Guest guest Posted January 27, 2004 Report Share Posted January 27, 2004 Hey, I am really sorry to hear about all this that you are going through. I hope everything turns out ok for you. I know the vertical incision seems pretty bad...but I had one too....from my pubic bone all the way up and around my belly button...it really is not so bad...just a thin red line it was just 7 weeks ago for me and I am sure it will continue to get lighter. Hang in there, hopefully, this will all turn out to be ok. My thoughts and prayers are with you. > Well, the specialist that I went to see today gave me some very bad > news. The " simple fluid-filled cyst " that my GP assured me I had > (thereby making it OK to wait 2 weeks to see the specialist) is > nothing of the sort. It's a complex ovarian tumor. Possibly > malignant. I've now been referred to a gynecological oncologist > (whom I could have seen two weeks ago!!) for further consultation. > AND, they won't be able to even do a bikini cut, they'll have to do a > vertical incision, the length of the tumor (14cm or so). Life > sucks. And it could get exponentially worse within the next few > days... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2004 Report Share Posted January 27, 2004 before you break into total panic we need to get you the right information. This is cruel to say but you are stuck in the waiting game. But while you are stuck there you need good information. The american Cancer Society has a great website which even has a spot where if you ask a question people will get back to you. Just type in your zip code and you will get information on local services. Also where are you? There are hospitals that specialise in cancer but you want the best. Don't skimp!!!!!! Hang in there. The two weeks I waited to know if my tumors were cancer or not were two of the worst then the Doctor canceled the appointment but the nurse wouldn't tell me anything except he really needed to speak to me. Turned out it was just an huge infection. I told the nurse to NEVER do that to me again. Just tell me...I was a mess. I hate surprises. example of how stressed: I told my boss when she yelled at me " unless you are god or my doctor and can tell me if it is cancer or not just stop. Sorry but this just doesn't really matter " (paperwork wasn't going anywhere right). If you snap at others or feel upset beyond crazed it is normal. You need to hang in there. Hopefully your job allows you that latitude if not go for silence. --- McCoy sarahjmccoy_sj@...> wrote: > Well, the specialist that I went to see today gave > me some very bad > news. The " simple fluid-filled cyst " that my GP > assured me I had > (thereby making it OK to wait 2 weeks to see the > specialist) is > nothing of the sort. It's a complex ovarian tumor. > Possibly > malignant. I've now been referred to a > gynecological oncologist > (whom I could have seen two weeks ago!!) for further > consultation. > AND, they won't be able to even do a bikini cut, > they'll have to do a > vertical incision, the length of the tumor (14cm or > so). Life > sucks. And it could get exponentially worse within > the next few > days... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2004 Report Share Posted January 27, 2004 , I had a complex cyst too, at least that what the ultrasound said, and my resolved on it's own, which a complex cyst isn't supposed to do, so was it really ever a complex cyst? Request, no DEMAND that a different radiologist re-read the films. You remember the woman who had both breast removed because of cancer and it turned out NOT to be cancer? Double check, double check and double check! Gerri > > >Well, the specialist that I went to see today gave me some very bad > >news. The " simple fluid-filled cyst " that my GP assured me I had > >(thereby making it OK to wait 2 weeks to see the specialist) is > >nothing of the sort. It's a complex ovarian tumor. Possibly > >malignant. I've now been referred to a gynecological oncologist > >(whom I could have seen two weeks ago!!) for further consultation. > >AND, they won't be able to even do a bikini cut, they'll have to do a > >vertical incision, the length of the tumor (14cm or so). Life > >sucks. And it could get exponentially worse within the next few > >days... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Hello my dear, Oh goodness, your news is so scary. I'm praying that your surgery will go well. I just wanted to share with you the ovarian tumor experience that I had 14 years ago. Hopefully it can give you some comfort. When I was 16 I asked my mom if I needed to go see a doctor because I had noticed a strange puffy hard lump in the right side of my abdomen. I thought maybe my appendix was inflamed only I had no pain. So she made an apt for me to see the local NP for a pelvic exam. I had never had one before. The NP said I possibly had a large fibroid and needed to have an ultrasound by a gynecologist. So I went to my mom's gyn right away. The gyn found a very large ovarian cyst on the ultrasound screen. He described it as the size of a grapefruit; I don't remember hearing centimeter measurements. Both I and my mother were quite shocked. Why would a young woman of my age have such a thing? Well, the gyn scheduled me for surgery ASAP. He performed the surgery three days later because he felt the cyst may rupture if left too long. After I woke up from the surgery and they wheeled me into my room my family told me that it was more than a cyst that he found. He removed a low grade malignant tumor. He was very surprised that it could have grown so large without spreading anywhere else. He removed it as well as my right ovary and appendix. The appendix was fine, but in the old days they used to take it if they were in there in case it ever became a problem an dmight be blamed on uterine pain. And even back then in 1990 he was able to do all this through a bikini cut. Being only 16 with no knowledge of any uterine problems I never thought to ask what type of incision he would use. He was an older gyn, very skilled, very knwledgable about women's feelings about their bodies. Heck, he was the same gyn who delivered me! So he knew I would prefer the bikini line cut since I was so young. Since then I have been seeing gyns for annual ultrasounds. No reoccurrence and I am now 30. I have had my share of problems with fibroids, but after my recent resections that is much better too. So keep your chin up my dear, it is highly possible that this was caught early and you will have it removed with a bright outcome. My gyn told me, " If a malignancy appears to look like a cyst on an ultrasound (is black like it is filled with fluid instead of looking fleshy like most tumors) then it is most likely a low grade tumor. " Me being only 16 at the time and also not knowing the cyst was cancerous before it was removed helped me stay calm and not focus too heavily on the outcome. And the fact that I did not have to wait very long to have the surgery made a big difference too. I hope you will not have to wait long yourself. And push the bikini cut incision idea. It is very possible to be done, maybe ask a different doctor about it. I'm praying for you that all will be well. May the angels rest on both your shoulders my dear. Blessings, Sonja Quote Link to comment Share on other sites More sharing options...
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