Re: Hysterectomy? Type 1 diabetic with problems making decision

[Guest guest]

Ablation? This works very well for women WITHOUT fibroids. Don't

understand why your Doctor would give you this obtion!!!! Did

he mean UFE (embolization)??? UFE works excellent for heavy

bleeding and fibroids. They shrink in time. It has also been known

that women can get pregnant after the embolization very succesfully

but lable it " unkown " becuase of lack of research and follow up with

these patiets.

What about myo? Have you looked into this? This may be your

route since you still seem to maybe want kids someday.

I would do your own research here and not be lead by the doctors

saying you need a hysterectomy. They all say that without much

other obtions. How big are your fibroids? this is important and

can determine what procedure would work for you. If they are big,

then probably myo or UFE. The only thing with myo is that they have

a pretty good chance of growing back! With UFE, they won't grow

back and the risks are very minimal.

Jen

> I may finally have to consider a hysterectomy. I am a type 1

diabetic

> for 7 years and now 40. I really wanted to have kids but have had

> problems with ectopics, fibroids, polyps, cysts, very heavy

bleeding

> (first 3 days large pad every hour) and shooting pain down leg.

> However my periods are regular every 28 days. My doctor and I went

> through several options but think that it is best to go route of

> hysterectomy versus ablation so I do not have to deal with another

> operation down the line if fibroids grow more.

[Guest guest]

, I don't know the answer to your question, but you might want

to ask it at another list group that NUFF has a close relationship

with, called Sans Uteri. This is a list for women who have had

hysterectomies and are trying to understand side- or after-effects

they have developed. I would think that someone there might be able

to help you. You can find their website at

http://www.findings.net/sans-uteri.html. There is a $12 yearly fee

to join, however if you just want to ask a single question and have

members of Sans Uteri reply directly to you, you can contact the

group owner, Beth Tiner, at findings@... and ask her if she

will send your question to the group. Mention that one of the

moderators at the uterinefibroids list suggested you contact her, and

good luck.

Leonie

Co-moderator, uterinefibroids list

> I may finally have to consider a hysterectomy. I am a type 1

diabetic

> for 7 years and now 40. I really wanted to have kids but have had

> problems with ectopics, fibroids, polyps, cysts, very heavy

bleeding

> (first 3 days large pad every hour) and shooting pain down leg.

[Guest guest]

Thanks Jen:

> What about myo? Have you looked into this?

Jen, yes I did omit to mention that I have already had a myomectomy

to remove 9 large sized fibroids about 8 years ago and at least 2 of

them have grown back and size of grapefruits and one is causing

bladder and potential siatica problems (I am going in for a MRI May

21). I have also had emergency tubal ligation, few miscarriages, and

a recent D&C and lap last year to remove polyps and clean out my

cavity that is full of scar tissue.

> Ablation? This works very well for women WITHOUT fibroids. Don't

> understand why your Doctor would give you this obtion!!!! Did

> he mean UFE (embolization)???

My gyno (female) said that I would have a 50% chance with the

ablation that either my fibroids with the size would be a problem in

surgery or will still have the ability to grow larger in my 10 years

prior to metopause.

Prior to our recent meeting I was all set for the option of ablation

when she mentioned another operation.