Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 You might also want to join the " embo " group at http://health.groups.yahoo.com/group/embo/ Many of the women in that group have had UAE or are planning on it. > I am interested in hearing from anyone who has had the procedure. > How painful is it? I have heard some have to be admitted for pain > control. Is there a possibility they cannot get all fibroids. Does > it depend on the size and location? If these questions have all > ready been answered, I am new, so direct me to the correct post. Has > anyone had partial hysterectomy thru the belly button leaving the > cervix? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 You tend to hear more about myos here because there is a separate Yahoo group devoted to UAE called the embo group: http://health.groups.yahoo.com/group/embo/ Myomectomy was never mentioned to me. I read about it in the book I bought but it sounded quite invasive. However, the posted emails I've read for the most part seem to be about this procedure. Should I be worried? Is there anyone in this group who has had embolization and can comment on it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Hi, . I tried replying to you privately, but I received an error message that said you don't have a Yahoo account. Here's the reply I tried to send: Welcome to the group. I considered embolization, but because I wanted to try to have a second child, I had a myomectomy. Even if I had not been concerned about my fertility, my doctor would have recommended against embolization for my situation because my fibroid was so large (11 cm) and was on a stalk outside my uterus. I did consider embolization, though, and I was a member of the Embo group on Yahoo for a while. Some of the women on the UterineFibroids group have had embos, but even more on the Embo group have. http://health.groups.yahoo.com/group/embo/ If you'd like to read more about my fibroid and myomectomy experiences, see: http://home.comcast.net/~cmagadieu/myoreport.html The Mayo Clinic Web site has a good overview of fibroids and discusses the pros and cons of several treatment options: http://www.mayoclinic.com/invoke.cfm?objectID=802ED1C5-492F-4D34- ACA0D4AC3566D98E&page=1 Cheryl Myomectomy was never mentioned to me. I read about it in the book I bought but it sounded quite invasive. However, the posted emails I've read for the most part seem to be about this procedure. Should I be worried? Is there anyone in this group who has had embolization and can comment on it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Hi Everyone, After reading about this website in " What Your Doctor May Not have told you about your Fibroid " I registered immediately; so here I am. I live in Ontario and was diagonsed with fibroids seven years ago. My GP, who is amazing, found them and ordered an ultrasound. At that time there were three, all around 2 to 3 cm. Now, seven years later, an MRI in December confirmed there are two, one 6.8 cm. and one 8.8 cm. What happened to the third one? Good question. I think the other infarcted last May and died; I was in a lot of pain for three days and ended up in Emergency where the on-call ob-gyn couldn't really tell me what had happened, and kept asking me if I was sure I wasn't pregnant! My GP's theory is that I suffered an infarction and I trust her judgement. I have not had bleeding symptoms (yes, I know I'm lucky), but I am having a lot of pressure symptoms (incontinence, frequent urination, discomfort during intercourse). Because of this my specialist has recommended embolization and is hopeful that it will prevent me from having to have a hysterectomy. Since I am only 36, that is a surgery I would like to avoid. I'm scheduled for surgery April 20th at KGH. Myoectomy was never mentioned to me. I read about it in the book I bought but it sounded quite invasive. However, the posted emails I've read for the most part seem to be about this procedure. Should I be worried? Is there anyone in this group who has had embolization and can comment on it? Help! M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Do you have children & if not do you want them? My doctor & alot of women on this group have suggested that not enough research has been done regarding UFE & fertility. This is why my doctor suggested myomectomy - preserves your fertility. Cheryl in Vancouver Rob Morrow robmorrow@...> wrote: I have not had bleeding symptoms (yes, I know I'm lucky), but I am having a lot of pressure symptoms (incontinence, frequent urination, discomfort during intercourse). Because of this my specialist has recommended embolization and is hopeful that it will prevent me from having to have a hysterectomy. Since I am only 36, that is a surgery I would like to avoid. I'm scheduled for surgery April 20th at KGH. Myoectomy was never mentioned to me. I read about it in the book I bought but it sounded quite invasive. However, the posted emails I've read for the most part seem to be about this procedure. Should I be worried? Is there anyone in this group who has had embolization and can comment on it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Hi again It seems to me that if you aren't going to have kids, UAE is the way to go - way less invasive & you get great results from what I've read. I wish it was an option for me - I'm scheduled for a myo May 17th & am only having the surgery so I can have kids. Good luck - keep us posted. Cheryl Rob Morrow robmorrow@...> wrote: Hi Cheryl, No we don't. I was diagnosed with fibroids six months after we married and the specialist I saw recommended that if we wanted children that we have them in the next year, two years at the most. We were not ready for that, and over the next three years I had several friends who had significant problems during pregnancy (one friend's baby only lived five days, while another had a child who had a stroke while in the womb), plus my sister had a baby with a craniosinostisis. Consequently, we decided we didn't want to risk a pregnancy that might not go to term. I have reconciled myself to being a super aunt rather than a mother. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Hi Jen, So pleased that you received good results from your embolization. I have registered with the embo group so I'll likely see postings from you there. karen Re: Embolization , check out the yahoo embo group. These women (including myself) have been through embolization or will be going through it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Hi , I'm new to yahoo chat groups so I didn't realize there was an embo group. Several members have enlightened me. Glad to hear your procedure went well and that you recovered quickly. Re: Embolization M, I've had an embolization (or UAE as it's called) about 16 months ago. For me it was very successful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 , You need to join the yahoo embo group. these women have had a UFE or are in the processs of it or are researching it!!! It has been a phenominal resourse for me, through thick and thin. I had my embo the end of Janurary for a 10 cm fibroid also. My symtoms were gushing, hemmoraging, and peeing very often. some constapation also. good luck and talk to you next door!!! Jen > Hello - I'm new to this group. I'd like to know about experiences with embolization. My fibroid is about 10 cm. I've read > a lot about this procedure, but would like to chat with women who have actually gone through it. Thanks. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 , You need to join the yahoo embo group. these women have had a UFE or are in the processs of it or are researching it!!! It has been a phenominal resourse for me, through thick and thin. I had my embo the end of Janurary for a 10 cm fibroid also. My symtoms were gushing, hemmoraging, and peeing very often. some constapation also. good luck and talk to you next door!!! Jen > Hello - I'm new to this group. I'd like to know about experiences with embolization. My fibroid is about 10 cm. I've read > a lot about this procedure, but would like to chat with women who have actually gone through it. Thanks. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 , You need to join the yahoo embo group. these women have had a UFE or are in the processs of it or are researching it!!! It has been a phenominal resourse for me, through thick and thin. I had my embo the end of Janurary for a 10 cm fibroid also. My symtoms were gushing, hemmoraging, and peeing very often. some constapation also. good luck and talk to you next door!!! Jen > Hello - I'm new to this group. I'd like to know about experiences with embolization. My fibroid is about 10 cm. I've read > a lot about this procedure, but would like to chat with women who have actually gone through it. Thanks. > > Quote Link to comment Share on other sites More sharing options...
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