I want to save my uterus any feed back or info will be great.

March 22, 2004

I am 30 years old and I am scheduled for a myo on April 29th. I have

no children but may want them one day. I have 3 fibroids one is 17cm

by 11cm. My uterus is very distorted, due to this my gyn is afraid

he may not be able to save my uterus. He said my uterus is so large

that it may not be repairable once fibroids are removed. He stated

he will not remove all the fibroids. I am so afraid to have the myo.

My gyn wants to give me a Lupron injection to see if my fibroids will

shrink. I am having a hard time accepting my rights of bearing

children, more than likely, will be taken away.

Any info will help, I live in Pennsylvania...(links, personal

experience etc., doctors)

Thanks.

March 22, 2004

Cancel your myo and find a new GYN. I went to three GYNS who said the

same thing about my uterus. I found one in Boston who said all of

that was a myth. I had a myo two weeks ago - 21 fibroids were

removed. Two were the size of a grapefruit. I was told i should have

no problem having children. I am 36 so any problems will be do to my

age not my uterus.

Where in PA? There is a Dr. Glassner in Philly who is recommended. I

live in NE PA and ended up going to Boston for my surgery. The extra

expense was worth it! The reason I did not go to Dr. Glassner is he

did not take Blue Cross.

Another reason to cancel - my gyn told me a story of taking out

fibroid of woman whose uterus was the size of 9 month pregnancy

(YIKES!) - she was able to get pregant.

Debbie

> I am 30 years old and I am scheduled for a myo on April 29th. I

have

> no children but may want them one day. I have 3 fibroids one is

17cm

> by 11cm. My uterus is very distorted, due to this my gyn is afraid

> he may not be able to save my uterus. He said my uterus is so

large

> that it may not be repairable once fibroids are removed. He stated

> he will not remove all the fibroids. I am so afraid to have the

myo.

> My gyn wants to give me a Lupron injection to see if my fibroids

will

> shrink. I am having a hard time accepting my rights of bearing

> children, more than likely, will be taken away.

>

> Any info will help, I live in Pennsylvania...(links, personal

> experience etc., doctors)

> Thanks.

March 22, 2004

To tdcraig 610,

In response to your request for a doctor recommendation in Pennsylvania, I

would highly recommend Dr. Krauss. He operated on me years ago for a

cyst and now I travel an hour to see him for the fibroid problems. He has 2

offices in Phila, his # is . He is extremely knowledgeable and

cares about his patient's emotional well-being. Everything Dr. Krauss has

advised

me about fibroid treatment has turned about to be too true when I did my

research. Good luck and try to believe that it will all work out.

Alisa

March 22, 2004

It sounds like your doc is telling you he isn't confident he can do

this surgery. He's holding up a red flag. Say NO to Lupron. It's a

nasty drug. You need a reproductive endocronologist. You have a

better chance of keeping your fertility that way. Check out the

physician database. What kind of insurance do you have? Definitely

look at Glassner (Phila.) http://www.allaboutfibroids.com/

Seek second, third, fourth opinions, etc. whatever it takes. Good

luck.

Gerri

>My gyn wants to give me a Lupron injection to see if my fibroids

>will shrink

> Any info will help, I live in Pennsylvania...(links, personal

> experience etc., doctors)

March 23, 2004

Some possible ways a uterus might be shrunk include:

* Pre-op shrinking drugs

* UAE (UFE)

* The surgeon comining different techniques, if appropriate.

* Cutting things up into smaller pieces while still inside you

There could be other ways of shrinking and cutting down, but I

don't know if all fibroid attacking methods like myolisis are

appropriate for your aims and case??

Weight loss can help with naturally over weight wmen, but keep

your strength up, bear in mind the fibroids can make someone

look overweight, get nutritional advice from the doctor and don't

go on any unbalanced mad trendy dumb theory diets...(My eyes

are blue and I like petunias so I can't eat fruit). (Just cut down in

a balanced sensible way).

Well fibroids this large are likely to be problemmatic for any

surgeon. Still, if I were in your position I would have a chat with a

gyn surgeon who has a good reputation who would recommend

shrinking drugs or UAE who could be trusted to recommend

UAE and shrinking drugs when they were appropriate for a

patient and not when they weren't. In your case something like

that may well be appropriate. You may well hve to set the

inconvenience of unpleasant side effects against the benefits of

shrinking.

I guess with UAE, there may be some other consideration apart

from establishing what the risks are to fertility, some books and

doctors raise. Some treatments may also change the

'consistency'?? I'd try and get in contact with someone to chat. If

they are in another country they won't have a vested interest, only

a vested bias. heck out the Yahoo embo forum and Nigel

Hacking's posts on Smartgroups who performs UAE, but

recently left the group

The Melbourne Fibroid clinic has a web site. Their book

mentioned combining techniques to tackle fibroids. Have a look

at the sites of some of these doctors mentioned on the forums.

I think any surgeon would want to warn you of the dangers of this

turning into a hysterectomy. They need to prepare you for this

possibility which is more likely in your case than some others.

You need to establish wether your surgeon is able to do this,

compared with other surgeons. Bear in mind, he who markets

himself well and blows his/her own trumpet isn't always the best

in their field. Word of mouth is useful and talking to your surgeon

directly about their reservations or confidence in it going well.

See if anyone in the archives had a good operation experience

with very large fibroids .

PubMed may have some article on this. Just search the keyword

'PubMed'.

If you feel the need for a second opinion do get one, as you may

kick yourself if you don't and wind up with a hysterectomy you

did't want. Do do all the research you can, but remember your

operation date will come quickly and it's helpful if you don't

cancel on the day of the operation itself!

Aztek

__________________________________________________

He stated

> he will not remove all the fibroids. I am so afraid to have the

myo.

> My gyn wants to give me a Lupron injection to see if my fibroids

will

> shrink. I am having a hard time accepting my rights of bearing

> children, more than likely, will be taken away.

>

> Any info will help, I live in Pennsylvania...(links, personal

> experience etc., doctors)

> Thanks.

March 23, 2004

Aztec wrote:

Weight loss can help with naturally over weight wmen,

******

Aztec, are you saying that losing weight will cause the fibroids to

shrink? I'm not sure I understand you. Fibroids are made of muscle

tissue -- losing weight (fat) will not have an effect on them. It

may make the surgery easier for the surgeon...please enlighten.

Leonie

March 26, 2004

Hi,

Go to google and put in Female Alternative Surgery and the Manhattan Fibroid

Associates

tdcraig610 terdani91@...> wrote: