Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Hi guys I have a question for you all. Have any of you been told that your spine has narrowed in the neck area or at the end of it. There has been a discuss on the HSP side that they have narrowing at the neck area. I have narrowing at the end of my spine....... Flora..... Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Jo, No sugery for me, I don't think i want anyone messing around with my spine anymore. It was talked about on the HSP side that for some surgery was required. My doc never said anymore about it. I'm going to address the question to him when I see him and my worry is that it may have thinned out more. just what to know...............Flora Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Jo, No sugery for me, I don't think i want anyone messing around with my spine anymore. It was talked about on the HSP side that for some surgery was required. My doc never said anymore about it. I'm going to address the question to him when I see him and my worry is that it may have thinned out more. just what to know...............Flora Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Jo, No sugery for me, I don't think i want anyone messing around with my spine anymore. It was talked about on the HSP side that for some surgery was required. My doc never said anymore about it. I'm going to address the question to him when I see him and my worry is that it may have thinned out more. just what to know...............Flora Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Flora yes i have nartrowing ing my neck area of the spine and and had corrective surgery and thats how pls was finally dxed for me my symptoms continued to worsen over the next 4 years... Jerry Re: Spine narrowing Hi guys I have a question for you all. Have any of you been told that your spine has narrowed in the neck area or at the end of it. There has been a discuss on the HSP side that they have narrowing at the neck area. I have narrowing at the end of my spine....... Flora..... Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Flora yes i have nartrowing ing my neck area of the spine and and had corrective surgery and thats how pls was finally dxed for me my symptoms continued to worsen over the next 4 years... Jerry Re: Spine narrowing Hi guys I have a question for you all. Have any of you been told that your spine has narrowed in the neck area or at the end of it. There has been a discuss on the HSP side that they have narrowing at the neck area. I have narrowing at the end of my spine....... Flora..... Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Flora yes i have nartrowing ing my neck area of the spine and and had corrective surgery and thats how pls was finally dxed for me my symptoms continued to worsen over the next 4 years... Jerry Re: Spine narrowing Hi guys I have a question for you all. Have any of you been told that your spine has narrowed in the neck area or at the end of it. There has been a discuss on the HSP side that they have narrowing at the neck area. I have narrowing at the end of my spine....... Flora..... Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Yes Flora, I had surgery for spinal stenosis in Jan. 2001 for narrowing of the spinal cord which they called at that time 'spinal stenosis'. They said the spinal cord was being strangled because of arthritis and they thought that was the cause of the spasticity in my legs..............not, as after the surgery my symptoms started getting worse about 6 weeks after that. I guess the surgery was needed anyway as it would have caused paralysis had it not been done. It was C3-4-5 & 6 that had to be fused. Are they suggesting that you have to do something about it? Hope not. Let me know please. Take care. Jo Re: Spine narrowing Hi guys I have a question for you all. Have any of you been told that your spine has narrowed in the neck area or at the end of it. There has been a discuss on the HSP side that they have narrowing at the neck area. I have narrowing at the end of my spine....... Flora..... Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Hi Flora, Now THAT is srrange. yes, with my last MRI, they X-rayed my neck and said the discs have degenerated and the spine has narrowed there. My 2 neuros feel it has nothing to do with my PLS, just a degenerative disc disease.....but....now i wonder.HMMMM. Hugs! Love Di....PLS....Canada > > Hi guys I have a question for you all. Have any of you been told that your > spine has narrowed in the neck area or at the end of it. There has been a > discuss on the HSP side that they have narrowing at the neck area. I have > narrowing at the end of my spine....... > Flora..... > > > Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Didn't mean to scare you Flora, but am glad to hear that he never brought up surgery. Take care my friend. Jo. Re: Re: Spine narrowing Jo, No sugery for me, I don't think i want anyone messing around with my spine anymore. It was talked about on the HSP side that for some surgery was required. My doc never said anymore about it. I'm going to address the question to him when I see him and my worry is that it may have thinned out more. just what to know...............Flora Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Maureen, I found out about my spine in the early years when my present neurologist was trying to find out what the heck I had. To rule out MS he sent me to a specialist at Tampa General Hospital. The MS doctor looked at my MRI and said oh look the spine is narrow at the end. Dummy me didn't ask about it but remember I was scared to death as to what was wrong with me. I'd forgotten about it until someonestarted talking about their spine being narrow at the neck area,. I plan on brining it up with my neurologist as to why it happens .................Flora Quote
Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Hi Flora, Yes, I have narrowing of the spine also somewhere in the mid region I think. A neurogenetic doctor saw it and totally dismissed it as nothing to be concerned about and my latest neuro just said he will keep an eye on it. He didnt seem overly concerned either. AUssie Maureen > > Hi guys I have a question for you all. Have any of you been told that your > spine has narrowed in the neck area or at the end of it. There has been a > discuss on the HSP side that they have narrowing at the neck area. I have > narrowing at the end of my spine....... > Flora..... > > > Quote
Guest guest Posted July 14, 2006 Report Posted July 14, 2006 Flora, if your neuro hasnt ordered any follow up MRI's, since thinning was first noted, then he or she is not concerned and I wouldnt worry about it. Funny, can you believe that I am telling you not to worry about something!! Always its the other way around!! Aussie Maureen > > Maureen, I found out about my spine in the early years when my present > neurologist was trying to find out what the heck I had. To rule out MS he sent me > to a specialist at Tampa General Hospital. The MS doctor looked at my MRI > and said oh look the spine is narrow at the end. Dummy me didn't ask about it > but remember I was scared to death as to what was wrong with me. I'd > forgotten about it until someonestarted talking about their spine being narrow at > the neck area,. I plan on brining it up with my neurologist as to why it > happens .................Flora > > > Quote
Guest guest Posted July 14, 2006 Report Posted July 14, 2006 I too was told years ago (12 years ago), after one of my first MRI's that my spine looked thin at the bottom. This opinion came from a doctor at the MRI lab. I was in the MRI chamber so long all I wanted to do was leave so I didn't go into more detail. The doctor that saw me originally didn't mention narrowing to me. I have recently completed a second set of MRI's and the narrowing was not mentioned to me by a leading neurologist. I have also been tested for the 3 HSP genes at Athena labs and come up negative for all three of them. This leads me to believe that I am back to my original spine narrowing opinion. It sure gets frustrating trying to find the cause or causes of our conditions. I have a feeling that some of the HSP genes are not related and effect different parts of our bodies, spine, nerves, brain, etc. One might have a bone spine channel problem, while another person might have the actual axon thinning and not the spinal tracts, or both. I'm sure I would feel better knowing where the problem was with myself. lol. I guess we will know more with more time and research. Quote
Guest guest Posted July 14, 2006 Report Posted July 14, 2006 i too have degenerative disc disease in cervical spine but had this since the 90's (geez, guess that was in my mid 20's). those certainly is exacerbated by the spasms in my shoulders and neck area. no narrowing as of aug of um, nearly 4 years ago now. haven't had a repeat and only think that there would be more degenerating discs if we did a repeat, so figure there is no real point. interesting about ya'll's narrowing tho.....cannot wait to hear what doc says about that flora when you ask next time. di, did you happen to ask about that? T email from Tawny Swain Castle, Florida Re: Spine narrowing Hi Flora, Now THAT is srrange. yes, with my last MRI, they X-rayed my neck and said the discs have degenerated and the spine has narrowed there. My 2 neuros feel it has nothing to do with my PLS, just a degenerative disc disease..... but....now i wonder.HMMMM. Hugs! Love Di....PLS... .Canada > > Hi guys I have a question for you all. Have any of you been told that your > spine has narrowed in the neck area or at the end of it. There has been a > discuss on the HSP side that they have narrowing at the neck area. I have > narrowing at the end of my spine....... > Flora..... > > > Quote
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