Re: Lynlorraine and everyone - Hope

[Guest guest]

Lynlorraine -

While I'm sincerely hoping that you're heading into remission(that would be so great), I hope that you treasure every single moment of the good feelings that you're experiencing right now. I believe that all of us would feel better about our lives if we could love the little times when we feel a bit better instead of putting all of our focus on the times that are rough or questioning how long the good times will last.

You talked about not knowing what flipped the switches for you. It got me thinking about how that is what we all need to keep hoping for....that someday somehow we will stumble upon the funky little switch that just happens to be the right one for each of us as individuals. I'm beginning to think that there is no single solution that will take care of everyone here. Rather, given that our body chemistries are each so unique, that it instead will be like just happening to walk on a single grain of sand in the midst of a huge beach. The only way for that to happen is to make sure that we stay out on the beach and not give up hope. Love - Barbaralynlorraine wrote:

Dear Barbara,I know you are kidding about the blood...but It just is the biggest puzzle to solve about what "switches are flipped". I do wish I had adthe medical training to understand the working of the various nervous systems. I'd give anything to know so I could tell the world. I want to very very much for everyone here to have this relief no matter how short or long in duration. I found myself hearing my inner voice all day long even as others were talking. It was saying, Wow, is this real? Just like when it recurred and I was having a time with wondering if I was imagining or dreaming that it was back to. Thank you for your prayers and mine are always with everyone in my meditations. We will all see. If one day is all that is a giant gift I will gladly accept with extreme gratitude. I still at this moment am

inwardly checking over my body and amazed at the missing symptoms. Tomorrow is a new day. If they are back I'll deal with it as we all must. There really isn't a choice...you just do it. The emotions go up and down like a roller coast. Before I went into remission in 2000 I had many "false starts" but I didn't know that was what they were. If I had not gone into remission they would have been like the normal up and down of intensity of pain that I experienced probably similar to other's good and bad days and flares. But one of those times it just died out. The last few mornings when I wake up I lay frozen in place taking inventory afraid to move to wake any part up. Well I''ve gone on long enough.Today has been a good day. My best to you with love, LynBARBARA TORREY wrote:> Gee, Lynlorraine. Wouldn't another remission be fabulous way to start off the New Year!??!?!? Keep us posted and send each us a

half-pint of your bloodf, wouldja? All kidding aside, I'll be prayin that whatever you're doing leads you in the right direction. Barbara