To Amy - Re: Bleeding question

[Guest guest]

Hello Amy,

I have been in your shoes. I took continuous bc pills for many months at a

time because my fibroids and dx adeno would cause so much blood loss I could

not afford a period every month. It is common to have break-through

bleeding after you have been taking the pill for several continuous months

at a time. Depending on how large your fibroids are as well as how many you

have will depend on how much blood you lose between your placebo weeks.

You said you think you are excreting tissue? This could very well be blood

clots. When you have several fibroids or large fibroids growing in your

endometrial cavity they can cause the uterine blood to get trapped or to

slow its exretion rate. This slowed blood will pool and coagulate forming a

clot. The clot is later released from pelvic movement or muscle

contractions such as with urination or a BM that presses on the uterine

muscles. Even getting up from a seated position can push on the uterine

muscles and may dislodge a trapped clot.

i know you are nervous about the possibility of cancer. This is scary for

all of us who have uterine problems. I would suggest that you see a

specialist who can go the extra mile for you with tests, exams, and

screenings. A reproductive endocrinologist (RE) will be your best bet.

They usually work in fertility centers but will help any woman with uterine

issues even if she is not wanting a future pregnancy but wants to keep her

fertility.

My gyns all thought I had adenomyosis for years. I was in my late twenties

with horrible bleeding, taking cont. bc pills, and always knowing that a

hysterectomy loomed in my near future. But after I decided to go see a RE I

was floored to discover that I did not have adeno after all. I had a very

large crop of submucosal fibroids (growing within the endo cavity) that were

the cause of all my problems. my RE suggested surgery and after several

hysteroscopic resections I have no more bleeding issues!

So as a woman who has " been there " I would recommend that you insist on

seeing a doctor who knows His/her stuff. Request an in-office hysteroscopy

exam so that your doctor can see inside of your uterus to really see what is

going on in there. Do you have submucosal fibs like me? Could they be

removed via resection? Find out and get more info before you agree to any

permanent surgery decisions.

Good luck to you. If you are interested in finding a RE, post the list again

with where you live and hopefully someone here will be in your area and can

suggest a great doctor.

I'm glad you found us here. This is one of the best resources for women

with fibroids who have to live with their symptoms. We are all here to give

you support and more information. Please ask whatever you might need, and

we'll try our best to help.

Big hugs,

:)Sonja

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[Guest guest]

Amy Sonja is sooooo right

I too had a diagnosis of adeno and it turned out to be

one, very stubborn but not so large compared with some

women here, fibroid that extended out into the uterine

cavity

now that the bugger is gone I am back to NORMAL

periods

get a second opinion

If I'd let the first idiot do a hysterectomy for it

I'd have been devistated