Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 Hey, Hello and welcome to the group. To learn more about the differences in the 2 procedures go to www.4woman.gov that one will tell you about the UFE. www.myomectomy.net will tell you about the myo's. You can also try asking different doctors what they think and tell them about your concerns. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 Hey, Hello and welcome to the group. To learn more about the differences in the 2 procedures go to www.4woman.gov that one will tell you about the UFE. www.myomectomy.net will tell you about the myo's. You can also try asking different doctors what they think and tell them about your concerns. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 Hey, Hello and welcome to the group. To learn more about the differences in the 2 procedures go to www.4woman.gov that one will tell you about the UFE. www.myomectomy.net will tell you about the myo's. You can also try asking different doctors what they think and tell them about your concerns. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 I am hoping that somenoe else may have gone through the same confusion and may have some advice or knowledge. I am 35 years old and have a 4.5 cm fibroid that is causing all sorts of trouble. I do not have any children, but want to preserve my fertility. I am trying to decide between UFE and and abdominal myo and am totally confusing myself. I guess I just need some thoughts on how other women made their decisions. Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 Jen, Hi, I'm also. I had a 10cm fibroid and also a 2 cm fibroid. I am 43 and just had a UFE 5 weeks ago. I feel great and am so happy that I've gotten through all this. I was so freaked out. Same as you, wanted to preserve everything. The reason why I didn't do myo was a fear that it'll grow right back!! I didn't want to go through major abdominal surgury, only to have it grow back in a couple of years!!!! Being more risky type of surgery, I was weiry of having to go through this and maybe again. It was tough becuase at 1st, you read all these scary things about UFE but after researching for months I decided it was my only choice. I've had my kids already so that wasn't my issue. I was freaked out about all the risks, but they are so little compared to the risks of myo, hysterectomy. I found great support from the embo group and basically these women helped me with all my fears. At least with UFE, it won't grow back, although there is a chance that it could find a new blood supply, but again, small risk. You have to research and weight all this. It's not easy, but soon over time I came to realize that this was my only choice. I am doing great, my procedure went just fine, no complications, and I've had a period on time. So far, so good. Jen -- In uterinefibroids , " jlmdolan2004 " wrote: > I am hoping that somenoe else may have gone through the same > confusion and may have some advice or knowledge. I am 35 years old > and have a 4.5 cm fibroid that is causing all sorts of trouble. I do > not have any children, but want to preserve my fertility. I am > trying to decide between UFE and and abdominal myo and am totally > confusing myself. I guess I just need some thoughts on how other > women made their decisions. Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 Jenn, I'm having my ab myomectomy this coming Thursday. I actually did research a while back and decided that I wanted the UFE. I searched out a big time doctor in Philadelphia and made my appt. One of his first questions to me were is the fibroid causing me problems and in my case no. My reason I told him for getting it out was because it gave me tons of trouble during pregnancy and caused my daughter to be born at 24wks. He then told me that UFE wasn't the route for me. He said it's still to new and they have mixed results on performing this procedure on women who still want to have children. He said studies are showing that sometimes after having UFE that it can cause a greater risk in miscarriage or preterm delivery. Both of which I hope to avoid. He said if my child bearing days were over he would do it no problem. So back to my doctor I go who tells me the same thing. My doctor also said the reason he is taking my fibroid out through an incision in the abdomen is because my fibroid is somewhat in the lining of my uterus and by doing it this way he can stitch my uterus back up properly to hopefully with stand a full term pregnancy. Get a few different opinions thats what I did and after hearing all of them abdomen surgery is my best option to still have another child. Good Luck, Pam > I am hoping that somenoe else may have gone through the same > confusion and may have some advice or knowledge. I am 35 years old > and have a 4.5 cm fibroid that is causing all sorts of trouble. I do > not have any children, but want to preserve my fertility. I am > trying to decide between UFE and and abdominal myo and am totally > confusing myself. I guess I just need some thoughts on how other > women made their decisions. Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 Jenn, I'm having my ab myomectomy this coming Thursday. I actually did research a while back and decided that I wanted the UFE. I searched out a big time doctor in Philadelphia and made my appt. One of his first questions to me were is the fibroid causing me problems and in my case no. My reason I told him for getting it out was because it gave me tons of trouble during pregnancy and caused my daughter to be born at 24wks. He then told me that UFE wasn't the route for me. He said it's still to new and they have mixed results on performing this procedure on women who still want to have children. He said studies are showing that sometimes after having UFE that it can cause a greater risk in miscarriage or preterm delivery. Both of which I hope to avoid. He said if my child bearing days were over he would do it no problem. So back to my doctor I go who tells me the same thing. My doctor also said the reason he is taking my fibroid out through an incision in the abdomen is because my fibroid is somewhat in the lining of my uterus and by doing it this way he can stitch my uterus back up properly to hopefully with stand a full term pregnancy. Get a few different opinions thats what I did and after hearing all of them abdomen surgery is my best option to still have another child. Good Luck, Pam > I am hoping that somenoe else may have gone through the same > confusion and may have some advice or knowledge. I am 35 years old > and have a 4.5 cm fibroid that is causing all sorts of trouble. I do > not have any children, but want to preserve my fertility. I am > trying to decide between UFE and and abdominal myo and am totally > confusing myself. I guess I just need some thoughts on how other > women made their decisions. Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Good luck with your operation pjkay720! ______ Fibroid Facts: Just because something is published in book form doesn't necc. mean that it's true, but we are swayed by the authority of a book format. Some of the fibroid books have a very slight difference in tone, or quite marked difference of opinion on certain topics. It's very hard to know which is the closest to the truth and when two seemingly contradictory viewpoints could both be true. Looking at PubMed certain research findings also seemed contradictory and I wondered how big the sample groups were. The subject of brith control and fibroids is very, very confusing, for example. How ARE we supposed to kow what is or isn't right, aside from the dates of publication? Could gut feeling and common sense are as good a guideline as any?? Or does that tempt us to go with the least scary, most appeaing choices, right ly or wrongly? Aztek _________________ > > I am hoping that somenoe else may have gone through the same > > confusion and may have some advice or knowledge. I am 35 years old > > and have a 4.5 cm fibroid that is causing all sorts of trouble. I > do > > not have any children, but want to preserve my fertility. I am > > trying to decide between UFE and and abdominal myo and am totally > > confusing myself. I guess I just need some thoughts on how other > > women made their decisions. Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Good luck with your operation pjkay720! ______ Fibroid Facts: Just because something is published in book form doesn't necc. mean that it's true, but we are swayed by the authority of a book format. Some of the fibroid books have a very slight difference in tone, or quite marked difference of opinion on certain topics. It's very hard to know which is the closest to the truth and when two seemingly contradictory viewpoints could both be true. Looking at PubMed certain research findings also seemed contradictory and I wondered how big the sample groups were. The subject of brith control and fibroids is very, very confusing, for example. How ARE we supposed to kow what is or isn't right, aside from the dates of publication? Could gut feeling and common sense are as good a guideline as any?? Or does that tempt us to go with the least scary, most appeaing choices, right ly or wrongly? Aztek _________________ > > I am hoping that somenoe else may have gone through the same > > confusion and may have some advice or knowledge. I am 35 years old > > and have a 4.5 cm fibroid that is causing all sorts of trouble. I > do > > not have any children, but want to preserve my fertility. I am > > trying to decide between UFE and and abdominal myo and am totally > > confusing myself. I guess I just need some thoughts on how other > > women made their decisions. Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi Jen You have the horrible task of trying to establish the truth about UAE (Hmmm....sounds like a catchy name for a book...). Some sources suggest that it may potentially effect fertlity and others argue otherwise. Try the following if you haven't already: The Yahoo embo forum Smartgroups UK group (One of the posters performs UAE in the UK) Carla Dionne's book Dr. Indman website on search of that name PubMed on aweb search of that title Best wishes Aztek Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi Jen You have the horrible task of trying to establish the truth about UAE (Hmmm....sounds like a catchy name for a book...). Some sources suggest that it may potentially effect fertlity and others argue otherwise. Try the following if you haven't already: The Yahoo embo forum Smartgroups UK group (One of the posters performs UAE in the UK) Carla Dionne's book Dr. Indman website on search of that name PubMed on aweb search of that title Best wishes Aztek Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi Jen You have the horrible task of trying to establish the truth about UAE (Hmmm....sounds like a catchy name for a book...). Some sources suggest that it may potentially effect fertlity and others argue otherwise. Try the following if you haven't already: The Yahoo embo forum Smartgroups UK group (One of the posters performs UAE in the UK) Carla Dionne's book Dr. Indman website on search of that name PubMed on aweb search of that title Best wishes Aztek Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi Jen, I was very interested in UFE as well. I am also 35 and have only one child so far. My main reason for removing my fibroid was to preserve my fertility. My fibroid was asymptomatic other than attaching to & obstructing my bowel when I was 8 months pregnant. I discussed UFE with my Dr. and she said that it has not yet been proven safe in women who wish to preserve their fertility. To me, I didn't want to be a guinnea pig in this area - my future fertility is way too precious to me. So, 3 weeks ago I had an abdominal myo and I can honestly say it wasn't that bad and today I feel 99.9% back to normal. I am now in the 4-6 month waiting period before trying to get pregnant again. It is a difficult choice but is one that every woman needs to make for herself. Good luck to you! ~Cindy > I am hoping that somenoe else may have gone through the same > confusion and may have some advice or knowledge. I am 35 years old > and have a 4.5 cm fibroid that is causing all sorts of trouble. I do > not have any children, but want to preserve my fertility. I am > trying to decide between UFE and and abdominal myo and am totally > confusing myself. I guess I just need some thoughts on how other > women made their decisions. Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi Jen, I was very interested in UFE as well. I am also 35 and have only one child so far. My main reason for removing my fibroid was to preserve my fertility. My fibroid was asymptomatic other than attaching to & obstructing my bowel when I was 8 months pregnant. I discussed UFE with my Dr. and she said that it has not yet been proven safe in women who wish to preserve their fertility. To me, I didn't want to be a guinnea pig in this area - my future fertility is way too precious to me. So, 3 weeks ago I had an abdominal myo and I can honestly say it wasn't that bad and today I feel 99.9% back to normal. I am now in the 4-6 month waiting period before trying to get pregnant again. It is a difficult choice but is one that every woman needs to make for herself. Good luck to you! ~Cindy > I am hoping that somenoe else may have gone through the same > confusion and may have some advice or knowledge. I am 35 years old > and have a 4.5 cm fibroid that is causing all sorts of trouble. I do > not have any children, but want to preserve my fertility. I am > trying to decide between UFE and and abdominal myo and am totally > confusing myself. I guess I just need some thoughts on how other > women made their decisions. Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi Jen, I was very interested in UFE as well. I am also 35 and have only one child so far. My main reason for removing my fibroid was to preserve my fertility. My fibroid was asymptomatic other than attaching to & obstructing my bowel when I was 8 months pregnant. I discussed UFE with my Dr. and she said that it has not yet been proven safe in women who wish to preserve their fertility. To me, I didn't want to be a guinnea pig in this area - my future fertility is way too precious to me. So, 3 weeks ago I had an abdominal myo and I can honestly say it wasn't that bad and today I feel 99.9% back to normal. I am now in the 4-6 month waiting period before trying to get pregnant again. It is a difficult choice but is one that every woman needs to make for herself. Good luck to you! ~Cindy > I am hoping that somenoe else may have gone through the same > confusion and may have some advice or knowledge. I am 35 years old > and have a 4.5 cm fibroid that is causing all sorts of trouble. I do > not have any children, but want to preserve my fertility. I am > trying to decide between UFE and and abdominal myo and am totally > confusing myself. I guess I just need some thoughts on how other > women made their decisions. Thanks, Jen Quote Link to comment Share on other sites More sharing options...
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