Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi all: I have a 4.5 cm submucousal fibroid along with a smaller intramural one. My doc recommended hysterectomy, but I said NO, there's got to be something else that can be done. Well, I've been on birth control pills now-in the 2nd pack-and have started breakthrough bleeding on pill days 12, 13, 14, 15 and now 16. I know this is one of the side effects of the pill, but how long should I keep taking them to see if it'll go away? My bleeding lessened to 8 days instead of 10 last month (the first month) and my bloating/cramps were drastically reduced. I have already seen an IR and decided that UAE is not for me. I have an appt. with a RE in July to see about a myo to remove the larger one. I have also been taking iron daily as I was anemic too. I had bloodwork done last week since I've been on the iron for 6 weeks to see what my levels are at but I haven't found out yet. Any advice? Thanks, Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hey Lori, May I ask you this, " Why don't you want to do the UAE? " I had a myo in 1998 and the gyn removed all of my tumors and they came back to me last year and at that they came with full force. My tumor is the size of a newborn baby's head. Sorry I cant give you cm sizes I have never been told cm size. I have always been told in weeks or describing something to me. They consider the tumor and uterus to be 20 weeks. Myself I will do anything other than a myo or hyst to tried to help me get rid of my symptoms of the fibroids. Best of luck in whatever you decide. Keep us posted. A > > >Hi all: >I have a 4.5 cm submucousal fibroid along with a smaller intramural >one. My doc recommended hysterectomy, but I said NO, there's got to >be something else that can be done. Well, I've been on birth >control pills now-in the 2nd pack-and have started breakthrough >bleeding on pill days 12, 13, 14, 15 and now 16. I know this is one >of the side effects of the pill, but how long should I keep taking >them to see if it'll go away? My bleeding lessened to 8 days >instead of 10 last month (the first month) and my bloating/cramps >were drastically reduced. I have already seen an IR and decided that >UAE is not for me. I have an appt. with a RE in July to see about a >myo to remove the larger one. I have also been taking iron daily as >I was anemic too. I had bloodwork done last week since I've been on >the iron for 6 weeks to see what my levels are at but I haven't >found out yet. Any advice? >Thanks, >Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi Lori, Why don't you find out about having the submucosal fibroid removed by hysteroscopy? They are usually the ones that bleed. Maybe you'll find you can leave the intramural one alone. Cheryl > Hi all: > I have a 4.5 cm submucousal fibroid along with a smaller intramural > one. My doc recommended hysterectomy, but I said NO, there's got to > be something else that can be done. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi Cheryl and : I do have an appt. with an RE (Reproductive Endocrinologist) in July that specialized in all kinds of myomectomies, including hysteroscopy. I made a mistake, it's 5.4 cm, pressing into the outer part of my uterus. My gyno was concerned that if he did the hysteroscopy he might " nick " my uterus and do more damage than he could contain, that's why he recommended the RE. My main concern right now is the breakthrough bleeding using the pill. Do you have any knowledge about that? Also, I'm 40 years old and want the most minimally invasive procedure possible, which I think is the hysteroscopy versus the UAE at this time. I'll know more details after my appt. in July with the RE. Then I can make a decision based on how much downtime is needed (I have 3 kids and a husband that travels a lot). Plus, I'm a big baby when it comes to pain, and from what I've read on the UAE Groups, that procedure sounds extremely painful and I don't do well with pain medication ever. Thank you for replying to my post. I appreciate all of the advice I've read on these posts. Lori > > Hi all: > > I have a 4.5 cm submucousal fibroid along with a smaller intramural > > one. My doc recommended hysterectomy, but I said NO, there's got > to > > be something else that can be done. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Cheryl wrote... >Hi Lori, >Why don't you find out about having the submucosal fibroid >removed by hysteroscopy? They are usually the ones that bleed. Maybe >you'll find you can leave the intramural one alone. >Cheryl... Hello Lori, I agree with Cheryl. If your intramural fib is small and not causing any short-term symptoms, it is possible to have the symptomatic submucosal fib removed via hysteroscopic resection. I had multiple submucosal fibs that caused life-threatening symptoms. My RE removed them via resection surgeries (it took several since I had so many fibs) and now I have no more uterine problems. He did discover that I do have a small intramural fib (1.5cm) that may have to be removed in the future. But for now, I am currently TTC* for the first time, living without any bleeding problems, no more anemia, and feeling great! The resections were so worthwhile! I would highly recommend them. If you are interested in this surgical option, make sure you go with a surgeon who is highly skilled at resections. Most REs have plenty of experience. And even if you are not wanting a pregnancy, you can still see a RE for treatment. Please feel free to e-maial me off the list if you like. Just be sure to include " uterine fibroids " in the subject bar so I don't erase an unrecognized message. greenvu@... Good luck, :)Sonja * trying to conceive Quote Link to comment Share on other sites More sharing options...
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