Re: Questions about Esophagus and Breathing Problems

[Guest guest]

,

Sorry about eating and breathing problems. I haven't experienceed yet.

Best wishes

Alper

dianamj_canuck dianamj_canuck@...> yazdı: Hi friends,

Shellie...your flag went in the mail tonight....should be there in 5-

7 days.Great talking to you on the phone tonight!!

I wanted to ask for a roll-call on how many of you have difficulty

with the following:

Spastic esophagus causing pain after eating.Spasms in muscles

surrounding stomach...especially after eating. Spasms in diaphgragm

and cramping of chest wall muscles resulting in difficulty breathing

and reduced lung capacity.

I am asking these questions because these are the areas I am

stuggling with the most right now. I talked to a respirologist and

dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu bag

for the lung thing....but i am almost on the verge of giving up

eating...as it is too painful. The alternative is to eat tiny

amounts of soft foods several times a day.

Anyone else have these problems.....any suggestions??

Take good care friends! Hug!

Di....PLS....Canada

[Guest guest]

did you read the article on Pyshconeuroimmunology if not, i

recommend it highly, EVA found this and i beleive it really applies

alot to us . This is why i also recommend mind calming excersizes

(THI CHI etc etc )we tend to get ourselves rather ANXIOUS being that

we have a problem that no one can help us with other than this Group

I have noticed when im Anxious i have more pronounced symptoms than

when im quiet and relaxed . So try this and see if it does'nt help

I know i do have some respiratory problems and diaphram issues but

being that we get very little proffessional help we need to try what

works to survive this disease .So give it a try and see if you get

any resolution from it . GEO

>

> ,

> Sorry about eating and breathing problems. I haven't experienceed

yet.

> Best wishes

> Alper

>

> dianamj_canuck yazdı: Hi friends,

> Shellie...your flag went in the mail tonight....should be there

in 5-

> 7 days.Great talking to you on the phone tonight!!

>

> I wanted to ask for a roll-call on how many of you have

difficulty

> with the following:

>

> Spastic esophagus causing pain after eating.Spasms in muscles

> surrounding stomach...especially after eating. Spasms in

diaphgragm

> and cramping of chest wall muscles resulting in difficulty

breathing

> and reduced lung capacity.

>

> I am asking these questions because these are the areas I am

> stuggling with the most right now. I talked to a respirologist

and

> dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu

bag

> for the lung thing....but i am almost on the verge of giving up

> eating...as it is too painful. The alternative is to eat tiny

> amounts of soft foods several times a day.

>

> Anyone else have these problems.....any suggestions??

>

> Take good care friends! Hug!

>

> Di....PLS....Canada

>

>

>

>

>

>

>

>

[Guest guest]

Hey Di,

Geo has great point about how breathing problems and anxiety go hand in hand

and fuel each other....many of the patients i have seen in later stage pulmonary

diseases come in for their panic attacks and anxiety issues---am sure you have

encountered that professionally. i know you know all of that and know of the

breathing exercises and imagry stuff to calm down nervous system----other than

the diaphramatic breathing, I require a cd or taped version of the guided

exercises to be able to do them. just a thought evoked from Geo's thought!

Tawny

Geo conniegeo1@...> wrote:

did you read the article on Pyshconeuroimmunology if not, i

recommend it highly, EVA found this and i beleive it really applies

alot to us . This is why i also recommend mind calming excersizes

(THI CHI etc etc )we tend to get ourselves rather ANXIOUS being that

we have a problem that no one can help us with other than this Group

I have noticed when im Anxious i have more pronounced symptoms than

when im quiet and relaxed . So try this and see if it does'nt help

I know i do have some respiratory problems and diaphram issues but

being that we get very little proffessional help we need to try what

works to survive this disease .So give it a try and see if you get

any resolution from it . GEO

>

> ,

> Sorry about eating and breathing problems. I haven't experienceed

yet.

> Best wishes

> Alper

>

> dianamj_canuck yazdı: Hi friends,

> Shellie...your flag went in the mail tonight....should be there

in 5-

> 7 days.Great talking to you on the phone tonight!!

>

> I wanted to ask for a roll-call on how many of you have

difficulty

> with the following:

>

> Spastic esophagus causing pain after eating.Spasms in muscles

> surrounding stomach...especially after eating. Spasms in

diaphgragm

> and cramping of chest wall muscles resulting in difficulty

breathing

> and reduced lung capacity.

>

> I am asking these questions because these are the areas I am

> stuggling with the most right now. I talked to a respirologist

and

> dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu

bag

> for the lung thing....but i am almost on the verge of giving up

> eating...as it is too painful. The alternative is to eat tiny

> amounts of soft foods several times a day.

>

> Anyone else have these problems.....any suggestions??

>

> Take good care friends! Hug!

>

> Di....PLS....Canada

>

>

>

>

>

>

>

>

[Guest guest]

I haven't been dx wiht PLS, but at this point HSP. But even this my neuro

wants it confirmed by somene wiht more experience in HSP and/or PLS. So

waiting for appt to Shands.

Anyway, for several years I have episodes of major pain in my chest area

when I get something tough (like a piece of steak), it feels like it gets

stuck going on. I also have episodes of after eating I gag, choke like I

have a knot in my throat although i have no food, and have finished eating.

Other thing recently having episodes of like all sudden I gasp for air. I

can be sitting up, laying down, involved in like watching TV, or reading

etc... its like I am so focused on what I am doing i forget to breath. That

probably isn't what is happening just only way I can explain it. Often I

will have similiar episodes where then I start coughing.

For couple years I have episodes of air hunger. Again I can be sitting,

laying down (which seems more often) or esp have like climbing stairs. It

feels like I am not getting enough air, so have to take real deep breaths

several times.

Eating thing my issue has been more no matter what I eat or drink, the food

is up and out before I know it. It's not like reflux. My rheum (who moved

out of state in Nov) said this sounded like esphogeal motility sp? or

something like that. She explained that i am having a spasm in the

esphosogus that instead of pushing to food down it's pushing it up.

Swallowing can be an issue at times.

All of my issues though are episodic. Some days no problem at all, other

days I just don't want to eat or drink. Get nervous when going out to eat

with friends now days as never know if going to have a problem or not. I am

getting i guess indegestion and reflux though now too depending on what i

eat or how much. this is different than the food coming up/out without

warning.

I have informed doctors of episodes of air hunger, had a full cardiac workup

which showed no heart or circulation problems. Rheum and primary, oh new

neuro informed of this eating with food coming up/out. I think i have

informed doctors of the above except this newer thing of all sudden like

gasp for air, like forget to breath.

I am at a point though its like why inform doctors of anything anymore.

Doesn't seem to matter, they may not even put it in their notes that i

informed them. Maybe if i get into Shands someone will listen too all my

symptoms that are consistent, episodic, etc... and put pieces together.

Whether that is one thing going on or several things in way of diagnosis.

Sorry I am not of help to you but wish you the best.

marfla

orlando fl

Be Blessed

Questions about Esophagus and Breathing Problems

Hi friends,

Shellie...your flag went in the mail tonight....should be there in 5-

7 days.Great talking to you on the phone tonight!!

I wanted to ask for a roll-call on how many of you have difficulty

with the following:

Spastic esophagus causing pain after eating.Spasms in muscles

surrounding stomach...especially after eating. Spasms in diaphgragm

and cramping of chest wall muscles resulting in difficulty breathing

and reduced lung capacity.

I am asking these questions because these are the areas I am

stuggling with the most right now. I talked to a respirologist and

dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu bag

for the lung thing....but i am almost on the verge of giving up

eating...as it is too painful. The alternative is to eat tiny

amounts of soft foods several times a day.

Anyone else have these problems.....any suggestions??

Take good care friends! Hug!

Di....PLS....Canada

[Guest guest]

Not I (thank God), Susieq

Questions about Esophagus and Breathing Problems

Hi friends,

Shellie...your flag went in the mail tonight....should be there in 5-

7 days.Great talking to you on the phone tonight!!

I wanted to ask for a roll-call on how many of you have difficulty

with the following:

Spastic esophagus causing pain after eating.Spasms in muscles

surrounding stomach...especially after eating. Spasms in diaphgragm

and cramping of chest wall muscles resulting in difficulty breathing

and reduced lung capacity.

I am asking these questions because these are the areas I am

stuggling with the most right now. I talked to a respirologist and

dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu bag

for the lung thing....but i am almost on the verge of giving up

eating...as it is too painful. The alternative is to eat tiny

amounts of soft foods several times a day.

Anyone else have these problems.....any suggestions??

Take good care friends! Hug!

Di....PLS....Canada

[Guest guest]

Thanks Geo. i did read Evas stuff. I do meditation ...it SHOULD be

daily....but at least 3-4 times a week. i do find it really helps.

yes! There is absolutely no doubt in my mind that stress increases

symptoms....you're right. I think I should get back to my aquasize!

It is also true that it is scarier when you have a disease no one

has heard of!

Take care Geo!

Di.....Canada

>

> did you read the article on Pyshconeuroimmunology if not, i

> recommend it highly, EVA found this and i beleive it really

applies

> alot to us . This is why i also recommend mind calming excersizes

> (THI CHI etc etc )we tend to get ourselves rather ANXIOUS being

that

> we have a problem that no one can help us with other than this

Group

> I have noticed when im Anxious i have more pronounced symptoms

than

> when im quiet and relaxed . So try this and see if it does'nt help

> I know i do have some respiratory problems and diaphram issues but

> being that we get very little proffessional help we need to try

what

> works to survive this disease .So give it a try and see if you get

> any resolution from it . GEO

> >

> > ,

> > Sorry about eating and breathing problems. I haven't

experienceed

> yet.

> > Best wishes

> > Alper

> >

> > dianamj_canuck yazdı: Hi friends,

> > Shellie...your flag went in the mail tonight....should be there

> in 5-

> > 7 days.Great talking to you on the phone tonight!!

> >

> > I wanted to ask for a roll-call on how many of you have

> difficulty

> > with the following:

> >

> > Spastic esophagus causing pain after eating.Spasms in muscles

> > surrounding stomach...especially after eating. Spasms in

> diaphgragm

> > and cramping of chest wall muscles resulting in difficulty

> breathing

> > and reduced lung capacity.

> >

> > I am asking these questions because these are the areas I am

> > stuggling with the most right now. I talked to a respirologist

> and

> > dietician/speech therapist at the ALS/PLS Clinic. I use the

Ambu

> bag

> > for the lung thing....but i am almost on the verge of giving up

> > eating...as it is too painful. The alternative is to eat tiny

> > amounts of soft foods several times a day.

> >

> > Anyone else have these problems.....any suggestions??

> >

> > Take good care friends! Hug!

> >

> > Di....PLS....Canada

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Yes Tawny....the guided imagery meditations work best. I used to use

one. Seems like I am saying 'used to' a lot! Hmmmm. Guess i better

get back at it. I still meditate....but the guided imagery taped

always worked better.

Thanks for your suggestions Tawny.

Hugs

Di

> did you read the article on Pyshconeuroimmunology if not,

i

> recommend it highly, EVA found this and i beleive it really

applies

> alot to us . This is why i also recommend mind calming excersizes

> (THI CHI etc etc )we tend to get ourselves rather ANXIOUS being

that

> we have a problem that no one can help us with other than this

Group

> I have noticed when im Anxious i have more pronounced symptoms

than

> when im quiet and relaxed . So try this and see if it does'nt help

> I know i do have some respiratory problems and diaphram issues but

> being that we get very little proffessional help we need to try

what

> works to survive this disease .So give it a try and see if you get

> any resolution from it . GEO

> >

> > ,

> > Sorry about eating and breathing problems. I haven't

experienceed

> yet.

> > Best wishes

> > Alper

> >

> > dianamj_canuck yazdı: Hi friends,

> > Shellie...your flag went in the mail tonight....should be there

> in 5-

> > 7 days.Great talking to you on the phone tonight!!

> >

> > I wanted to ask for a roll-call on how many of you have

> difficulty

> > with the following:

> >

> > Spastic esophagus causing pain after eating.Spasms in muscles

> > surrounding stomach...especially after eating. Spasms in

> diaphgragm

> > and cramping of chest wall muscles resulting in difficulty

> breathing

> > and reduced lung capacity.

> >

> > I am asking these questions because these are the areas I am

> > stuggling with the most right now. I talked to a respirologist

> and

> > dietician/speech therapist at the ALS/PLS Clinic. I use the

Ambu

> bag

> > for the lung thing....but i am almost on the verge of giving up

> > eating...as it is too painful. The alternative is to eat tiny

> > amounts of soft foods several times a day.

> >

> > Anyone else have these problems.....any suggestions??

> >

> > Take good care friends! Hug!

> >

> > Di....PLS....Canada

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Marfla...thank you...you have described my symptoms pretty close.

Yes...it is frustrating, as doctors can't do much. Except more

drugs...which I don't need!

I guess, in the end, this group is more helpful in a practical way

than any doctors!

Sending you healing thoughts!

Hugs! Di...PLS....Canada

>

> I haven't been dx wiht PLS, but at this point HSP. But even this

my neuro

> wants it confirmed by somene wiht more experience in HSP and/or

PLS. So

> waiting for appt to Shands.

>

> Anyway, for several years I have episodes of major pain in my

chest area

> when I get something tough (like a piece of steak), it feels like

it gets

> stuck going on. I also have episodes of after eating I gag, choke

like I

> have a knot in my throat although i have no food, and have

finished eating.

>

> Other thing recently having episodes of like all sudden I gasp for

air. I

> can be sitting up, laying down, involved in like watching TV, or

reading

> etc... its like I am so focused on what I am doing i forget to

breath. That

> probably isn't what is happening just only way I can explain it.

Often I

> will have similiar episodes where then I start coughing.

>

> For couple years I have episodes of air hunger. Again I can be

sitting,

> laying down (which seems more often) or esp have like climbing

stairs. It

> feels like I am not getting enough air, so have to take real deep

breaths

> several times.

>

> Eating thing my issue has been more no matter what I eat or drink,

the food

> is up and out before I know it. It's not like reflux. My rheum

(who moved

> out of state in Nov) said this sounded like esphogeal motility sp?

or

> something like that. She explained that i am having a spasm in the

> esphosogus that instead of pushing to food down it's pushing it

up.

> Swallowing can be an issue at times.

>

> All of my issues though are episodic. Some days no problem at all,

other

> days I just don't want to eat or drink. Get nervous when going

out to eat

> with friends now days as never know if going to have a problem or

not. I am

> getting i guess indegestion and reflux though now too depending on

what i

> eat or how much. this is different than the food coming up/out

without

> warning.

>

> I have informed doctors of episodes of air hunger, had a full

cardiac workup

> which showed no heart or circulation problems. Rheum and primary,

oh new

> neuro informed of this eating with food coming up/out. I think i

have

> informed doctors of the above except this newer thing of all

sudden like

> gasp for air, like forget to breath.

>

> I am at a point though its like why inform doctors of anything

anymore.

> Doesn't seem to matter, they may not even put it in their notes

that i

> informed them. Maybe if i get into Shands someone will listen too

all my

> symptoms that are consistent, episodic, etc... and put pieces

together.

> Whether that is one thing going on or several things in way of

diagnosis.

>

> Sorry I am not of help to you but wish you the best.

>

> marfla

> orlando fl

> Be Blessed

>

> Questions about Esophagus and Breathing

Problems

>

>

> Hi friends,

> Shellie...your flag went in the mail tonight....should be there in

5-

> 7 days.Great talking to you on the phone tonight!!

>

> I wanted to ask for a roll-call on how many of you have difficulty

> with the following:

>

> Spastic esophagus causing pain after eating.Spasms in muscles

> surrounding stomach...especially after eating. Spasms in diaphgragm

> and cramping of chest wall muscles resulting in difficulty

breathing

> and reduced lung capacity.

>

> I am asking these questions because these are the areas I am

> stuggling with the most right now. I talked to a respirologist and

> dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu

bag

> for the lung thing....but i am almost on the verge of giving up

> eating...as it is too painful. The alternative is to eat tiny

> amounts of soft foods several times a day.

>

> Anyone else have these problems.....any suggestions??

>

> Take good care friends! Hug!

>

> Di....PLS....Canada

>

>

>

>

>

>

>

>

>

>

[Guest guest]

THIS IS WHY WE HAVE THIS GROUP ,WHEN YOUR GETTING NOWHERE WITH YOUR

DOC. YOU CAN COME HERE AND FEEL YOUR NOT ALONE . GEO

>

> Thanks Geo. i did read Evas stuff. I do meditation ...it SHOULD be

> daily....but at least 3-4 times a week. i do find it really helps.

> yes! There is absolutely no doubt in my mind that stress increases

> symptoms....you're right. I think I should get back to my aquasize!

>

> It is also true that it is scarier when you have a disease no one

> has heard of!

>

> Take care Geo!

>

> Di.....Canada

>

>

> >

> > did you read the article on Pyshconeuroimmunology if not,

i

> > recommend it highly, EVA found this and i beleive it really

> applies

> > alot to us . This is why i also recommend mind calming

excersizes

> > (THI CHI etc etc )we tend to get ourselves rather ANXIOUS being

> that

> > we have a problem that no one can help us with other than this

> Group

> > I have noticed when im Anxious i have more pronounced symptoms

> than

> > when im quiet and relaxed . So try this and see if it does'nt

help

> > I know i do have some respiratory problems and diaphram issues

but

> > being that we get very little proffessional help we need to try

> what

> > works to survive this disease .So give it a try and see if you

get

> > any resolution from it . GEO

> > >

> > > ,

> > > Sorry about eating and breathing problems. I haven't

> experienceed

> > yet.

> > > Best wishes

> > > Alper

> > >

> > > dianamj_canuck yazdı: Hi friends,

> > > Shellie...your flag went in the mail tonight....should be

there

> > in 5-

> > > 7 days.Great talking to you on the phone tonight!!

> > >

> > > I wanted to ask for a roll-call on how many of you have

> > difficulty

> > > with the following:

> > >

> > > Spastic esophagus causing pain after eating.Spasms in muscles

> > > surrounding stomach...especially after eating. Spasms in

> > diaphgragm

> > > and cramping of chest wall muscles resulting in difficulty

> > breathing

> > > and reduced lung capacity.

> > >

> > > I am asking these questions because these are the areas I am

> > > stuggling with the most right now. I talked to a

respirologist

> > and

> > > dietician/speech therapist at the ALS/PLS Clinic. I use the

> Ambu

> > bag

> > > for the lung thing....but i am almost on the verge of giving

up

> > > eating...as it is too painful. The alternative is to eat tiny

> > > amounts of soft foods several times a day.

> > >

> > > Anyone else have these problems.....any suggestions??

> > >

> > > Take good care friends! Hug!

> > >

> > > Di....PLS....Canada

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

please take care of YOU Di.

Be Blessed

Questions about Esophagus and Breathing

> Problems

>>

>>

>> Hi friends,

>> Shellie...your flag went in the mail tonight....should be there in

> 5-

>> 7 days.Great talking to you on the phone tonight!!

>>

>> I wanted to ask for a roll-call on how many of you have difficulty

>> with the following:

>>

>> Spastic esophagus causing pain after eating.Spasms in muscles

>> surrounding stomach...especially after eating. Spasms in diaphgragm

>> and cramping of chest wall muscles resulting in difficulty

> breathing

>> and reduced lung capacity.

>>

>> I am asking these questions because these are the areas I am

>> stuggling with the most right now. I talked to a respirologist and

>> dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu

> bag

>> for the lung thing....but i am almost on the verge of giving up

>> eating...as it is too painful. The alternative is to eat tiny

>> amounts of soft foods several times a day.

>>

>> Anyone else have these problems.....any suggestions??

>>

>> Take good care friends! Hug!

>>

>> Di....PLS....Canada

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

I second that Di and hope you can find the energy and strenth to start doing

some of those things you " used to do " so that you are not as focused on the fear

of what is happening to you!! a bit scared for you down here in fl!

tawny

Marfla marfla04@...> wrote:

please take care of YOU Di.

Be Blessed

Questions about Esophagus and Breathing

> Problems

>>

>>

>> Hi friends,

>> Shellie...your flag went in the mail tonight....should be there in

> 5-

>> 7 days.Great talking to you on the phone tonight!!

>>

>> I wanted to ask for a roll-call on how many of you have difficulty

>> with the following:

>>

>> Spastic esophagus causing pain after eating.Spasms in muscles

>> surrounding stomach...especially after eating. Spasms in diaphgragm

>> and cramping of chest wall muscles resulting in difficulty

> breathing

>> and reduced lung capacity.

>>

>> I am asking these questions because these are the areas I am

>> stuggling with the most right now. I talked to a respirologist and

>> dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu

> bag

>> for the lung thing....but i am almost on the verge of giving up

>> eating...as it is too painful. The alternative is to eat tiny

>> amounts of soft foods several times a day.

>>

>> Anyone else have these problems.....any suggestions??

>>

>> Take good care friends! Hug!

>>

>> Di....PLS....Canada

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

I have a on going cough (which I previusly shared with this group). My lungs

appear to pass the pulmonologist tests, because he had no clue why I cough. He

put me on 3 types of inhalers. I went to a allergist who put me on meds. Then I

went to Gastro. who did a endoscopy and swallow test (all showed good) and put

me on Prilosec and Nexium (3rd time for nexium) for reflux and my cough is still

here.

It feels like a cramping in the chest wall and I feel like I am short of

breath, When I talk I have to stop and inhale deep. Also, when I am lying down

all of a sudden I will take a deep breath of air (dont intend to), which sounds

like what you do Di. gary d.

SusieQ susieq2828@...> wrote:

Not I (thank God), Susieq

Questions about Esophagus and Breathing Problems

Hi friends,

Shellie...your flag went in the mail tonight....should be there in 5-

7 days.Great talking to you on the phone tonight!!

I wanted to ask for a roll-call on how many of you have difficulty

with the following:

Spastic esophagus causing pain after eating.Spasms in muscles

surrounding stomach...especially after eating. Spasms in diaphgragm

and cramping of chest wall muscles resulting in difficulty breathing

and reduced lung capacity.

I am asking these questions because these are the areas I am

stuggling with the most right now. I talked to a respirologist and

dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu bag

for the lung thing....but i am almost on the verge of giving up

eating...as it is too painful. The alternative is to eat tiny

amounts of soft foods several times a day.

Anyone else have these problems.....any suggestions??

Take good care friends! Hug!

Di....PLS....Canada

[Guest guest]

Di, I am so sorry to hear that you are having more problems

your pal,

Aussie Maureen

>

> Hi friends,

> Shellie...your flag went in the mail tonight....should be there in 5-

> 7 days.Great talking to you on the phone tonight!!

>

> I wanted to ask for a roll-call on how many of you have difficulty

> with the following:

>

> Spastic esophagus causing pain after eating.Spasms in muscles

> surrounding stomach...especially after eating. Spasms in diaphgragm

> and cramping of chest wall muscles resulting in difficulty breathing

> and reduced lung capacity.

>

> I am asking these questions because these are the areas I am

> stuggling with the most right now. I talked to a respirologist and

> dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu bag

> for the lung thing....but i am almost on the verge of giving up

> eating...as it is too painful. The alternative is to eat tiny

> amounts of soft foods several times a day.

>

> Anyone else have these problems.....any suggestions??

>

> Take good care friends! Hug!

>

> Di....PLS....Canada

>

[Guest guest]

get checked for Hyatial Hernia this is common and can mimic

breathing problems .This is where the Esophagus, just above the

Diaphram it exspands or swells restricting the lung exspansion .Ive

had this and the Prilosec helps me so far. Staying quiet alot is

very helpful the more im riled the more it exspands . Anxiety is a

very big thing for us ,eliminting it is a must . It causes all kinds

of secondary symptoms . and being that we have these kinds of

problems it only worsens ours. I know we have Diaphram problems also

but this adds to it. GEO

>

> I have a on going cough (which I previusly shared with this

group). My lungs appear to pass the pulmonologist tests, because he

had no clue why I cough. He put me on 3 types of inhalers. I went to

a allergist who put me on meds. Then I went to Gastro. who did a

endoscopy and swallow test (all showed good) and put me on Prilosec

and Nexium (3rd time for nexium) for reflux and my cough is still

here.

> It feels like a cramping in the chest wall and I feel like I am

short of breath, When I talk I have to stop and inhale deep. Also,

when I am lying down all of a sudden I will take a deep breath of

air (dont intend to), which sounds like what you do Di. gary d.

>

> SusieQ wrote:

> Not I (thank God), Susieq

>

> Questions about Esophagus and Breathing

Problems

>

>

> Hi friends,

> Shellie...your flag went in the mail tonight....should be there in

5-

> 7 days.Great talking to you on the phone tonight!!

>

> I wanted to ask for a roll-call on how many of you have difficulty

> with the following:

>

> Spastic esophagus causing pain after eating.Spasms in muscles

> surrounding stomach...especially after eating. Spasms in

diaphgragm

> and cramping of chest wall muscles resulting in difficulty

breathing

> and reduced lung capacity.

>

> I am asking these questions because these are the areas I am

> stuggling with the most right now. I talked to a respirologist and

> dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu

bag

> for the lung thing....but i am almost on the verge of giving up

> eating...as it is too painful. The alternative is to eat tiny

> amounts of soft foods several times a day.

>

> Anyone else have these problems.....any suggestions??

>

> Take good care friends! Hug!

>

> Di....PLS....Canada

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Geo and Flora: I had a endoscopy 2 weeks ago and the gastro said he saw no signs

of hiatal hernia. He gave me samples of prilosec and nexium and the cough and

chest ache subsided. I have since run out of prilosec and cough is back with

chest cramping. Isnt prilosec and nexium treat the same problem/ do you know?

Geo conniegeo1@...> wrote: get checked for Hyatial

Hernia this is common and can mimic

breathing problems .This is where the Esophagus, just above the

Diaphram it exspands or swells restricting the lung exspansion .Ive

had this and the Prilosec helps me so far. Staying quiet alot is

very helpful the more im riled the more it exspands . Anxiety is a

very big thing for us ,eliminting it is a must . It causes all kinds

of secondary symptoms . and being that we have these kinds of

problems it only worsens ours. I know we have Diaphram problems also

but this adds to it. GEO

>

> I have a on going cough (which I previusly shared with this

group). My lungs appear to pass the pulmonologist tests, because he

had no clue why I cough. He put me on 3 types of inhalers. I went to

a allergist who put me on meds. Then I went to Gastro. who did a

endoscopy and swallow test (all showed good) and put me on Prilosec

and Nexium (3rd time for nexium) for reflux and my cough is still

here.

> It feels like a cramping in the chest wall and I feel like I am

short of breath, When I talk I have to stop and inhale deep. Also,

when I am lying down all of a sudden I will take a deep breath of

air (dont intend to), which sounds like what you do Di. gary d.

>

> SusieQ wrote:

> Not I (thank God), Susieq

>

> Questions about Esophagus and Breathing

Problems

>

>

> Hi friends,

> Shellie...your flag went in the mail tonight....should be there in

5-

> 7 days.Great talking to you on the phone tonight!!

>

> I wanted to ask for a roll-call on how many of you have difficulty

> with the following:

>

> Spastic esophagus causing pain after eating.Spasms in muscles

> surrounding stomach...especially after eating. Spasms in

diaphgragm

> and cramping of chest wall muscles resulting in difficulty

breathing

> and reduced lung capacity.

>

> I am asking these questions because these are the areas I am

> stuggling with the most right now. I talked to a respirologist and

> dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu

bag

> for the lung thing....but i am almost on the verge of giving up

> eating...as it is too painful. The alternative is to eat tiny

> amounts of soft foods several times a day.

>

> Anyone else have these problems.....any suggestions??

>

> Take good care friends! Hug!

>

> Di....PLS....Canada

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi im on Prilosec OTC now and it does wanders for me ,i have to

make sure i dont forget though or the next day it comes back with a

vengence .Yap when you stopped that acid started coming back up into

your lungs ?? then causes chest to cramp ? if you read a little

about bad Reflux it can cause lung cancer in some cases from the

reflux repeatedly getting into the lungs and throat . What did your

gastro say ?? GEO

>

> Geo and Flora: I had a endoscopy 2 weeks ago and the gastro said

he saw no signs of hiatal hernia. He gave me samples of prilosec and

nexium and the cough and chest ache subsided. I have since run out

of prilosec and cough is back with chest cramping. Isnt prilosec and

nexium treat the same problem/ do you know?

>

> Geo wrote: get checked for Hyatial

Hernia this is common and can mimic

> breathing problems .This is where the Esophagus, just above the

> Diaphram it exspands or swells restricting the lung

exspansion .Ive

> had this and the Prilosec helps me so far. Staying quiet alot is

> very helpful the more im riled the more it exspands . Anxiety is a

> very big thing for us ,eliminting it is a must . It causes all

kinds

> of secondary symptoms . and being that we have these kinds of

> problems it only worsens ours. I know we have Diaphram problems

also

> but this adds to it. GEO

> >

> > I have a on going cough (which I previusly shared with this

> group). My lungs appear to pass the pulmonologist tests, because

he

> had no clue why I cough. He put me on 3 types of inhalers. I went

to

> a allergist who put me on meds. Then I went to Gastro. who did a

> endoscopy and swallow test (all showed good) and put me on

Prilosec

> and Nexium (3rd time for nexium) for reflux and my cough is still

> here.

> > It feels like a cramping in the chest wall and I feel like I

am

> short of breath, When I talk I have to stop and inhale deep. Also,

> when I am lying down all of a sudden I will take a deep breath of

> air (dont intend to), which sounds like what you do Di. gary d.

> >

> > SusieQ wrote:

> > Not I (thank God), Susieq

> >

> > Questions about Esophagus and Breathing

> Problems

> >

> >

> > Hi friends,

> > Shellie...your flag went in the mail tonight....should be there

in

> 5-

> > 7 days.Great talking to you on the phone tonight!!

> >

> > I wanted to ask for a roll-call on how many of you have

difficulty

> > with the following:

> >

> > Spastic esophagus causing pain after eating.Spasms in muscles

> > surrounding stomach...especially after eating. Spasms in

> diaphgragm

> > and cramping of chest wall muscles resulting in difficulty

> breathing

> > and reduced lung capacity.

> >

> > I am asking these questions because these are the areas I am

> > stuggling with the most right now. I talked to a respirologist

and

> > dietician/speech therapist at the ALS/PLS Clinic. I use the Ambu

> bag

> > for the lung thing....but i am almost on the verge of giving up

> > eating...as it is too painful. The alternative is to eat tiny

> > amounts of soft foods several times a day.

> >

> > Anyone else have these problems.....any suggestions??

> >

> > Take good care friends! Hug!

> >

> > Di....PLS....Canada

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >