Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi Gloria, I am 44 years old and scheduled for my 2nd myo on July 16th. I also thought about UAE and did some research on it, however, I chose a myo because I was not too comfortable with the fact that UAE does not guarantee that the fibroids will completely shrink, also, even if they do, it take a while (months), and I also had some reservations about having those pellets in my body, considering all of that myo was my choice. I just wanted a quick solution. The way I see it, is that in a few hours (usually 2-5 for a myo) I would be completely free of the fibroids, and although the recuperation time for a myo is obviously longer than it would be for UAE to me is was still the better choice for resolving the problem. Good luck. Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi Gloria, I am 44 years old and scheduled for my 2nd myo on July 16th. I also thought about UAE and did some research on it, however, I chose a myo because I was not too comfortable with the fact that UAE does not guarantee that the fibroids will completely shrink, also, even if they do, it take a while (months), and I also had some reservations about having those pellets in my body, considering all of that myo was my choice. I just wanted a quick solution. The way I see it, is that in a few hours (usually 2-5 for a myo) I would be completely free of the fibroids, and although the recuperation time for a myo is obviously longer than it would be for UAE to me is was still the better choice for resolving the problem. Good luck. Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Thanks Angelina, It has been 14 years since my last myo (was able to conceive 2 children in that time span) I guess I was lucky that all this time has passed, but the inevitable did happen, THEY CAME BACK ! Hopefully this will be my last time around. Good luck to you, Marisa Original Message----- Hi, Marisa Just want to say good luck with your second myo. I don't know how long it has been since your first, but I feel your pain. I am 29 years old and I have already had two myos within a 6 year time frame and I don't have any children yet. I am now in the process of trying to prevent from having a third myo. Anyone have any suggestions on how I can possibly achieve that? ) Angelina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 There is another Yahoo group that focuses on UAE - the " embo " group. http://health.groups.yahoo.com/group/embo/?yguid=164461676 You can find more information and women who have undergone UAE there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 The home page for the Embo Yahoo group is at: http://health.groups.yahoo.com/group/embo/ As Carla mentions on her Web site, uterine artery embolization (UAE) has been used for about 20 years to control excessive hemorrhaging after childbirth or after pelvic surgery. About 8 years ago, uterine fibroid embolization (UFE) started to be used to treat fibroids. http://www.uterinefibroids.com/c_uae.htm I considered UFE, but it wasn't really an option because I wanted to preserve my fertility, and not enough is known yet about how UFE affects fertility. Also, my doctor recommended against UFE because my fibroid was pedunculated and because of its size (11 cm). The other reservation that I have about UAE is related to my in utero exposure to DES (diethylstilbestrol, a synthetic form of estrogen). The DES saga was just one of many instances in which the medical community prescribed a drug without having enough information to decide whether it was safe. It wasn't until about 20 years later that the medical community realized and admitted its mistake. By then, many DES mothers had an increased risk of breast cancer because of the drug, many DES daughters had an increased risk of a rare form of cancer and an increased risk of fertility problems, and many DES sons also had fertility problems. In addition, there appears to be some evidence that DES may have caused problems among the grandchildren of women who took the drug. Despite the problems caused by the synthetic estrogen in DES, the medical community decided to recommend hormone replacement therapy (HRT) to many menopausal women. Too many years later, they discovered that HRT caused an increased risk of breast cancer and other problems. As you can tell from Carla's recent messages about the FDA's recommendation about focused ultrasound treatments, the government and the medical community are still too hasty about approving drugs and procedures just because they are in high demand. Unfortunately, the long-term effects of some drugs and procedures cannot be known until many years after they are introduced. Cheryl At 11:59 AM 6/12/2004 -0400, you wrote: >I know this topic has been discussed. But I'm noticing lots of people who are >either just recovering from myos or are just about to go in for one. I was >wondering how many of you who have made this decision looked into having a >UAE. >If not, was it because there was no one available in your area to do one? Or >was it an insurance issue? Or just unsure about the procedure? > >I'm thinking of doing a myo in about 2 months. My doctor seemed to think it a >good idea. We talked about UAE, but it was his opinion that it is still a >relatively new procedure and they are still working on getting it more >accurate. >That is, how much to occlude the artery. He said right now they block it >100%, >but sometimes that can cut off the blood supply to the ovaries and cause >menopause earlier. Being 46, I'm not sure that's that big a deal for me. > >I'm afraid that I'm leaning towards a myo because I have the doc, I have the >time frame and I kind of don't want to look any further. Part of me feels >very >comfortable with the idea of the myo, but part of me feels that I should >investigate further. > >I think someone put down a link to a UAE chat group a while ago. I would >appreciate getting that link again. > >I'd appreciate any input. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Hi Gloria, A couple of years ago I considered UFE and decided to watch and wait.The IR I consulted with felt there was a 25% chance the procedure would take me into menopause. I said thanks, but no thanks. My feeling is if the ovaries continue to secrete small amounts of hormones after menopause and that's a good reason to keep them, how could they do that if they were " shut down " by UFE particles? I don't know if that's been investigated or if it ever will be, but to me it wasn't worth the risk.If you have to do something about your fibroid(s) and do decide on UFE, and you don't want them to embolize your ovaries be sure the IR understands that and agrees to stop the procedure.Here's another link for UFE which may help you get more information before you make a final decision. You can also search for an IR near you and perhaps find a free seminar. www.ask4ufe.com It certainly couldn't hurt to go for a consult with an IR and get the facts directly.Also here's a link for a UFE webcast which shows the entire procedure. http://www.or- live.com/jeffersonhospital/1140/ Gerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Hi Gloria, A couple of years ago I considered UFE and decided to watch and wait.The IR I consulted with felt there was a 25% chance the procedure would take me into menopause. I said thanks, but no thanks. My feeling is if the ovaries continue to secrete small amounts of hormones after menopause and that's a good reason to keep them, how could they do that if they were " shut down " by UFE particles? I don't know if that's been investigated or if it ever will be, but to me it wasn't worth the risk.If you have to do something about your fibroid(s) and do decide on UFE, and you don't want them to embolize your ovaries be sure the IR understands that and agrees to stop the procedure.Here's another link for UFE which may help you get more information before you make a final decision. You can also search for an IR near you and perhaps find a free seminar. www.ask4ufe.com It certainly couldn't hurt to go for a consult with an IR and get the facts directly.Also here's a link for a UFE webcast which shows the entire procedure. http://www.or- live.com/jeffersonhospital/1140/ Gerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Hi, Marisa Just want to say good luck with your second myo. I don't know how long it has been since your first, but I feel your pain. I am 29 years old and I have already had two myos within a 6 year time frame and I don't have any children yet. I am now in the process of trying to prevent from having a third myo. Anyone have any suggestions on how I can possibly achieve that? ) Angelina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 Fibroid regrowth is unfortunate, but not inevitable. It occurs about 25 percent of the time, and requires treatment only about 10 percent of the time. As Carla mentions on her Web site and in her book, " Sex, Lies, & the Truth About Uterine Fibroids, " a woman's age at the time of her myomectomy is a factor in whether her fibroids are likely to recur. http://www.uterinefibroids.com/c_myo.htm Cheryl At 01:16 AM 6/8/2004 -0400, you wrote: >Thanks Angelina, > >It has been 14 years since my last myo (was able to conceive 2 children in >that time span) I guess I was lucky that all this time has passed, but the >inevitable did happen, THEY CAME BACK ! >Hopefully this will be my last time around. Quote Link to comment Share on other sites More sharing options...
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