.com.....Smartgroups.....Yahoo....MSN.....

< I have another cystoscopy scheduled for June. >

Good luck with that!

No idea I'm afraid.

< I do stay tired>

Yes anaemia and fibroids can do that.

< Am just wondering if anyone has an opinion from your life

> experiences or other wise.>

I found fibroid books very helpful and the local library's books on

women's health, gynaecology and fibroids. You may find info on

red degeneration in books on problems with pregnancies. There

are a couple of PCOS book titles in UK high street bookshops.

Lark as written about diet help for fibroids. You might get

some 'top tips' from the Yahoo embo forum if it is a degenerating

fibroid problem or from 'Soul Cysters' if it's a cyst problem.

Obgyn.net and NetDoctor.co.uk are two other sites to check out

Aztek

[Guest guest]

This post will just be a brain-storming of ideas you've probably

already thought of:

< " wait and see " was their course of action>

The detective work for any problems that may be separate from

fibroids and cysts may affect how you approach the fibroid when

the time comes, I guess.

Cysts or Polycystic Ovary Syndrome? There's a great PCOS site

called Soul Cysters with useful links too.

Make sure your birth control pill is appropriate for cysts and

fibroids. For instnce, the minipill /POP may not be ideal if ovarian

cysts give you problems and have been treated in the past.

Check that out if appropriate.

< Never have gotten an answer on

why my tail bone hurts. I've been to the chiropractor, had

physical therapy, even bought a tens machine, nothing helped>

Acupuncture is another thought. Do you do any sport that might

put pressure on it? I know fiboids can cause pressure

symptoms like back ache, frequent urination and constipation .

Could it tie in with the latter? Have you had any acident years ago

that might have hurt the coccyx, in the way that old sprained ankle

injuries can flare up years later?

< Everyone talks about pain on here. Maybe I'm crazy but it

seems my pain started after my ultrasounds, and I'm speaking

of the vaginal ultrasound. I had a little bleeding afterwards but I

just assumed that was normal.>

Was it an internal ultrasound? What type of fibroids do you have?

*Pedulculated fibroid can twist on their stems,

*fibroids can sometimes degenerate without treatment (see red

degeneration in book indexes and web searches) and that can

also be painful.

*Ovarian cysts can burst very painfully.

*Endometriosis?...

* polyp?

*....skin grazed inside?

* An infection?

*...allergy to chemicals/materials?

* An accidental bruise or cut internally?

* just the intact fibroid making it's presence known

I am on Yasmine BCPs and my GP told me if I didn't

> want a period because of my heavy bleeding to take the pills

> continuously, not to take the sugar pills. It is glorious not to

> have a period, but I worry that this is not the best for me.

A clue?

< The pain was so bad all I could do was cry and lay

around. >

This sounds like a description of a post UAE shrinkage I heard

about. Ask the gynaecologist if your fibroid could be degeneratng

by itself.

I've heard of people getting pain from both causes....burst cysts

and fibroid problems

< am in need of weight loss also >

Fibroids can make women look bloated and even pregnant.

Sufferers of PCOS can have weight problems, but having a cyst

isn't necc. the same as having PCOS (String of pearls cysts).

Fibroids gave me lower back and front aches on certain days,

and I suspected it related to the monthly cycle.

You could have a browse in some library books and on the

nternet nd get either peace of mind on what you were told and/or

possible new leads to follow up.

Some places that might have support groups....Delphi

Forums...About.com.....Smartgroups.....Yahoo....MSN.....

< I have another cystoscopy scheduled for June. >

Good luck with that!

No idea I'm afraid.

< I do stay tired>

Yes anaemia and fibroids can do that.

< Am just wondering if anyone has an opinion from your life

> experiences or other wise.>

I found fibroid books very helpful and the local library's books on

women's health, gynaecology and fibroids. You may find info on

red degeneration in books on problems with pregnancies. There

are a couple of PCOS book titles in UK high street bookshops.

Lark as written about diet help for fibroids. You might get

some 'top tips' from the Yahoo embo forum if it is a degenerating

fibroid problem or from 'Soul Cysters' if it's a cyst problem.

Obgyn.net and NetDoctor.co.uk are two other sites to check out

Aztek

[Guest guest]

Have you had your thyroid checked? Hypothyroidism can definitely cause

tiredness. When I was initially diagnosed with my fibroid, I also requested a

thyroid test since I was tired all of the time. I mean real bone-tired. Didn't

feel normal. Well, that test came back ok, but here I am a year later and I'm

now testing positive for hypothyroidism. It's really common in women and way

underdiagnosed. They started me on Synthroid 6 weeks ago and I can already

tell the difference.

My sense is that I was slightly hypothyroid way back then at the first test,

but not enough to throw me into having an abnormal result. When I first saw

the endocrinologist, he said that my thyroid's basically been going downhill

for the past 10 years. That explained the tiredness.

I'm now slightly anemic, so I'm taking iron for that. That makes me tired

too. But the Synthroid really helps.

Hypothyroidism is really a hormonal imbalance. Well, since fibroids are

caused by a hormonal imbalance (albeit different hormones), it kind of makes

sense

that hormones gone awry in one area could mean that they've gone awry in

another area as well.

Just an idea.

[Guest guest]

I have been tested for anemia and that came back normal the doctor had me

assigned for a

ultrasound at a clinic and desided I have the ultra sound done at the hospital

instead, Why I

don't know . But I have a questions Can the fibroids it self make you always

tired sence I am not

anemic, I get a lot of pressure onto my bladder when I lay down and on my side .

then the pressure

makes me have to go to the bathroom again, and again. several times a night. Why

was my doctor

concern with the pains in my legs that I never mentioned. any one whom may know

of these please

let me know

[Guest guest]

Hi, hope everyone is having a great day. Yes Roma, it's Tarheel

again…..got to worry somebody…j/k. However, you can call me

Connie.

First, I do want to thank everyone who sent me emails and responded

here on the list regarding my post #47781 (Pain?). All of it was so

helpful and I was able to use some during my recent check up.

It's

always nice to let the doctor know you're not completely stupid.

Thank you all again, and thank you Carla for this list.

Ok, I was waiting for my check up to post a reply. I had my regular

check up with my GP on the 20th. I told him about the horrible pain

I have been having in my pelvic area. Therefore, he ordered an

ultrasound, transvaginal included. I had this done last Thursday,

22nd. Oy, the pain that woman put me through. The first two

transvaginals, (one before this was Oct. 2003), I had were pain

free. Could it have been the person performing the procedure that

made the difference, I don't know. Was the techie doing this

last

one more thorough??

My doctor's nurse called me with the results Friday morning. Get

this!! She informed me I had a benign " thing " in my uterus.

That's

all she would tell me. I swear, those were her exact words, because

I have the report in front of me that hubby picked up from my

doctor's office. She also told me my ovaries were " ok. "

Forget

about talking to my GP, that is just something he does not do,

unless I pitch a crying fit..... even though he charged me $167.00

for my office visit. If it were not for the fact that he's nice

to

me during my office visits and he's gotten me through panic

attacks,

depression, flushing that I have endured all my life when I talk to

ppl (I'm a social phobic) and he was there for us when hubby had

his

accident, and is on hubby's side when it comes to helping hubby

with

disability ppl, I would be hunting. However, when I go back in 4

weeks I will let him know the least he could have done was given me

more information instead of letting me think I could be dying. Who

knows until I have an MRI on Tuesday. I have to be there at

7:10…….a.m. ….ack……

I hope this doesn't tick anyone off but I would like to post the

ultrasound report for comments from anyone.

FINDINGS:

UTERUS: 9.0 x 5.7 x 5.6 cm, volume 149.0 cc. This is similar in

size to previous study of Oct. 27, 2003.

ENDOMETRIAL STRIPE THICKNESS: Normal, 0.25 cm. No endometrial mass

or fluid collection is seen.

MYOMETRIUM: On the previous study there was a heterogeneous

myometrium with an area which was called probable uterine

leiomyoma. We are unable to demonstrate a definite uterine

leiomyoma on the current study but there is a heterogeneous

appearance of the myometrium. This most commonly is associated with

adenomyosis. MRI is more accurate for diagnosing this process if

you wish to further evaluate for adenomyosis.

CUL-DE-SAC FLUID: None

LEFT OVARY: 2.2 x 1.2 x 1.9 cm, volume 2.5 cc. This is slightly

smaller than on the prior study when the volume was 3.1 cc. At the

time of the previous study the left ovary was felt to be normal in

appearance. On the current study the left ovary showed no evidence

of cyst of mass.

RIGHT OVARY: 2.8 x 1.6 x 2.5 cm, volume 6.0 cc. This is very

slightly larger than on the previous study when the volume was 5.3

cc.

There is an abnormal hypoechoic area involving the right ovary.

This was also present on the previous study.

On the previous study this hypoechoic area with internal echoes

measured 1.7 x 1.4 x 2.1 cm in diameter. On the current study it

measures 1.7 x 1.2 x 1.7 cm in diameter. It has no color flow

within it.

No cul-de-sac fluid or no tubal abnormally is seen.

IMPRESSION:

we were unable to identify endometrial abnormality or uterine

leiomyoma at this time.

There is a heterogeneous appearance of the myometrium which can be

associated with adenomyosis. Pelvic MRI is most accurate for

diagnosing this process by imaging.

No abnormality of the left ovary identified.

There is a hypoechoic abnormal area within the right ovary which

appears similar to the previous study of 10/27/03. This is not a

simple cyst because it has internal echoes. It also does not have

focal increased posterior acoustic enhancement although there May be

a small amount of this. Since there is slight increase enhancement

posteriorly I would suggest that this may have some fluid within it

rather than being totally solid. If this has fluid within it it is

felt to represent debris. This could be associated with a

hemorrhagic ovarian cyst or an endometrioma or inflammatory lesion.

However it has been stable since the study of October 2003 which

would favor either a slow growing or probably benign process.

Apparently the patient is having left lower quadrant pain.

Laparoscopy could be considered for additional evaluation. I cannot

exclude slowly growing neoplasm.

Whew….. Needless to say, I am scared. I know, I know…..wait

on the

MRI, see what info it provides. I mentioned my mother in my

previous post, she had bladder cancer, but she actually died from a

cancerous mass in her pelvic area. I have flashbacks of her

suffering, from age 52 to 59. I am 48. I have the best support a

woman could have……my dear sweet husband, but there are still

times

when I am all alone and those little demons make me think bad

things.

I tried to measure the size of my uterus. Am I wrong, this seems to

be about the size of a pear?

Call me dumb, but which is your left and which is your right ovary?

I'm thinking right would be like if I raised my right hand, but that

is not the side that hurts the worst and the most. Both sides hurt

but the report says my left ovary showed no sign of cyst or mass.

My left side hurts the worst and most.

I was told when I had my babies that my uterus was tilted and my ob

was surprised that I even became pregnant. My son was 7 months old

when I became pregnant with my daughter. So much for that. I'm

still told that my uterus is tilted at exam time and also it has

dropped some………forgot the correct term.

Mystery: Before my ultrasound, almost every time I ate a meal, soon

after I was off to the bathroom with watery stools. Dining out was

no fun at all. This has been going on for quite a while, mentioned

it to my dr., got a hmmm from him………grrrrr. On the morning of

my

ultrasound (Thursday) I had a banana for breakfast. I cannot

remember the times I had to run to the bathroom before I left for

the hospital, too many. After the ultrasound (remember I had

transvaginal too) I DID NOT have a bowel movement until Saturday

afternoon. Had another on Sunday afternoon, somewhat normal. What

gives?? Am I going crazy?? Could the techie have moved things

around which was pressing on my bowels???

I'd better stop for now, I know I have more questions. But I have

probably given Roma a lot to think about, lol. I really need that

pillow.

Hoping everyone has a little less pain or anxiety today. Hugs to

all.

Connie

[Guest guest]

Hi,

I also have fibroids, had them for years, and did the wait and see thing until

now that they have grown and am now looking into a myo. (this would be my second

one, had one in 1990),

Reading your e-mail, in regards to the tail bone pain issue, about 2 years ago I

had terrible tail bone pain every time I sat down, and especially when I got up

from sitting a while, I never associated the pain with the fibroids, I thought

it was because I am a very thin person (at that time my weight was 114lb, I'm

5.5 " )

after a while (months) it just went away, I never went to the doctor about it.

But now that you mentioned it....I wonder.....could it had been related to the

fibroids???? ......Interesting.....

Good luck to you.

[Guest guest]

Hi,

I also have fibroids, had them for years, and did the wait and see thing until

now that they have grown and am now looking into a myo. (this would be my second

one, had one in 1990),

Reading your e-mail, in regards to the tail bone pain issue, about 2 years ago I

had terrible tail bone pain every time I sat down, and especially when I got up

from sitting a while, I never associated the pain with the fibroids, I thought

it was because I am a very thin person (at that time my weight was 114lb, I'm

5.5 " )

after a while (months) it just went away, I never went to the doctor about it.

But now that you mentioned it....I wonder.....could it had been related to the

fibroids???? ......Interesting.....

Good luck to you.

[Guest guest]

Hi,

I also have fibroids, had them for years, and did the wait and see thing until

now that they have grown and am now looking into a myo. (this would be my second

one, had one in 1990),

Reading your e-mail, in regards to the tail bone pain issue, about 2 years ago I

had terrible tail bone pain every time I sat down, and especially when I got up

from sitting a while, I never associated the pain with the fibroids, I thought

it was because I am a very thin person (at that time my weight was 114lb, I'm

5.5 " )

after a while (months) it just went away, I never went to the doctor about it.

But now that you mentioned it....I wonder.....could it had been related to the

fibroids???? ......Interesting.....

Good luck to you.