Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Hi! I have 2 boys ages 6 and 3. 6 yr old has Asperger's/ADHD/ODD/tics and poss. JRA 3 yr old has PDD/ADHD/ODD My husband has PDD and ADHD on his side, none on mine. I can't help that with my history and his genes together created our boys problems... I have been double vaccinated in my life b/c school lost immunization records and forced to get them all repeated at the age of 12. I suffered with severe migraines following that and ever since then. It was discovered during early school years age 5 that I am blind in 1 eye which I would not be surprised is linked to the before school vaccinations, I have severe Fibromyalgia, muscle spasms, hyper & hypothyroidism, peripheral neuropathy, possible neutrophilia-dr ordered repeat blood work, degenerative disc disease, several herniated discs w/o accident or injury to my spine, and have had many problems while breastfeeding like mastitis, even had a lump removed last year that was cultered and had a bacteria in in called " acinobacter baumanii " . My former home of 8 yrs had been positive for unusually high levels of toxic molds; Aspergillus, Cladisporium, Paecilomyces, Penicillium, Moniliacceae, Epicoccum. The house was on a bay where the tide brought water into our home. I was also exposed during the remediation process to ensure it was done properly. I also broke numerous mercury thermometers while shaking them down in the same room as both children before I learned of the dangers-ignorantly wiped up, even vacuumed spillage, apparently releasing more into the air. My husband worked for an environmental division where he was exposed to high levels of Mercury (and I visited) although he feels he wasn't affected. My illnesses did not come on until 6 mos after our marriage. (no pun intended) I've been to several dr's for my condition but none will even hear my theory on the vax. My boys were vaxed until I became aware and will have to battle it out with the school districts when they realize how behind they are on their vax, that's how it works in my state, religious and medical excempts only, no dr will sign off for med exempt (perhaps DAN! dr will?) and so I will have to go before each principle and request a religious vax exemption. (they r not supposed to ask what religion by law) They take several meds including ADDERAL XR, RISPERDAL, CLONIDINE, ZOLOFT and they are both on the FEINGOLD diet since august. My 6 yr old's school has suggested that if he has another violent outbreak that they will call me, then an ambulance to have him admitted to a psychiatric hosp for eval over a period of days with med adjustments, etc. (Usually he runs b/c of a smell or noise and gets violent when someone tries to ouch him, restrain him, etc.) I found a DAN! dr. they are extremely expensive and cannot afford it for myself at this time b/c I am bringing both of my boys there for the first time this week. I was wondering if there was any advice as to what to ask them for first, what I can do perhaps on my own for myself, and if anyone has had a good result with their ASD child using a DAN! dr. the first appointment consists of meeting with the physicians' asst for 60-90 mins each, their blood drawn, then meeting with a nutritionist to get started until the labs send back their results which then they will make adjustments.... I want to make the most of this appt as I don't know how often we'll be able to get there, I borrowed against my life insurance to get my boys into this office as I am really hopeful that these dr.'s will listen and not rule out my opinions. The reason why I'm saying that is to explain how desperate I am to get to the root cause and stop increasing their meds that don't really help in the first place. Any help/advice will be greatly appreciated. thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 I think you are taking the right steps by getting involved with this group. Following Andy's protocol, I am finally getting better from some pretty severe mercury poisoning. I almost died. SOunds to me like you already know what is at the bottom of a lot, if nopt all of your problems. WHereas I can not help you with the DAN doctor, I would simply suggest you stay real close and connected to this group and follow what people are doing and suggesting, and START ALL OF YOU CHELATING. ------- Even if they try to ask at the school, who cares about what they may think of your " religious preferences " and the reasons behind them.... JUST DO IT! You are fighting for your kids' very wqellbeing and/or survival here. Another big thing I have learned is NOT to bother trying to convince people and doctors that do not want to be convinced. It just saps your energy and wastes precious time, meanwhile causing one to doubt oneself. Very sad, but true. ~inga _________ on 10/26/04 2:25 PM, bizzymama@... at bizzymama@... wrote: > > Hi! > I have 2 boys ages 6 and 3. > 6 yr old has Asperger's/ADHD/ODD/tics and poss. JRA > 3 yr old has PDD/ADHD/ODD > My husband has PDD and ADHD on his side, none on mine. I can't help that > with my history and his genes together created our boys problems... > I have been double vaccinated in my life b/c school lost immunization > records and forced to get them all repeated at the age of 12. I suffered > with severe migraines following that and ever since then. > It was discovered during early school years age 5 that I am blind in 1 eye > which I would not be surprised is linked to the before school vaccinations, > I have severe Fibromyalgia, muscle spasms, hyper & hypothyroidism, > peripheral neuropathy, possible neutrophilia-dr ordered repeat blood work, > degenerative disc disease, several herniated discs w/o accident or injury to > my spine, and have had many problems while breastfeeding like mastitis, even > had a lump removed last year that was cultered and had a bacteria in in > called " acinobacter baumanii " . > My former home of 8 yrs had been positive for unusually high levels of toxic > molds; Aspergillus, Cladisporium, Paecilomyces, Penicillium, Moniliacceae, > Epicoccum. > The house was on a bay where the tide brought water into our home. I was > also exposed during the remediation process to ensure it was done properly. > > I also broke numerous mercury thermometers while shaking them down in the > same room as both children before I learned of the dangers-ignorantly wiped > up, even vacuumed spillage, apparently releasing more into the air. > > My husband worked for an environmental division where he was exposed to high > levels of Mercury (and I visited) although he feels he wasn't affected. My > illnesses did not come on until 6 mos after our marriage. (no pun intended) > > I've been to several dr's for my condition but none will even hear my > theory on the vax. > > My boys were vaxed until I became aware and will have to battle it out with > the school districts when they realize how behind they are on their vax, > that's how it works in my state, religious and medical excempts only, no dr > will sign off for med exempt (perhaps DAN! dr will?) and so I will have to > go before each principle and request a religious vax exemption. (they r not > supposed to ask what religion by law) > > They take several meds including ADDERAL XR, RISPERDAL, CLONIDINE, ZOLOFT > and they are both on the FEINGOLD diet since august. > > My 6 yr old's school has suggested that if he has another violent outbreak > that they will call me, then an ambulance to have him admitted to a > psychiatric hosp for eval over a period of days with med adjustments, etc. > (Usually he runs b/c of a smell or noise and gets violent when someone tries > to ouch him, restrain him, etc.) > I found a DAN! dr. they are extremely expensive and cannot afford it for > myself at this time b/c I am bringing both of my boys there for the first > time this week. > > I was wondering if there was any advice as to what to ask them for first, > what I can do perhaps on my own for myself, and if anyone has had a good > result with their ASD child using a DAN! dr. > the first appointment consists of meeting with the physicians' asst for > 60-90 mins each, their blood drawn, then meeting with a nutritionist to get > started until the labs send back their results which then they will make > adjustments.... > I want to make the most of this appt as I don't know how often we'll be able > to get there, I borrowed against my life insurance to get my boys into this > office as I am really hopeful that these dr.'s will listen and not rule out > my opinions. The reason why I'm saying that is to explain how desperate I am > to get to the root cause and stop increasing their meds that don't really > help in the first place. > > Any help/advice will be greatly appreciated. > thanks! > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 thank you Inga. I am going to dedicate every minute I can to reading all the great info on this list. As for the school, yes that's what I have to do and hopefully they will comply, I gread the day simply out of fear they won't. The doctors told me it was THE LAW when they insisted on vaccinating and refused to give single dose vaccinations, I did find one that will do MMR for my 3 yr old in seperate doses, but first I'm going to educate myself as to whether he needs it or not. thanks again! Carol Re: [ ] going to DAN! Dr. and more.... > > I think you are taking the right steps by getting involved with this > group. > > > Following Andy's protocol, I am finally getting better from some pretty > severe mercury poisoning. I almost died. > > SOunds to me like you already know what is at the bottom of a lot, if nopt > all of your problems. > > WHereas I can not help you with the DAN doctor, I would simply suggest you > stay real close and connected to this group and follow what people are > doing > and suggesting, and START ALL OF YOU CHELATING. > ------- > > Even if they try to ask at the school, who cares about what they may think > of your " religious preferences " and the reasons behind them.... JUST DO > IT! > You are fighting for your kids' very wqellbeing and/or survival here. > > Another big thing I have learned is NOT to bother trying to convince > people > and doctors that do not want to be convinced. It just saps your energy and > wastes precious time, meanwhile causing one to doubt oneself. Very sad, > but > true. > > ~inga > > > > > > _________ > > > on 10/26/04 2:25 PM, bizzymama@... at > bizzymama@... > wrote: > >> >> Hi! >> I have 2 boys ages 6 and 3. >> 6 yr old has Asperger's/ADHD/ODD/tics and poss. JRA >> 3 yr old has PDD/ADHD/ODD >> My husband has PDD and ADHD on his side, none on mine. I can't help that >> with my history and his genes together created our boys problems... >> I have been double vaccinated in my life b/c school lost immunization >> records and forced to get them all repeated at the age of 12. I suffered >> with severe migraines following that and ever since then. >> It was discovered during early school years age 5 that I am blind in 1 >> eye >> which I would not be surprised is linked to the before school >> vaccinations, >> I have severe Fibromyalgia, muscle spasms, hyper & hypothyroidism, >> peripheral neuropathy, possible neutrophilia-dr ordered repeat blood >> work, >> degenerative disc disease, several herniated discs w/o accident or injury >> to >> my spine, and have had many problems while breastfeeding like mastitis, >> even >> had a lump removed last year that was cultered and had a bacteria in in >> called " acinobacter baumanii " . >> My former home of 8 yrs had been positive for unusually high levels of >> toxic >> molds; Aspergillus, Cladisporium, Paecilomyces, Penicillium, >> Moniliacceae, >> Epicoccum. >> The house was on a bay where the tide brought water into our home. I was >> also exposed during the remediation process to ensure it was done >> properly. >> >> I also broke numerous mercury thermometers while shaking them down in the >> same room as both children before I learned of the dangers-ignorantly >> wiped >> up, even vacuumed spillage, apparently releasing more into the air. >> >> My husband worked for an environmental division where he was exposed to >> high >> levels of Mercury (and I visited) although he feels he wasn't affected. >> My >> illnesses did not come on until 6 mos after our marriage. (no pun >> intended) >> >> I've been to several dr's for my condition but none will even hear my >> theory on the vax. >> >> My boys were vaxed until I became aware and will have to battle it out >> with >> the school districts when they realize how behind they are on their vax, >> that's how it works in my state, religious and medical excempts only, no >> dr >> will sign off for med exempt (perhaps DAN! dr will?) and so I will have >> to >> go before each principle and request a religious vax exemption. (they r >> not >> supposed to ask what religion by law) >> >> They take several meds including ADDERAL XR, RISPERDAL, CLONIDINE, ZOLOFT >> and they are both on the FEINGOLD diet since august. >> >> My 6 yr old's school has suggested that if he has another violent >> outbreak >> that they will call me, then an ambulance to have him admitted to a >> psychiatric hosp for eval over a period of days with med adjustments, >> etc. >> (Usually he runs b/c of a smell or noise and gets violent when someone >> tries >> to ouch him, restrain him, etc.) >> I found a DAN! dr. they are extremely expensive and cannot afford it for >> myself at this time b/c I am bringing both of my boys there for the first >> time this week. >> >> I was wondering if there was any advice as to what to ask them for first, >> what I can do perhaps on my own for myself, and if anyone has had a good >> result with their ASD child using a DAN! dr. >> the first appointment consists of meeting with the physicians' asst for >> 60-90 mins each, their blood drawn, then meeting with a nutritionist to >> get >> started until the labs send back their results which then they will make >> adjustments.... >> I want to make the most of this appt as I don't know how often we'll be >> able >> to get there, I borrowed against my life insurance to get my boys into >> this >> office as I am really hopeful that these dr.'s will listen and not rule >> out >> my opinions. The reason why I'm saying that is to explain how desperate I >> am >> to get to the root cause and stop increasing their meds that don't really >> help in the first place. >> >> Any help/advice will be greatly appreciated. >> thanks! >> >> >> >> >> >> ======================================================= >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 > Hi! > I have 2 boys ages 6 and 3. > 6 yr old has Asperger's/ADHD/ODD/tics and poss. JRA > 3 yr old has PDD/ADHD/ODD > My husband has PDD and ADHD on his side, none on mine. I can't help that > with my history and his genes together created our boys problems... > I have been double vaccinated in my life b/c school lost immunization > records and forced to get them all repeated at the age of 12. I suffered > with severe migraines following that and ever since then. > It was discovered during early school years age 5 that I am blind in 1 eye > which I would not be surprised is linked to the before school vaccinations, > I have severe Fibromyalgia, muscle spasms, hyper & hypothyroidism, > peripheral neuropathy, possible neutrophilia-dr ordered repeat blood work, > degenerative disc disease, several herniated discs w/o accident or injury to > my spine, and have had many problems while breastfeeding like mastitis, even > had a lump removed last year that was cultered and had a bacteria in in > called " acinobacter baumanii " . > My former home of 8 yrs had been positive for unusually high levels of toxic > molds; Aspergillus, Cladisporium, Paecilomyces, Penicillium, Moniliacceae, > Epicoccum. > The house was on a bay where the tide brought water into our home. I was > also exposed during the remediation process to ensure it was done properly. > > I also broke numerous mercury thermometers while shaking them down in the > same room as both children before I learned of the dangers- ignorantly wiped > up, even vacuumed spillage, apparently releasing more into the air. > > My husband worked for an environmental division where he was exposed to high > levels of Mercury (and I visited) although he feels he wasn't affected. My > illnesses did not come on until 6 mos after our marriage. (no pun intended) > > I've been to several dr's for my condition but none will even hear my > theory on the vax. > > My boys were vaxed until I became aware and will have to battle it out with > the school districts when they realize how behind they are on their vax, > that's how it works in my state, religious and medical excempts only, no dr > will sign off for med exempt (perhaps DAN! dr will?) maybe -- and there are a few " enlightened " doctors around--- probably worth keeping an ear to the ground -- and do a little networking when you can.... > and so I will have to > go before each principle and request a religious vax exemption. (they r not > supposed to ask what religion by law) I hope you have checked the laws in your state. Again, support groups in your area can be VERY helpful. Check with autism groups, anti-vaccine parents groups, etc. (Ask if you need help finding some). > > They take several meds including ADDERAL XR, RISPERDAL, CLONIDINE, ZOLOFT > and they are both on the FEINGOLD diet since august. > > My 6 yr old's school has suggested that if he has another violent outbreak > that they will call me, then an ambulance to have him admitted to a > psychiatric hosp for eval over a period of days with med adjustments, etc. > (Usually he runs b/c of a smell or noise and gets violent when someone tries > to ouch him, restrain him, etc.) That does not sound like his school is providing an adequate environment for him. I'm sorry I don't know more about what steps you need to take to address this situation....... > I found a DAN! dr. they are extremely expensive and cannot afford it for > myself at this time b/c I am bringing both of my boys there for the first > time this week. > > I was wondering if there was any advice as to what to ask them for first, > what I can do perhaps on my own for myself, and if anyone has had a good > result with their ASD child using a DAN! dr. Many people have had good results. Others have not. There is a lot you can do on your own if you have some time and energy, and the enthusiasm for it. I would suggest reading books http://home.earthlink.net/~moriam/Books_about_autism.html I recommend in particular " Children with Starving Brains " , and " Mercury Free " and " What Your Doctor may NOT Tell You About Children's Vaccinations " . And you could order a hair test for yourself: http://home.earthlink.net/~moriam/HOW_TO_hair_test.html For you, a big issue is whether you have any amalgam/silver fillings. If so, you cannot do any mercury detox on yourself until you have these fillings replaced. So it can be a big issue. > the first appointment consists of meeting with the physicians' asst for > 60-90 mins each, their blood drawn, then meeting with a nutritionist to get > started until the labs send back their results which then they will make > adjustments.... > I want to make the most of this appt I think I already am too late for your appointment.... > as I don't know how often we'll be able > to get there, I borrowed against my life insurance to get my boys into this > office as I am really hopeful that these dr.'s will listen and not rule out > my opinions. The reason why I'm saying that is to explain how desperate I am > to get to the root cause and stop increasing their meds that don't really > help in the first place. > > Any help/advice will be greatly appreciated. > thanks! good wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Thank you! I ordered 2 books today, 1 being Andy's of course. I can't wait to read it to understand better. I had a satisfying meeting w/my sons school district and they are going to make the changes needed and are apparently educating themselves on Asperger's in an enormous way! -no more hospital talk-they 'get it' now that the rages come from the sensory issues. As for the Dan dr. I am getting conflicting opinions between Andy's protocol and theirs. I am veering more towards Andy's as I did not give them the DMSA challenge test today like I was going to the way the doc recommended. anyway, I just wanted to say thank you. The links were great too. Carol [ ] Re: going to DAN! Dr. and more.... > > > >> Hi! >> I have 2 boys ages 6 and 3. >> 6 yr old has Asperger's/ADHD/ODD/tics and poss. JRA >> 3 yr old has PDD/ADHD/ODD >> My husband has PDD and ADHD on his side, none on mine. I can't > help that >> with my history and his genes together created our boys problems... >> I have been double vaccinated in my life b/c school lost > immunization >> records and forced to get them all repeated at the age of 12. I > suffered >> with severe migraines following that and ever since then. >> It was discovered during early school years age 5 that I am blind > in 1 eye >> which I would not be surprised is linked to the before school > vaccinations, >> I have severe Fibromyalgia, muscle spasms, hyper & hypothyroidism, >> peripheral neuropathy, possible neutrophilia-dr ordered repeat > blood work, >> degenerative disc disease, several herniated discs w/o accident or > injury to >> my spine, and have had many problems while breastfeeding like > mastitis, even >> had a lump removed last year that was cultered and had a bacteria > in in >> called " acinobacter baumanii " . >> My former home of 8 yrs had been positive for unusually high > levels of toxic >> molds; Aspergillus, Cladisporium, Paecilomyces, Penicillium, > Moniliacceae, >> Epicoccum. >> The house was on a bay where the tide brought water into our > home. I was >> also exposed during the remediation process to ensure it was done > properly. >> >> I also broke numerous mercury thermometers while shaking them down > in the >> same room as both children before I learned of the dangers- > ignorantly wiped >> up, even vacuumed spillage, apparently releasing more into the air. >> >> My husband worked for an environmental division where he was > exposed to high >> levels of Mercury (and I visited) although he feels he wasn't > affected. My >> illnesses did not come on until 6 mos after our marriage. (no pun > intended) >> >> I've been to several dr's for my condition but none will even > hear my >> theory on the vax. >> >> My boys were vaxed until I became aware and will have to battle it > out with >> the school districts when they realize how behind they are on > their vax, >> that's how it works in my state, religious and medical excempts > only, no dr >> will sign off for med exempt (perhaps DAN! dr will?) > > maybe -- and there are a few " enlightened " doctors around--- > probably worth keeping an ear to the ground -- and do a little > networking when you can.... > > >> and so I will have to >> go before each principle and request a religious vax exemption. > (they r not >> supposed to ask what religion by law) > > I hope you have checked the laws in your state. Again, support > groups in your area can be VERY helpful. > Check with autism groups, anti-vaccine parents groups, etc. > (Ask if you need help finding some). > >> >> They take several meds including ADDERAL XR, RISPERDAL, CLONIDINE, > ZOLOFT >> and they are both on the FEINGOLD diet since august. >> >> My 6 yr old's school has suggested that if he has another violent > outbreak >> that they will call me, then an ambulance to have him admitted to > a >> psychiatric hosp for eval over a period of days with med > adjustments, etc. >> (Usually he runs b/c of a smell or noise and gets violent when > someone tries >> to ouch him, restrain him, etc.) > > That does not sound like his school is providing an adequate > environment for him. I'm sorry I don't know more about what > steps you need to take to address this situation....... > > >> I found a DAN! dr. they are extremely expensive and cannot afford > it for >> myself at this time b/c I am bringing both of my boys there for > the first >> time this week. >> >> I was wondering if there was any advice as to what to ask them for > first, >> what I can do perhaps on my own for myself, and if anyone has had > a good >> result with their ASD child using a DAN! dr. > > Many people have had good results. Others have not. > There is a lot you can do on your own if you have some > time and energy, and the enthusiasm for it. > I would suggest reading books > http://home.earthlink.net/~moriam/Books_about_autism.html > I recommend in particular " Children with Starving Brains " , > and " Mercury Free " and " What Your Doctor may NOT Tell You > About Children's Vaccinations " . > > And you could order a hair test for yourself: > http://home.earthlink.net/~moriam/HOW_TO_hair_test.html > > For you, a big issue is whether you have any amalgam/silver > fillings. If so, you cannot do any mercury detox on yourself > until you have these fillings replaced. So it can be a > big issue. > > >> the first appointment consists of meeting with the physicians' > asst for >> 60-90 mins each, their blood drawn, then meeting with a > nutritionist to get >> started until the labs send back their results which then they > will make >> adjustments.... >> I want to make the most of this appt > > I think I already am too late for your appointment.... > > >> as I don't know how often we'll be able >> to get there, I borrowed against my life insurance to get my boys > into this >> office as I am really hopeful that these dr.'s will listen and not > rule out >> my opinions. The reason why I'm saying that is to explain how > desperate I am >> to get to the root cause and stop increasing their meds that don't > really >> help in the first place. >> >> Any help/advice will be greatly appreciated. >> thanks! > > good wishes, > Moria > > > > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
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