Re: Child in crisis/Taurine

[Guest guest]

I have seen mention of taurine supplementation elsewhere. This is an amino

acid yes? Where do I get it, what is the dosage, what do I need to know

about giving it?

He has a very restricted diet. He eats chicken, pork, beef (limited),

tomatoes, potatoes, peppers (usually green - his preference), sometimes

cucumber, apples, bananas, grapes, & sometimes peaches. Grain free dairy

free occasional soy which seems fine but have been restricting that on

general principle. No preservatives, artificial flavors, artificial colors.

I give him his supplements in apple juice.

Thoughts?

What fruits & veggies DON'T have phenol or are very low?

Thank you.

-Sara.

Dear Sara,

I just wanted to mention that high phenol food s caused insomnia for both of

my ASD boys. Also citrus(orange, tomatoes,pinapple) gave the both of them

acid reflux. This would cause night waking they would jerk in their sleep.

Diet changes and supplementing with lots of magnisum and Taurine made all

the difference in the world.

Bless you and your family in this difficult time..

Aminah

-------------- Original message --------------

> Dear Sara,

> You've gotten lots of responses - just wanted to add to the list and

> reinforce a few:

> 1) I'm assuming that you are using B6 (50 mg is a reasonable dose)

> and not the P5P version (in which case the dose might be a bit high).

> 2) Given the family history and his lack of speech, I would

> definitely add some sort of EFA's - my boys take 2 teaspoons daily

> of Nordic Naturals Cod Liver Oil which is flavored and deodorized so

> it's pretty palatable.

> 3) I agree that you could try increasing the melatonin a bit - maybe

> up to a gram - or maybe you could keep the 300mcg and give him a

> second dose if he wakes up at midnight.

> 4)You can help shift his rhythm by loading protein in the morning

> and carbs in the evening as much as possible.

> Good luck,

>

>

>

>

> > has reached the manic, aggressive, self-injurious stage of

> sleep

> > deprivation. I don't know what to do. He is dx'd with severe

> autism & is

> > nonverbal. He will be 5.

> >

> > He has had sleep issues at birth which worsened suddenly at age 2

> when he

> > went down to 4 hours a night. Without intervention he still

> sleeps from

> > midnight to 4am. He does not nap. We have tried chloral hydrate,

> valium,

> > adderall, clonidine, trazadone, risperdal, & probably others I'm

> not

> > remembering right now. They either don't work at all, or work for

> a few

> > months & then stop. That process repeats until we max out on the

> dosage.

> >

> > He is taking 800mg calcium, 400mg magnesium, 1g vit C, 50mg B6,

> probiotic,

> > 300mcg melatonin, and epsom salt baths at bedtime. He is almost 5

> & weighs

> > over 50lbs. He is GFCFSF & Feingold. I ordered some Mb & No-

> Fenol. He has

> > a very restricted diet & most of the foods he will eat are high in

> phenols.

> > He has yeast & we are treating that with diet & probiotics.

> >

> > With this he will sleep up to 12 hours if I let him. However, he

> is up all

> > night and wants to sleep during the day. I do not let him sleep

> during the

> > day but he is still up all night. He has had one good night in

> the last

> > week and we didn't do anything different to make that happen. The

> stars

> > just all lined up right or something and he fell asleep at 10pm &

> slept

> > until 10am. The next night he fell asleep at 8:45pm & was up at

> midnight --

> > a nap.

> >

> > I don't have a DAN-type dr here. I'm in Columbus Ohio. I was

> referred to a

> > Dr. Pinkham but she is on vacation until Aug 10.

> >

> > If I call my ped I'm afraid she'll want to put him on haldol or

> something.

> > She's out of ideas. We have an appt with a neuro who specializes

> in sleep

> > disorders for special needs kids but that is not until the end of

> August and

> > again I'm afraid we'll just be given another script that won't

> work, or will

> > stop working in a few months.

> >

> > I am really at a loss. I don't want him on any more meds but we

> cannot deal

> > with his mania & aggression. I think we are on the right track

> with keeping

> > him up & trying to readjust his sleep cycle so he is sleeping at

> night, and

> > the supplements he is on, but this process is going to take time

> and in the

> > meantime we are all...well, in crisis.

> >

> > I am considering that he may be bipolar but it doesn't quite seem

> to fit. I

> > don't see " down " swings. As long as he sleeps he does well; when

> he stops

> > sleeping he get manic. The sleep issues always come up before the

> mania,

> > and I do know that sleep deprivation can cause mania by itself.

> So I don't

> > know if he's bipolar & that's why he stops sleeping, or if he

> stops sleeping

> > & the deprivation makes him appear bipolar. His father has had

> clinical

> > depression since childhood and his aunt is bipolar.

> >

> > We are to the point that I would take him to the ER, but again,

> they're just

> > going to give us drugs that won't work and send us home.

> >

> > Any suggestions would be most appreciated.

> >

> > -Sara.

>

>

>

>

> =======================================================

>

[Guest guest]

Hi Sara, sounds like most of the fruits and veggies you feed him are high

phenol. Phenols are in all fruits and veggies. The ones that really caused

problems for my boys are the brightly colored ones (apples,

peaches,apricots,grapes,rainsins, berries,cherries,green

peppers,tomatoes,spinach) The fruits my kids can tolerate are pears, bannanas,

mangos. The veggies they can eat are carrots,green beans, califlower, onion,

brocholi potatoes. Also nuts and seeds are high in phenols. I would suggest

eliminating apples and and tomatoes/citrus right away if nothing else. The

taurine is a sulfer amino acid it helps with the phenol sulfer tranfer

processing. I order it from from kirkman labs and I my sons 500 mg twice a day.

My youngest is 4yrs. and 42lbs. my oldest is 5yrs. 6months and 44lbs. Hope this

helps you ..

Aminah

-------------- Original message --------------

> I have seen mention of taurine supplementation elsewhere. This is an amino

> acid yes? Where do I get it, what is the dosage, what do I need to know

> about giving it?

>

> He has a very restricted diet. He eats chicken, pork, beef (limited),

> tomatoes, potatoes, peppers (usually green - his preference), sometimes

> cucumber, apples, bananas, grapes, & sometimes peaches. Grain free dairy

> free occasional soy which seems fine but have been restricting that on

> general principle. No preservatives, artificial flavors, artificial colors.

> I give him his supplements in apple juice.

>

> Thoughts?

>

> What fruits & veggies DON'T have phenol or are very low?

>

> Thank you.

>

> -Sara.

>

>

> Dear Sara,

> I just wanted to mention that high phenol food s caused insomnia for both of

> my ASD boys. Also citrus(orange, tomatoes,pinapple) gave the both of them

> acid reflux. This would cause night waking they would jerk in their sleep.

> Diet changes and supplementing with lots of magnisum and Taurine made all

> the difference in the world.

> Bless you and your family in this difficult time..

> Aminah

>

> -------------- Original message --------------

>

> > Dear Sara,

> > You've gotten lots of responses - just wanted to add to the list and

> > reinforce a few:

> > 1) I'm assuming that you are using B6 (50 mg is a reasonable dose)

> > and not the P5P version (in which case the dose might be a bit high).

> > 2) Given the family history and his lack of speech, I would

> > definitely add some sort of EFA's - my boys take 2 teaspoons daily

> > of Nordic Naturals Cod Liver Oil which is flavored and deodorized so

> > it's pretty palatable.

> > 3) I agree that you could try increasing the melatonin a bit - maybe

> > up to a gram - or maybe you could keep the 300mcg and give him a

> > second dose if he wakes up at midnight.

> > 4)You can help shift his rhythm by loading protein in the morning

> > and carbs in the evening as much as possible.

> > Good luck,

> >

> >

> >

> >

> > > has reached the manic, aggressive, self-injurious stage of

> > sleep

> > > deprivation. I don't know what to do. He is dx'd with severe

> > autism & is

> > > nonverbal. He will be 5.

> > >

> > > He has had sleep issues at birth which worsened suddenly at age 2

> > when he

> > > went down to 4 hours a night. Without intervention he still

> > sleeps from

> > > midnight to 4am. He does not nap. We have tried chloral hydrate,

> > valium,

> > > adderall, clonidine, trazadone, risperdal, & probably others I'm

> > not

> > > remembering right now. They either don't work at all, or work for

> > a few

> > > months & then stop. That process repeats until we max out on the

> > dosage.

> > >

> > > He is taking 800mg calcium, 400mg magnesium, 1g vit C, 50mg B6,

> > probiotic,

> > > 300mcg melatonin, and epsom salt baths at bedtime. He is almost 5

> > & weighs

> > > over 50lbs. He is GFCFSF & Feingold. I ordered some Mb & No-

> > Fenol. He has

> > > a very restricted diet & most of the foods he will eat are high in

> > phenols.

> > > He has yeast & we are treating that with diet & probiotics.

> > >

> > > With this he will sleep up to 12 hours if I let him. However, he

> > is up all

> > > night and wants to sleep during the day. I do not let him sleep

> > during the

> > > day but he is still up all night. He has had one good night in

> > the last

> > > week and we didn't do anything different to make that happen. The

> > stars

> > > just all lined up right or something and he fell asleep at 10pm &

> > slept

> > > until 10am. The next night he fell asleep at 8:45pm & was up at

> > midnight --

> > > a nap.

> > >

> > > I don't have a DAN-type dr here. I'm in Columbus Ohio. I was

> > referred to a

> > > Dr. Pinkham but she is on vacation until Aug 10.

> > >

> > > If I call my ped I'm afraid she'll want to put him on haldol or

> > something.

> > > She's out of ideas. We have an appt with a neuro who specializes

> > in sleep

> > > disorders for special needs kids but that is not until the end of

> > August and

> > > again I'm afraid we'll just be given another script that won't

> > work, or will

> > > stop working in a few months.

> > >

> > > I am really at a loss. I don't want him on any more meds but we

> > cannot deal

> > > with his mania & aggression. I think we are on the right track

> > with keeping

> > > him up & trying to readjust his sleep cycle so he is sleeping at

> > night, and

> > > the supplements he is on, but this process is going to take time

> > and in the

> > > meantime we are all...well, in crisis.

> > >

> > > I am considering that he may be bipolar but it doesn't quite seem

> > to fit. I

> > > don't see " down " swings. As long as he sleeps he does well; when

> > he stops

> > > sleeping he get manic. The sleep issues always come up before the

> > mania,

> > > and I do know that sleep deprivation can cause mania by itself.

> > So I don't

> > > know if he's bipolar & that's why he stops sleeping, or if he

> > stops sleeping

> > > & the deprivation makes him appear bipolar. His father has had

> > clinical

> > > depression since childhood and his aunt is bipolar.

> > >

> > > We are to the point that I would take him to the ER, but again,

> > they're just

> > > going to give us drugs that won't work and send us home.

> > >

> > > Any suggestions would be most appreciated.

> > >

> > > -Sara.

> >

> >

> >

> >

> > =======================================================

> >

[Guest guest]

I personally would get rid of the bananas, the grapes, the apples and definitely

the apple juice.

My son could not handle any of those until after 2 years on enzymes.

-GA

RE: [ ] Re: Child in crisis/Taurine

I have seen mention of taurine supplementation elsewhere. This is an amino

acid yes? Where do I get it, what is the dosage, what do I need to know

about giving it?

He has a very restricted diet. He eats chicken, pork, beef (limited),

tomatoes, potatoes, peppers (usually green - his preference), sometimes

cucumber, apples, bananas, grapes, & sometimes peaches. Grain free dairy

free occasional soy which seems fine but have been restricting that on

general principle. No preservatives, artificial flavors, artificial colors.

I give him his supplements in apple juice.

Thoughts?

What fruits & veggies DON'T have phenol or are very low?

Thank you.

-Sara.

Dear Sara,

I just wanted to mention that high phenol food s caused insomnia for both of

my ASD boys. Also citrus(orange, tomatoes,pinapple) gave the both of them

acid reflux. This would cause night waking they would jerk in their sleep.

Diet changes and supplementing with lots of magnisum and Taurine made all

the difference in the world.

Bless you and your family in this difficult time..

Aminah

-------------- Original message --------------

> Dear Sara,

> You've gotten lots of responses - just wanted to add to the list and

> reinforce a few:

> 1) I'm assuming that you are using B6 (50 mg is a reasonable dose)

> and not the P5P version (in which case the dose might be a bit high).

> 2) Given the family history and his lack of speech, I would

> definitely add some sort of EFA's - my boys take 2 teaspoons daily

> of Nordic Naturals Cod Liver Oil which is flavored and deodorized so

> it's pretty palatable.

> 3) I agree that you could try increasing the melatonin a bit - maybe

> up to a gram - or maybe you could keep the 300mcg and give him a

> second dose if he wakes up at midnight.

> 4)You can help shift his rhythm by loading protein in the morning

> and carbs in the evening as much as possible.

> Good luck,

>

>

>

>

> > has reached the manic, aggressive, self-injurious stage of

> sleep

> > deprivation. I don't know what to do. He is dx'd with severe

> autism & is

> > nonverbal. He will be 5.

> >

> > He has had sleep issues at birth which worsened suddenly at age 2

> when he

> > went down to 4 hours a night. Without intervention he still

> sleeps from

> > midnight to 4am. He does not nap. We have tried chloral hydrate,

> valium,

> > adderall, clonidine, trazadone, risperdal, & probably others I'm

> not

> > remembering right now. They either don't work at all, or work for

> a few

> > months & then stop. That process repeats until we max out on the

> dosage.

> >

> > He is taking 800mg calcium, 400mg magnesium, 1g vit C, 50mg B6,

> probiotic,

> > 300mcg melatonin, and epsom salt baths at bedtime. He is almost 5

> & weighs

> > over 50lbs. He is GFCFSF & Feingold. I ordered some Mb & No-

> Fenol. He has

> > a very restricted diet & most of the foods he will eat are high in

> phenols.

> > He has yeast & we are treating that with diet & probiotics.

> >

> > With this he will sleep up to 12 hours if I let him. However, he

> is up all

> > night and wants to sleep during the day. I do not let him sleep

> during the

> > day but he is still up all night. He has had one good night in

> the last

> > week and we didn't do anything different to make that happen. The

> stars

> > just all lined up right or something and he fell asleep at 10pm &

> slept

> > until 10am. The next night he fell asleep at 8:45pm & was up at

> midnight --

> > a nap.

> >

> > I don't have a DAN-type dr here. I'm in Columbus Ohio. I was

> referred to a

> > Dr. Pinkham but she is on vacation until Aug 10.

> >

> > If I call my ped I'm afraid she'll want to put him on haldol or

> something.

> > She's out of ideas. We have an appt with a neuro who specializes

> in sleep

> > disorders for special needs kids but that is not until the end of

> August and

> > again I'm afraid we'll just be given another script that won't

> work, or will

> > stop working in a few months.

> >

> > I am really at a loss. I don't want him on any more meds but we

> cannot deal

> > with his mania & aggression. I think we are on the right track

> with keeping

> > him up & trying to readjust his sleep cycle so he is sleeping at

> night, and

> > the supplements he is on, but this process is going to take time

> and in the

> > meantime we are all...well, in crisis.

> >

> > I am considering that he may be bipolar but it doesn't quite seem

> to fit. I

> > don't see " down " swings. As long as he sleeps he does well; when

> he stops

> > sleeping he get manic. The sleep issues always come up before the

> mania,

> > and I do know that sleep deprivation can cause mania by itself.

> So I don't

> > know if he's bipolar & that's why he stops sleeping, or if he

> stops sleeping

> > & the deprivation makes him appear bipolar. His father has had

> clinical

> > depression since childhood and his aunt is bipolar.

> >

> > We are to the point that I would take him to the ER, but again,

> they're just

> > going to give us drugs that won't work and send us home.

> >

> > Any suggestions would be most appreciated.

> >

> > -Sara.

>

>

>

>

> =======================================================

>

[Guest guest]

> I have seen mention of taurine supplementation elsewhere. This is

an amino

> acid yes? Where do I get it, what is the dosage, what do I need to know

> about giving it?

I bought Taurine from my local health food store. I started at 250 mg

per day and increased to 500 mg for a while.

> tomatoes, potatoes, peppers (usually green - his preference), sometimes

> cucumber, apples, bananas, grapes, & sometimes peaches.

> What fruits & veggies DON'T have phenol or are very low?

My phenol page has info about phenols. There are several categories

of phenols [salicylates, amines, luteins, etc]. I have links to

several pages giving the relative content of various phenols in foods.

http://www.danasview.net/phenol.htm

Dana