Re: t-shaped uterus - preg ment

[Guest guest]

Hi,

First, let me say that " Yes, there are many t-shapes that have gotten pregnant

and have normal healthy children. " I hope you are one of them soon!

I'm so sorry to hear about your losses and mind-boggling diagnosis. It sounds

like you might have done what DH and I did. We waited several years before ttc

and then spent over 2 years frustrated that things weren't just happening for us

like they do for every other woman we know. We just have to believe that there

is a reason that it wasn't until now that we finally are being blessed with a

child.

I have a t-shape uterus that is due to DES exposure. My mom doesn't remember

that she specifically took DES. She thought it was a pre-natal vitamin. She

does remember the shots that they gave her when she started spotting with me.

When she first called to inquire about this, she was told that she had nothing

to worry about because she was given a synthetic hormone. DES is a synthetic

hormone! We started doing more research and found out that her doctor's

standard practice for treating women like my mom (who had 2 m/c before me) was

to give shots in the office and prescribe DES for home use. Anyway, you have

probably been told that given your history your case does sound like a DES case

(mom had problems carrying a child, in the time-frame, t-shape uterus). Also,

m/c and ectopic are also common occurences as a result of DES.

Btw, my uterus is considered a classis DES hypoplastic t-shape and you can see

if on the website for reference. Does your uterus look like this? If you truly

have a t-shape, the HSG is considered the gold standard for diagnosis. From the

outside, a t-shape uterus looks perferctly normal. It is the internal cavity

that is malformed or underdeveloped. There was someone else on this website

that was diagnosed as a t-shape and then later diagnosed as a septate uterus.

Depending on how the uterus is lying at the time of the HSG, a uterus that is

not t-shape can sometimes appear t-shape. Not the case with me, but I've been

told here and by professionals that it does happen.

Honestly, I have never heard of someone being diagnosed as normal with an HSG

and then changed to a t-shape. Do you have copies of both of your HSGs for

comparison? Can you get a second opinion? I would definitely not be satisfied

with this inconsistent diagnosis. You obviously need help and you don't need

confused medical personnel to make it more difficult for you to get that help by

misdiagnosing you.

One other thing, if the lining of your uterus is affected, which can happen with

an MA, clomid will make it more difficult to get pregnant if it thins your

lining too much. I assume you are being monitored for that. I have been

pregnant twice, once without meds (ended in a m/c at 7 weeks) and once with

injectibles (currently still pregnant). I've never been able to get pregnant

with Clomid.

One last thing that was told to me when we first found out about my uterus.

T-shapes usually do get pregnant, they just have to try harder. I hated to hear

that! But, knowing that there are women who have gotten pregnant just because

they didn't give up has encouraged me to not give up. I hope that you find the

answers you are looking for and have a baby in your arms soon! If you have any

other questions that I can try to answer, please don't hesitate to ask.

Best wishes,

Mikell, 34

t-shape

28 wks,4 days

[Guest guest]

HI Mikell- thanks so much for taking the time to reply to my post. You have

given me hope, and a renewed determination to get answers- I thought I had given

up, I just had enough- but now I think I will go out and get answers, I am going

to get copies of my HSG's and compare and I will keep looking for someone to

help us.

I am so happy for you that you are expecting- I will be thinking of you and

sending good thoughts and prayers your way for a healthy pregnancy.

Mikell Awwad mikell_awwad@...> wrote:

Hi,

First, let me say that " Yes, there are many t-shapes that have gotten pregnant

and have normal healthy children. " I hope you are one of them soon!

I'm so sorry to hear about your losses and mind-boggling diagnosis. It sounds

like you might have done what DH and I did. We waited several years before ttc

and then spent over 2 years frustrated that things weren't just happening for us

like they do for every other woman we know. We just have to believe that there

is a reason that it wasn't until now that we finally are being blessed with a

child.

I have a t-shape uterus that is due to DES exposure. My mom doesn't remember

that she specifically took DES. She thought it was a pre-natal vitamin. She

does remember the shots that they gave her when she started spotting with me.

When she first called to inquire about this, she was told that she had nothing

to worry about because she was given a synthetic hormone. DES is a synthetic

hormone! We started doing more research and found out that her doctor's

standard practice for treating women like my mom (who had 2 m/c before me) was

to give shots in the office and prescribe DES for home use. Anyway, you have

probably been told that given your history your case does sound like a DES case

(mom had problems carrying a child, in the time-frame, t-shape uterus). Also,

m/c and ectopic are also common occurences as a result of DES.

Btw, my uterus is considered a classis DES hypoplastic t-shape and you can see

if on the website for reference. Does your uterus look like this? If you truly

have a t-shape, the HSG is considered the gold standard for diagnosis. From the

outside, a t-shape uterus looks perferctly normal. It is the internal cavity

that is malformed or underdeveloped. There was someone else on this website

that was diagnosed as a t-shape and then later diagnosed as a septate uterus.

Depending on how the uterus is lying at the time of the HSG, a uterus that is

not t-shape can sometimes appear t-shape. Not the case with me, but I've been

told here and by professionals that it does happen.

Honestly, I have never heard of someone being diagnosed as normal with an HSG

and then changed to a t-shape. Do you have copies of both of your HSGs for

comparison? Can you get a second opinion? I would definitely not be satisfied

with this inconsistent diagnosis. You obviously need help and you don't need

confused medical personnel to make it more difficult for you to get that help by

misdiagnosing you.

One other thing, if the lining of your uterus is affected, which can happen with

an MA, clomid will make it more difficult to get pregnant if it thins your

lining too much. I assume you are being monitored for that. I have been

pregnant twice, once without meds (ended in a m/c at 7 weeks) and once with

injectibles (currently still pregnant). I've never been able to get pregnant

with Clomid.

One last thing that was told to me when we first found out about my uterus.

T-shapes usually do get pregnant, they just have to try harder. I hated to hear

that! But, knowing that there are women who have gotten pregnant just because

they didn't give up has encouraged me to not give up. I hope that you find the

answers you are looking for and have a baby in your arms soon! If you have any

other questions that I can try to answer, please don't hesitate to ask.

Best wishes,

Mikell, 34

t-shape

28 wks,4 days