Re: Very long post from very confused Texan

[Guest guest]

Texan wrote:

" I asked about possibly getting a referral to an RE, but she said they

would likely refer me right back to her because of my age. "

This is simply not true. I would suggest you try to locate a reproductive

endocrinologist and get a second opinion.

I don't know the answer to your question about whether or not the ovarian

mass can be evaluation at the time of surgery, but I agree that an MRI might

give you more info on whether it is involving your ovary, or as you suggest,

is just a fibroid superimposed on the ovary.

I think your observations about the " wandering fibroids " , etc. are right on

and too many docs are guilty of this type of lack-of-definite-information,

or tell-them-whatever-will-get-them-to-agree-to-surgery.

Best of luck, and do keep in touch here.

Leonie

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[Guest guest]

Hello my dear,

You sound quite perplexed. It sounds like you are getting the run-around

from your doctor. Glad to hear you are sticking to your guns on this one.

And good for you for canceling the surgery. That must have been difficult

to do.

So now here you are seeking more answers. Well, since your doctor cannot

tell you much about your fibroids... I have a suggestion. You seem to be

interested in the removal of your polyp via resection surgery. So before

you decide on anything, ask your doctor if she will perform an in-office

hysteroscopy exam. This allows her to see what is actually in your

endometrial cavity. She will be able to see if most of your fibroids are

submucosal or not. And ifit is possible, have her perform a transvaginal

ultrasound at the same apt to take a closer look at your ovary. If you do

have a mass on it, it may very well be a cyst. Often times these cysts

appear on u/s tests and then shrink away on their own to be unseen at a

follow up u/s. They may not need to biopsy it at all. But if it is

something both you and your doctor are worried about, you may want to have

her biopsy it through a laparoscopy.

If you have both submucosal fibs and intramural fibs, it sounds like you may

need a more skilled surgeon for these fibroids. Can you go see a RE for a

second opinion? You may choose to have your submucosal fibs and your polyp

removed via resection and then wait to have the intramural fibs and the

ovarian biopsy via laparoscopy. If your fibroids are small you may not need

an abdominal myo.

I'm hoping the other ladies here can help you find a doctor in your area.

I'm too far away to know any in Texas.

Best of luck to you my dear. I'll be praying that you get the answers you

are looking for. Good for you for being assertive and taking charge of your

own medical treatments!

:)Sonja

[Guest guest]

> Texan wrote:

> " I asked about possibly getting a referral to an RE, but she said

they

> would likely refer me right back to her because of my age. "

>

> This is simply not true. I would suggest you try to locate a

reproductive

> endocrinologist and get a second opinion.

I wanted to second Leonie's statement that an RE will not/should

not!! refuse you care because of your age.

I don't feel knowledgable enough to advise on the ovary issues, but

re the myo question, check for posts from , sbstraus on this

list. She is in Texas and had a myo scheduled just this past Weds.

with someone she was very happy with, I believe she posted the name

once or twice. I can't remember exactly where she is in Texas, but

she did a major search to find someone she liked. Maybe once she gets

back on-line post-surgery she can let you know if things turned out

well for her and if she had any other info about Texas doctors.

In my own case (in NYC) I went to an RE for a myo at age 48. He is

used to and comfortable doing myos on women of any age exactly

BECAUSE he treats women of all ages for infertility, and is involved

in the IVF program at his hospital (which treats women up to age 55).

But nobody suggested that I had to be part of that program to have

surgery and I've never heard of such a thing.

Keep looking.

Sunny