Thought I would feel better after dr's appt but...

[Guest guest]

I feel a lot worse. I thought that with 2 fibroids that are mucousic,

everything wouldn't be THAT bad. Here's what she told me that has

had me crying off and on for the past 24 hours:

1. When I was in the hospital two weeks ago during AF, I lost about

HALF the blood that I am supposed to have in me. The doctors had

prepared to give me FOUR blood transfusions, but only gave me two

after I became " stable " (but I was still mildly-moderately anemic

when I was released). She says if I have another episode like that

one, I will probably have to be operated on immediately because I

could bleed to death. Now, even though I am mid-cycle, I am on a

high dose of birth control pills to try and lessen the blood loss

during the next AF. She says she doesn't think it is very likely

that we will be able to do this because of where I am in my cycle,

but we'll try. So, now I am even more terrified of my next period

than I was before I went to the doctor.

2. While one of my fibroids is penduculated (sp?), from the

description that the hospital sent over, the second one seems to be

stuck in between the endometrial lining and the muscle of the uterine

wall. The Dr. says that this is one of the worse kind to have

because once you go into that lining, it can weaken the uterus'

ability to carry a pregnancy to term--and that the lining does not

regenerate itself. So, this COULD affect my ability to get pregnant

and stay pregnant. This was the most upsetting news to me, because

my husband and I do not have any children (we'd been trying for a

year), and we want a large family. We want to go through the

experience of childbirth.

So, that is what I have been battling with. After she gets the

actual ultrasound from the hospital, she says she will know better

what is going on. She wants to put me on 3-5 month cycle of Lupron

to shrink the fibroids (and help build up my blood since I am still

anemic), before she removes them. The side effects to Lupron seem

horrible, but I am going to do more research on that later today.

She also is going to do some procedure where dye is put into my

uterus so that she can better see the fibroids. Then, she is going

to send my husband and me to a fertility specialist that she works

with when her patient still desires children.

Thank you all for " listening. " Any advice or comments would be

greatly appreciated, and will hopefully help me feel more at ease.

[Guest guest]

Hello,

I am truly touched by what you're going through, and I

pray that everything will work out for good

eventually. Yes! Lupron does have it's side effects,

but it does shrink the fibroids and you build up your

blood. I was on it for three months, and the side

effects were horrible (at least for me),but after the

surgery(7 months ago) I feel better. I had four big

fibroids, the biggest measured about 16cm( I thought

it was 11cm at first, but I just checked my records).

One of the fibroids was at the back of my uterus which

the sonogram did not reveal.The first gyn, I saw told

me outright that she would suggest hyst.( I was 29 yrs

old)but I got a second opinion, and the doctor put me

on Lupron. It's always good to research, that way you

are fully aware of what you are getting into and what

to expect. Once you get on it, you'll find out that

it's not too bad. At least it stops the bleeding.

Good luck

Dorothy

--- peachyqueen27 peachyqueen27@...> wrote:

> I feel a lot worse. I thought that with 2 fibroids

> that are mucousic,

> everything wouldn't be THAT bad. Here's what she

> told me that has

> had me crying off and on for the past 24 hours:

[Guest guest]

Hold on!

do not let them scare you. I too had lots of

episodes. I mean standing in a puddle of my own blood

while wearing a depends type episodes but I made it

and so can you! First have you tried Megace.

It is an estrogen inhibitor. I didn't completely stop

the bleeding but I was at times down to a regular pad

or even a liner. I took 20mg 2x a day I think. This

isn't easy. It has to be taken EVERY 12 hours. and

the headaches during the first month were rotten but I

wanted the chance to try and have a baby.

Second transpusions are not bad if they save your

life. I didn't want to go that way but when I was at

the worst, after the first dose of Lupron, the

transfusions gave the Megace pills time to work.

Remember the longer you are anemic the worse the side

effects are. Consider this carefully. But you can

maybe buy time to set up the myomectomy you want or

UFE with the Megace.

Also at one of my transfusions I was given yellow

stuff to. It was a blood product to improve clotting.

Have they tried this?

Hang in there

e

[Guest guest]

Hi! I had a myo last week. 13 fibroids and endometriosis. I don't have

children, I'm not married and not in a relationship right now. I'm 33 and was

ready to accept a hyst. My Dr. said " No, don't give up " I was put on Lupron

for 3 months before the myomectomy to reduce the size of the fibroids. It

worked. He used Interceed to reduce the risk of adhesions that are associated

with infertility. I know my fibroids can grow back, but I know I did all I

could. I was afraid of Lupron at first. I didn't have major side effects. I

took calcium every day. During the last month of Lupron, I felt some pain in my

legs. I guess it's what arthritis feels like. After my surgery, I haven't

felt the pain again. My experience with Lupron was not bad. Good luck, ther's

hope.

peachyqueen27 peachyqueen27@...> wrote:

She wants to put me on 3-5 month cycle of Lupron

to shrink the fibroids (and help build up my blood since I am still

anemic), before she removes them. The side effects to Lupron seem

horrible, but I am going to do more research on that later today.