Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 Hi, It is a very personal decision on what is best for you. I am also 36 and opted for an ab myo 2/19 in order to preserve my fertility. I was interested in UFE but because it hasn't been 'approved' for women who wish to preserve their fertility I wasn't willing to risk it (I have 1 daughter and plan on conceiving again later this year). A myo would leave your uterus intact as it would be closed up after the fibroids were removed. Depending on the location of the fibroids you may need a c/section if you were to have a baby but your uterus would be preserved. I wish you luck in making your decision. ~Cindy > I'm 36 and I have a 5cm intramural fibroid and a 1.3 cm fibroid > (also intramural) found today during ultrasound. I don't want a > hyst / myo 'cause I want to leave my uterus intact (I might have a > boyfriend in the future and he might want a child). I'm wearing a > mirena now. I thought UFE is the next sensible and least invasive > thing to do. If I can't have babies after UFE, then it'd still be > better than living with the beast for the rest of my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 < I visited my gyne today and she's all negative about UFE.> It's a contraversial topic. You'll hear different views - check out the Yahoo embo forum and the new one being put together you'll hear mentioned on Smartgroups UK. Rightly, or wrongly, UAE might be considered not the best choice for someone who may want children in the future. One main issue put forward in that debate is that the wrong vessels might be embolised by mistake. It really is a good point to make in my opinion,since I had symptoms still, post myo. It's a good thing that the doctor is doing these tests. It shows they're interested too. Fibroids cause a range of symptoms and not everyone gets the same symptoms. Others are symptomless. A larger fibroid can cause less problems than a smaller one sometimes, depending on type and position. < I came back home feeling disappointed and confused. I found an informative pack in my letter box from The American College of Obstetricians and Gynecologists (surprisingly pleasant after my gyne visit).> < You can email resources@a... for a free copy of experts finding on UFE followup on 4000 women.> Thanks for the tip! < I'm 36 and I have a 5cm intramural fibroid and a 1.3 cm fibroid > (also intramural) found today during ultrasound. > My age. Intact in the sense of not cut? A myomectomy should preserve your fertility if it all goes well. <(I might have a boyfriend in the future and he might want a child).> as might you. It's very much an individual choice, but sometimes treatment options change if fibroids grow particularly big. A myomectomy would remove all (Sometimes most) of the fibroids. You might get fibroids again in the future but then again you might not. You may be a candidate for a keyhole surgery myomectomy, for example. Ask your doctor what they think are the most appropriate and least invasive options open and recommendable to you. There are some other options, depending on the case. > What's your opinion ? My impression as a lay-person dipping in fibroid books, is that the type size and position of fibroids particularly lends itself to certain treatment approaches, in preference to others. I'd think of the the long term pros and cons of whatever you go with. Do a websearch on Dr Toaff and fibroids and Dr. Indman and fibroids for some helpful sites. Check out those fibroid books that focus on comparing treatments and talking about symptoms. Aztek Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 I would suggest you join the yahoo embo group. These are all women that are going through the decision making process or have been through the procedure. You can find out everything about UFE here. I had mine done 1/30 for a 10 cm fibroid, and extreme bleeding problems. I am 43 and have already had my kids. they say it's unknown as to childbearing after embo. It is very possible you can have a child, but they say " unknown " just becuase they haven't followed up on it. Many women have gone on to have children after embo's quite naturally. The IR's and DR's won't recommend this as a 1st choice if you want to have kids. They will tell you myo instead. Your fibroid's are not that big. Maybe there is another procedure that you can qualify for? Have you looked into this? Also, your gyno acts like all other gyno's!!! They don't recommend UFE's simply becuase they aren't experienced with it!! All they know is hysto's and myo's. For us UFE women, we've all done the research ourselves and most have found out about it via internet!!!! They are claimed to be very " intelligent " women!! Anyway, good luck and keep your obtions open! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 May, First, remember that UAE/UFE is still being looked at in terms of those that still want children. An RE (Reproductive Endocrinologist) would be an appropriate consult to discuss myo since you may want to have children, and helping women have children is their business. Some women have had successful pregnancies after UAE/UFE, but they are still looking at this issue and how the UAE/UFE may affect the ability to get pregnant, carry the pregnancy and deliver the baby. Some ladies have had problems with ovarian function post UAE/UFE (myself included), but this is often with women 45 or older (though not exclusive). I believe the problem might be somewhat less frequent with improvements in the embo particles and technique. Many GYNs will be very negative about UAE (since they don't do them). But, unlike many, your GYN is interested in determining the *true* cause of your symptoms. Unfortunately, many of the symptoms of fibroids are symptoms that could be caused by other things. On the other hand, many of us have found symptoms/problems we didn't recognize or connect to our fibroids have disappeared after treating our fibroids. I can't advise you other than read Pat's recent post to newbies, and follow with research. Then, as you get other test results back, you will be able to ask appropriate questions, schedule appropriate consults and gain the information you need to decide your next step. Whatever you do, if you decide to watch and wait...do it from a position of education. These nasty fibroids can steal your life right before your eyes and you don't realize to what extent they have affected your life until after you hit the brick wall and treat them. Best wishes on your journey of knowledge and power over your medical decisions. TxGenes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Thanks very much for sharing your opinion. I think ladies here know just as much or more than my gyne. I'm not sure whether or not my symptoms could be caused by mirena in my uterus. Personally, I hate getting cut up (whether or not it's a myo / hyster, by key hole surgery or not). So I guess my choices are whether to sit and wait or an UFE. I've booked an appointment with another gyne for a 2nd opinion. Thanks again. May > > < I visited my gyne today and she's all negative about UFE.> > > It's a contraversial topic. You'll hear different views - check out > the Yahoo embo forum and the new one being put together you'll hear > mentioned on Smartgroups UK. Rightly, or wrongly, UAE might be > considered not the best choice for someone who may want children in > the future. One main issue put forward in that debate is that the > wrong vessels might be embolised by mistake. Quote Link to comment Share on other sites More sharing options...
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