Re: Path report from upcoming hyst

[Guest guest]

Hi all,

I'm new to this list and fibroid tumors. What is UAE? I'm 47 years old, not

having anymore children but not ready to have a hysterectomy. I'm in the

process of changing doctors because the one I have now is sadly lacking in

" bedside manner " and is too anxious to do the hysterectomy. She describes my

fibroids as small to medium, but she calls my uterus " diseased " .

Thanks for all the info that I've already learned from all of you.

Sherry

[Guest guest]

Joanne, please tell me more about your UFE 4 years ago. What

happened? Were there any complications? Did the fibroids find a

new blood supply? What were/are your symtoms? Did you consider

getting another UFE? How old are you? Sorry for all the questions.

I had mine the end of Jan. I'm doing great but hoping it will last

me to meno. (a good 10 years away!!)

Jen

-- In uterinefibroids , " jowortman "

wrote:

> I am scheduled for a hysterectomy tomorrow. I intend to get a copy

> of my path report to send to Dr. Javit, who did my UAE. I'll post

> findings here as well. I think many of us would be interested to

> know if they can tell anything about the 4 year old UAE, such as,

> did those fibroids regrow? What does the tissue from the old

> fibroids look like now? etc.

> I feel like we are still in uncharted waters with the newer

> treatments, and it's important to share this info with all who've

> had the procedure or are contemplating it. I still am happy about

> my decision to have the UAE four years ago, and thank the members of

> this list for providing the info that helped me make that decision.

[Guest guest]

I was about 44 when I had my UFE. It was a breeze. I should have

gone home the same day I was in so little pain. I went right to

motrin, no narcotics needed ever.

The fibroids disappeared from ultrasound within 18 months and my

uterus reverted to normal size.

About 2 years later I had heavy bleeding, but my uterus was not

enlarged. So I had hysteroscopy which found no submucosals and had

endo ablation. That worked for a while.

The fibroids I have now are definitely new. They are smaller, more

numerous, and in different locations from my original ones.

I am not considering a repeat UAE because I developed an allergy to

angio dye. I want to save further use of the dye for cardiovascular

reasons as I get older. I have strong family history of that.

I am tired of dealing with menorrhagia every few years. I have lost

so many years to feeling tired and dizzy and headachy. Enough. I

fully understand the risks of hysterectomy, but I am at a point

where I want a full cure for this problem. My mother has lived

happily, been sexually satisfied and had no complications from her

hysterectomy nearly 40 years ago. Never had to take hormones. I have

positive expectations from this surgery.

I am not disappointed that the UAE didn't work, or the ablation.

They were easy things to try. There is NO endometrium left,

according to my latest D&C results, yet I bleed for four weeks in a

row. I suspect my ultimate diagnosis will find some adeno in

addition to the fibroids. It's just odd that I have this much blood,

and no endometrium in there.

> > I am scheduled for a hysterectomy tomorrow. I intend to get a

copy

> > of my path report to send to Dr. Javit, who did my UAE. I'll

post

> > findings here as well. I think many of us would be interested to

> > know if they can tell anything about the 4 year old UAE, such

as,

> > did those fibroids regrow? What does the tissue from the old

> > fibroids look like now? etc.

> > I feel like we are still in uncharted waters with the newer

> > treatments, and it's important to share this info with all

who've

> > had the procedure or are contemplating it. I still am happy

about

> > my decision to have the UAE four years ago, and thank the

members of

> > this list for providing the info that helped me make that

decision.

[Guest guest]

I was about 44 when I had my UFE. It was a breeze. I should have

gone home the same day I was in so little pain. I went right to

motrin, no narcotics needed ever.

The fibroids disappeared from ultrasound within 18 months and my

uterus reverted to normal size.

About 2 years later I had heavy bleeding, but my uterus was not

enlarged. So I had hysteroscopy which found no submucosals and had

endo ablation. That worked for a while.

The fibroids I have now are definitely new. They are smaller, more

numerous, and in different locations from my original ones.

I am not considering a repeat UAE because I developed an allergy to

angio dye. I want to save further use of the dye for cardiovascular

reasons as I get older. I have strong family history of that.

I am tired of dealing with menorrhagia every few years. I have lost

so many years to feeling tired and dizzy and headachy. Enough. I

fully understand the risks of hysterectomy, but I am at a point

where I want a full cure for this problem. My mother has lived

happily, been sexually satisfied and had no complications from her

hysterectomy nearly 40 years ago. Never had to take hormones. I have

positive expectations from this surgery.

I am not disappointed that the UAE didn't work, or the ablation.

They were easy things to try. There is NO endometrium left,

according to my latest D&C results, yet I bleed for four weeks in a

row. I suspect my ultimate diagnosis will find some adeno in

addition to the fibroids. It's just odd that I have this much blood,

and no endometrium in there.

> > I am scheduled for a hysterectomy tomorrow. I intend to get a

copy

> > of my path report to send to Dr. Javit, who did my UAE. I'll

post

> > findings here as well. I think many of us would be interested to

> > know if they can tell anything about the 4 year old UAE, such

as,

> > did those fibroids regrow? What does the tissue from the old

> > fibroids look like now? etc.

> > I feel like we are still in uncharted waters with the newer

> > treatments, and it's important to share this info with all

who've

> > had the procedure or are contemplating it. I still am happy

about

> > my decision to have the UAE four years ago, and thank the

members of

> > this list for providing the info that helped me make that

decision.

[Guest guest]

I was about 44 when I had my UFE. It was a breeze. I should have

gone home the same day I was in so little pain. I went right to

motrin, no narcotics needed ever.

The fibroids disappeared from ultrasound within 18 months and my

uterus reverted to normal size.

About 2 years later I had heavy bleeding, but my uterus was not

enlarged. So I had hysteroscopy which found no submucosals and had

endo ablation. That worked for a while.

The fibroids I have now are definitely new. They are smaller, more

numerous, and in different locations from my original ones.

I am not considering a repeat UAE because I developed an allergy to

angio dye. I want to save further use of the dye for cardiovascular

reasons as I get older. I have strong family history of that.

I am tired of dealing with menorrhagia every few years. I have lost

so many years to feeling tired and dizzy and headachy. Enough. I

fully understand the risks of hysterectomy, but I am at a point

where I want a full cure for this problem. My mother has lived

happily, been sexually satisfied and had no complications from her

hysterectomy nearly 40 years ago. Never had to take hormones. I have

positive expectations from this surgery.

I am not disappointed that the UAE didn't work, or the ablation.

They were easy things to try. There is NO endometrium left,

according to my latest D&C results, yet I bleed for four weeks in a

row. I suspect my ultimate diagnosis will find some adeno in

addition to the fibroids. It's just odd that I have this much blood,

and no endometrium in there.

> > I am scheduled for a hysterectomy tomorrow. I intend to get a

copy

> > of my path report to send to Dr. Javit, who did my UAE. I'll

post

> > findings here as well. I think many of us would be interested to

> > know if they can tell anything about the 4 year old UAE, such

as,

> > did those fibroids regrow? What does the tissue from the old

> > fibroids look like now? etc.

> > I feel like we are still in uncharted waters with the newer

> > treatments, and it's important to share this info with all

who've

> > had the procedure or are contemplating it. I still am happy

about

> > my decision to have the UAE four years ago, and thank the

members of

> > this list for providing the info that helped me make that

decision.

[Guest guest]

One more note, see my last response to questions about my UAE.

My gyn refused to consider a hyst for me when I was 44, yet now

believes it's justified. He does not seem knife-happy in the least,

so I feel comfortable that my decision is supported by trusted

medical opinion.

> Hi all,

>

> I'm new to this list and fibroid tumors. What is UAE? I'm 47

years old, not

> having anymore children but not ready to have a hysterectomy. I'm

in the

> process of changing doctors because the one I have now is sadly

lacking in

> " bedside manner " and is too anxious to do the hysterectomy. She

describes my

> fibroids as small to medium, but she calls my uterus " diseased " .

>

> Thanks for all the info that I've already learned from all of you.

>

> Sherry

>

>

>

[Guest guest]

Good luck, Joanne!

I am scheduled for mine on July 7th.

Annette

jowortman jowortman@...> wrote:

I am scheduled for a hysterectomy tomorrow.

[Guest guest]

Hi Joanne I am considering a UAE as one of my options.

I'm 31 and childless. Question how come you have to

get a hysterectomy? why not a myomectomy? I have been

doing a little research and it appears that if the UAE

doesn't work hysterectomy (or death) appear to be the

only two options. How old are you by the way and did

you get an answer from your Dr. as to why your

fibroids grew back?

--- jowortman jowortman@...> wrote:

> I am scheduled for a hysterectomy tomorrow. I intend

> to get a copy of my path report to send to Dr. Javit, who did my

> UAE. I'll post findings here as well. I think many of us would be

> interested to know if they can tell anything about the 4 year old

> UAE, such as, did those fibroids regrow? What does the tissue from

> the old fibroids look like now? etc.

[Guest guest]

Hi Joanne I am considering a UAE as one of my options.

I'm 31 and childless. Question how come you have to

get a hysterectomy? why not a myomectomy? I have been

doing a little research and it appears that if the UAE

doesn't work hysterectomy (or death) appear to be the

only two options. How old are you by the way and did

you get an answer from your Dr. as to why your

fibroids grew back?

--- jowortman jowortman@...> wrote:

> I am scheduled for a hysterectomy tomorrow. I intend

> to get a copy of my path report to send to Dr. Javit, who did my

> UAE. I'll post findings here as well. I think many of us would be

> interested to know if they can tell anything about the 4 year old

> UAE, such as, did those fibroids regrow? What does the tissue from

> the old fibroids look like now? etc.

[Guest guest]

I chose to have a hysterectomy because I don't want to have more

children or more surgery.

I think that since my body keeps growing new fibroids, a myo is not

going to give me the permanent cure I seek.

The surgery was friday, I kept my ovaries and cervix, and I was home

within 48 hours with remarkably little pain.

My fibroids did not grow back, I grew new fibroids.

So far, (and I know my assessment could change as time goes on) this

surgery has been far easier than everyone led me to believe it would

be. I really felt well enough to go home within abou 30 hours, but I

didn't want to track the doc down to release me that early. And I

had the abdominal version, not the vaginal version. I was off

morphine in less than 12 hours, and just taking normal doses of

motrin since I got home.

> > I am scheduled for a hysterectomy tomorrow. I intend

> > to get a copy of my path report to send to Dr. Javit, who did my

> > UAE. I'll post findings here as well. I think many of us would

be

> > interested to know if they can tell anything about the 4 year

old

> > UAE, such as, did those fibroids regrow? What does the tissue

from

> > the old fibroids look like now? etc.

[Guest guest]

Welcome home! I am glad to hear you are feeling so well. Take it easy and get

the rest you need and deserve! Amy