Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 I was just recently diagnosed with two large and a bunch of small fibroids in my uterus. Uterus is quite enlarged and the fibroids are obscuring the view of my left ovary - had the right one removed due to a non-malignant cyst when I was <1 year old. I have very few symptoms other than: belly sticks out, little pain, little constipation, no wild bleeding. My ob/gyn is great - he presented me with five options: Watch and wait Embolization Myomectomy - Done laproscopically Hysterectomy - Done laproscopically Hysterectomy with ovary removal as well - Done laproscopically I am 41, never had children and do not plan to. My teo older sisters both have fibroids. One had a large one removed via myomectomy and believes she has new ones causing problems five years later. I have searched the websites for material and information, talked with as many women as I can, etc. Amazed at the lack of clinical studies and real statistics based on years of following patients. A dreadful statement on women's healthcare in America. So,I am confused and wait every day for the pain and bleeding. To complicate the matter, I am moving out of Chicago in a few months and would prefer to act with a very good MD here versus new home. So, my question to the team is: Am I crazy to consider actio when I am relatively asymptomatic? Seems a myomectomy, given family history and years before menopause may only mean another surgery later. That leads me to hysterectomy - with or without taking the ovary. Need experiences from women who have had a hysterectomy before 40 and took low dose estrogen. I cannot mind many in this category who were not glad they did. Greatly improved quality of life. Please share Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Charlene, Hello. I had a UFE (embolization about 4 1/2 weeks ago. My symtoms were hemmoraging, gushing bleeding periods and inbetween. I became very anemic due to blood loss by the time I got in for the procedure. My symtoms were severe. I did have bulk symtoms, peeing often, but this could take a few months or more to improve. It's amazing to not bleed like that anymore and I'm feeling great. I am 43 and have already had my kids. On the other hand, you sound as if your symtoms are not severe at all. What symtoms are you actually having? I wouldn't rush into something just becuase you are moving! I found my IR through the Embo group!!! (Here in CT) If you research, you will be able to find a good doc whereever you move to! I played the watch and wait game for 3 yrs before I had my 1st hemmoraging incident. I think it's a good game to play, becuase it gives you time to research your obtions and learn what you need to be aware as far as your symtoms. Jen > I was just recently diagnosed with two large and a > bunch of small fibroids in my uterus. Uterus is quite > enlarged and the fibroids are obscuring the view of my > left ovary - had the right one removed due to a > non-malignant cyst when I was <1 year old. > I have very few symptoms other than: belly sticks out, > little pain, little constipation, no wild bleeding. > My ob/gyn is great - he presented me with five > options: > Watch and wait > Embolization > Myomectomy - Done laproscopically > Hysterectomy - Done laproscopically > Hysterectomy with ovary removal as well - Done > laproscopically > > I am 41, never had children and do not plan to. > My teo older sisters both have fibroids. One had a > large one removed via myomectomy and believes she has > new ones causing problems five years later. > I have searched the websites for material and > information, talked with as many women as I can, etc. > Amazed at the lack of clinical studies and real > statistics based on years of following patients. A > dreadful statement on women's healthcare in America. > So,I am confused and wait every day for the pain and > bleeding. > To complicate the matter, I am moving out of Chicago > in a few months and would prefer to act with a very > good MD here versus new home. > So, my question to the team is: > Am I crazy to consider actio when I am relatively > asymptomatic? > Seems a myomectomy, given family history and years > before menopause may only mean another surgery later. > That leads me to hysterectomy - with or without taking > the ovary. Need experiences from women who have had a > hysterectomy before 40 and took low dose estrogen. I > cannot mind many in this category who were not glad > they did. Greatly improved quality of life. > Please share Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Charlene, Hello. I had a UFE (embolization about 4 1/2 weeks ago. My symtoms were hemmoraging, gushing bleeding periods and inbetween. I became very anemic due to blood loss by the time I got in for the procedure. My symtoms were severe. I did have bulk symtoms, peeing often, but this could take a few months or more to improve. It's amazing to not bleed like that anymore and I'm feeling great. I am 43 and have already had my kids. On the other hand, you sound as if your symtoms are not severe at all. What symtoms are you actually having? I wouldn't rush into something just becuase you are moving! I found my IR through the Embo group!!! (Here in CT) If you research, you will be able to find a good doc whereever you move to! I played the watch and wait game for 3 yrs before I had my 1st hemmoraging incident. I think it's a good game to play, becuase it gives you time to research your obtions and learn what you need to be aware as far as your symtoms. Jen > I was just recently diagnosed with two large and a > bunch of small fibroids in my uterus. Uterus is quite > enlarged and the fibroids are obscuring the view of my > left ovary - had the right one removed due to a > non-malignant cyst when I was <1 year old. > I have very few symptoms other than: belly sticks out, > little pain, little constipation, no wild bleeding. > My ob/gyn is great - he presented me with five > options: > Watch and wait > Embolization > Myomectomy - Done laproscopically > Hysterectomy - Done laproscopically > Hysterectomy with ovary removal as well - Done > laproscopically > > I am 41, never had children and do not plan to. > My teo older sisters both have fibroids. One had a > large one removed via myomectomy and believes she has > new ones causing problems five years later. > I have searched the websites for material and > information, talked with as many women as I can, etc. > Amazed at the lack of clinical studies and real > statistics based on years of following patients. A > dreadful statement on women's healthcare in America. > So,I am confused and wait every day for the pain and > bleeding. > To complicate the matter, I am moving out of Chicago > in a few months and would prefer to act with a very > good MD here versus new home. > So, my question to the team is: > Am I crazy to consider actio when I am relatively > asymptomatic? > Seems a myomectomy, given family history and years > before menopause may only mean another surgery later. > That leads me to hysterectomy - with or without taking > the ovary. Need experiences from women who have had a > hysterectomy before 40 and took low dose estrogen. I > cannot mind many in this category who were not glad > they did. Greatly improved quality of life. > Please share Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Charlene, Hello. I had a UFE (embolization about 4 1/2 weeks ago. My symtoms were hemmoraging, gushing bleeding periods and inbetween. I became very anemic due to blood loss by the time I got in for the procedure. My symtoms were severe. I did have bulk symtoms, peeing often, but this could take a few months or more to improve. It's amazing to not bleed like that anymore and I'm feeling great. I am 43 and have already had my kids. On the other hand, you sound as if your symtoms are not severe at all. What symtoms are you actually having? I wouldn't rush into something just becuase you are moving! I found my IR through the Embo group!!! (Here in CT) If you research, you will be able to find a good doc whereever you move to! I played the watch and wait game for 3 yrs before I had my 1st hemmoraging incident. I think it's a good game to play, becuase it gives you time to research your obtions and learn what you need to be aware as far as your symtoms. Jen > I was just recently diagnosed with two large and a > bunch of small fibroids in my uterus. Uterus is quite > enlarged and the fibroids are obscuring the view of my > left ovary - had the right one removed due to a > non-malignant cyst when I was <1 year old. > I have very few symptoms other than: belly sticks out, > little pain, little constipation, no wild bleeding. > My ob/gyn is great - he presented me with five > options: > Watch and wait > Embolization > Myomectomy - Done laproscopically > Hysterectomy - Done laproscopically > Hysterectomy with ovary removal as well - Done > laproscopically > > I am 41, never had children and do not plan to. > My teo older sisters both have fibroids. One had a > large one removed via myomectomy and believes she has > new ones causing problems five years later. > I have searched the websites for material and > information, talked with as many women as I can, etc. > Amazed at the lack of clinical studies and real > statistics based on years of following patients. A > dreadful statement on women's healthcare in America. > So,I am confused and wait every day for the pain and > bleeding. > To complicate the matter, I am moving out of Chicago > in a few months and would prefer to act with a very > good MD here versus new home. > So, my question to the team is: > Am I crazy to consider actio when I am relatively > asymptomatic? > Seems a myomectomy, given family history and years > before menopause may only mean another surgery later. > That leads me to hysterectomy - with or without taking > the ovary. Need experiences from women who have had a > hysterectomy before 40 and took low dose estrogen. I > cannot mind many in this category who were not glad > they did. Greatly improved quality of life. > Please share Quote Link to comment Share on other sites More sharing options...
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