Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 I was really feeling sorry for myself the last few days! Anyway I am trying to get out of this stupid pity party and think about positive things. Today on the way home from work I was thinking about the typical waiting room in a gynecologists office. It would be really great if they had pictures and diagrams of uterine fibroids and also a list of the various treatment options. They have so many other things related to a woman and her body...why not this? It would seem so important since there are so many women with fibroids. I guess I am bringing all this stuff up because I am 40 years old and have never even heard of fibroids till last month when I was diagnosed with them. I wish I would have been smart enough to have done the homework on my own...but when everything is going ok or so I thought..it just did not seem necessary. Also it would be great if all gynecologists, etc... would have to have mandatory myomectomy training as well before graduating. Or at least tell their patients there are other options out there. Ok I have vented enough! Cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Cathy, I couldn't agree with you more about the pictures. I to had never heard of this uterine fibroids until I went to see a new doctor would did a vaginal u/s and told me that I had a tumor in my uterus you can only imagine my suprise when I heard that I almost fell off the table. Because I had been previous seeing a great doctor so I thought and making many trips to the ER for pain but they found nothing or my doctor found it but never told me what he found even after doing a LAP on me. I think that this issue about uterine fibroids needs more attention. I mean these little buggers can really wrecked havoc on your life and even make it impossible at times to get pregnent. But I know how exactly you feel about having a pity party for yourself you are not alone on that one. I to find myself doing the very same thing from time to time but I think that it is just human nature to do that. I mean this things can basically take over life. I hope that you had a good day and good luck at your doctors appointment. Take Care, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Cathy, I couldn't agree with you more about the pictures. I to had never heard of this uterine fibroids until I went to see a new doctor would did a vaginal u/s and told me that I had a tumor in my uterus you can only imagine my suprise when I heard that I almost fell off the table. Because I had been previous seeing a great doctor so I thought and making many trips to the ER for pain but they found nothing or my doctor found it but never told me what he found even after doing a LAP on me. I think that this issue about uterine fibroids needs more attention. I mean these little buggers can really wrecked havoc on your life and even make it impossible at times to get pregnent. But I know how exactly you feel about having a pity party for yourself you are not alone on that one. I to find myself doing the very same thing from time to time but I think that it is just human nature to do that. I mean this things can basically take over life. I hope that you had a good day and good luck at your doctors appointment. Take Care, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Cathy, I couldn't agree with you more about the pictures. I to had never heard of this uterine fibroids until I went to see a new doctor would did a vaginal u/s and told me that I had a tumor in my uterus you can only imagine my suprise when I heard that I almost fell off the table. Because I had been previous seeing a great doctor so I thought and making many trips to the ER for pain but they found nothing or my doctor found it but never told me what he found even after doing a LAP on me. I think that this issue about uterine fibroids needs more attention. I mean these little buggers can really wrecked havoc on your life and even make it impossible at times to get pregnent. But I know how exactly you feel about having a pity party for yourself you are not alone on that one. I to find myself doing the very same thing from time to time but I think that it is just human nature to do that. I mean this things can basically take over life. I hope that you had a good day and good luck at your doctors appointment. Take Care, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 You are not the only one. It makes me angry that we hear about prostate enlargement and cancer but have never heard a peep about fibroids. I had no idea that they ran in my family or that it was even something I might develop. For some reason the fact that fibroids aren't usually life threatening has made this condition a medical afterthought. Yet for all of us who have had regular pelvic exams and never had even a questionable pap smear it has been a shocker when we find out that we are housing internal uterine sculptures called a fibroids. I would love it if ob/gyns mentioned to their patients about what they were, possible symptoms, why they need to know if we have pelvic pain or abnormal bleeding, and the problems they can cause. One ob/gyn I consulted with last summer did have a spiral bound book of fibroids in the exam room and when she took it out I just wanted to grab it and turn the pages to see all the illustrations of calcified fibroids and the like. I did get in touch with the local Planned Parenthood about teaching a workshop and they said it is generally their policy not to used unlicensed educators to teach classes on health topics, primarily due to quality control issues. That said they did mention as well that it sounded like an interesting topic and that perhaps I might be willing to volunteer at PP. I'll look into it, if it seems like doing so might help build their trust that I would do a good job. Ann They have so many other things related > to a woman and her body...why not this? It would seem so important > since there are so many women with fibroids. > I guess I am bringing all this stuff up because I am 40 years old > and have never even heard of fibroids till last month when I was > diagnosed with them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 You are not the only one. It makes me angry that we hear about prostate enlargement and cancer but have never heard a peep about fibroids. I had no idea that they ran in my family or that it was even something I might develop. For some reason the fact that fibroids aren't usually life threatening has made this condition a medical afterthought. Yet for all of us who have had regular pelvic exams and never had even a questionable pap smear it has been a shocker when we find out that we are housing internal uterine sculptures called a fibroids. I would love it if ob/gyns mentioned to their patients about what they were, possible symptoms, why they need to know if we have pelvic pain or abnormal bleeding, and the problems they can cause. One ob/gyn I consulted with last summer did have a spiral bound book of fibroids in the exam room and when she took it out I just wanted to grab it and turn the pages to see all the illustrations of calcified fibroids and the like. I did get in touch with the local Planned Parenthood about teaching a workshop and they said it is generally their policy not to used unlicensed educators to teach classes on health topics, primarily due to quality control issues. That said they did mention as well that it sounded like an interesting topic and that perhaps I might be willing to volunteer at PP. I'll look into it, if it seems like doing so might help build their trust that I would do a good job. Ann They have so many other things related > to a woman and her body...why not this? It would seem so important > since there are so many women with fibroids. > I guess I am bringing all this stuff up because I am 40 years old > and have never even heard of fibroids till last month when I was > diagnosed with them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 You are not the only one. It makes me angry that we hear about prostate enlargement and cancer but have never heard a peep about fibroids. I had no idea that they ran in my family or that it was even something I might develop. For some reason the fact that fibroids aren't usually life threatening has made this condition a medical afterthought. Yet for all of us who have had regular pelvic exams and never had even a questionable pap smear it has been a shocker when we find out that we are housing internal uterine sculptures called a fibroids. I would love it if ob/gyns mentioned to their patients about what they were, possible symptoms, why they need to know if we have pelvic pain or abnormal bleeding, and the problems they can cause. One ob/gyn I consulted with last summer did have a spiral bound book of fibroids in the exam room and when she took it out I just wanted to grab it and turn the pages to see all the illustrations of calcified fibroids and the like. I did get in touch with the local Planned Parenthood about teaching a workshop and they said it is generally their policy not to used unlicensed educators to teach classes on health topics, primarily due to quality control issues. That said they did mention as well that it sounded like an interesting topic and that perhaps I might be willing to volunteer at PP. I'll look into it, if it seems like doing so might help build their trust that I would do a good job. Ann They have so many other things related > to a woman and her body...why not this? It would seem so important > since there are so many women with fibroids. > I guess I am bringing all this stuff up because I am 40 years old > and have never even heard of fibroids till last month when I was > diagnosed with them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hi Cathy, I must have missed your first couple of postings because my account was unexplainably deactivated. Anyhow the way that you're feeling is perfectly natural. I too am 40 and also had not realised how much fibroids could affect your well being until I started getting pains last year and was diagnosed with a 10cm fibroid. I have so far fought 2 gynaes and my doc who all suggested hysterectomy because I've had my children and because at my age what do I want to keep my womb for? I found it all hugely depressing but in the end all you can do is pick yourself back up and fight for your right to have your body treated with some respect!!! It does get easier once you accept the diagnosis and make the decision to do something about them. Love Jules xxxx cathyatdeli cathyatdeli@...> wrote: I was really feeling sorry for myself the last few days! Anyway I am trying to get out of this stupid pity party and think about positive things. Today on the way home from work I was thinking about the typical waiting room in a gynecologists office. It would be really great if they had pictures and diagrams of uterine fibroids and also a list of the various treatment options. They have so many other things related to a woman and her body...why not this? It would seem so important since there are so many women with fibroids. I guess I am bringing all this stuff up because I am 40 years old and have never even heard of fibroids till last month when I was diagnosed with them. I wish I would have been smart enough to have done the homework on my own...but when everything is going ok or so I thought..it just did not seem necessary. Also it would be great if all gynecologists, etc... would have to have mandatory myomectomy training as well before graduating. Or at least tell their patients there are other options out there. Ok I have vented enough! Cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 > > I must have missed your first couple of postings because my account was unexplainably deactivated. A great many women choose to remain anon on this list group and register using Yahoo.com or some other freebie email address. This is all fine and good except for one little item...those email addresses do not allow for much mail to be received at all. When Yahoo sends out email from this group OR sends out a probe to check on the email address and, for whatever reason, that email BOUNCES, the subscriber's account is taken out of our active subscriptions and placed into the " Bouncing " files for this group. After 30 days of remaining in the Bouncing files and after multiple Yahoo probes, the account is removed from the list group. Because your email is bouncing, there is no way to notify you in advance of this removal. This is Yahoo's method of cleaning up their files, as so many people come and go on these groups using freebie email addresses and simply choose not to resubscribe OR even choose to block the incoming email. Right now, there are ~100 members in the " Bouncing " files. If you have subscribed using a freebie email address, you might want to log into that email account to check on whether or not it is maxxed out and needs to be cleaned up some. Otherwise, you may find yourself unexpectedly unsubscribed. Carla Dionne Quote Link to comment Share on other sites More sharing options...
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