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Re: Frustrated In Florida

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Hi,

My experience was simular. Only I got told hysts 3 times. I found a RE in

another state and had a myo. The difference was that I was a heavy bleeder and

had severe anemia. I couldn't get a UAE. So I chose myo.

If your sis is not having problems because of her fibroids she doesn't need any

surgery. She should just skip surgery and take a wait and see approach. She

should ask these docs how many myos that they do and this may tell her why they

keep pushing hysts (lack of skill). She may never need surgery.

If I had just a little pelvic pressure, I'd skip this surgery.

Ku

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Thank you for your response. To tell you the truth, my sister is monitoring my

posts but since I'm the one most comfortable with the internet, I'm the one

doing the typing.

We're in the Fort Lauderdale area of Florida. One of the docs she's seeing was

recommenended by a friend of mine, a reporter at a local TV station, who had a

myomectomy done by this doc who is supposed to be one of the top in the nation.

We also have a friend who lives in Atlanta who ironically works in a radiology

dept. at a hospital that is performing UFEs. That is the main option my sister

would like to explore before anything else.

You have given us lots of questions to consider. Thank you!

Warmest Regards,

Barb

----- Original Message -----

From: weavfl

Hi Barb,

Is it possible for your sister

to join us as well?

Where in Florida are you located?

For the next 2 consults, does she know

if the gynes specialize in fibroids,

ie, AAGL.com, see Dr. Finder or ASRM.com,

see Dr. Finder.

Did she try to call the local/regional hospitals

to find specialists who could perform

myomectomy? How about Interventional Radiologists

who could perform UFE?

The key is accurate diagnostics to determine

size, location, and type of fibroid(s)

MRI, although expensive is a useful tool.

Did the gyne performing her pelvic exam mention

anything about possible adenomyosis? ie a tender

firm enlarged uterus? Fibroids do however,

enlarge the uterus. Uterine size can vary by

age/previous pregnancy. See: NUFF.org, Uterus link.

Marsha V. Weaver, Tallahassee, FL

5 gyne consults all recommending

hysterectomy in Clearwater-St sburg, FL

UFE for 8 cm fundal symptomatic fibroid/1999, age 47

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