Re: Stress makes it worse, yeh?

[Guest guest]

Hey... cactus, walrus, pee-pee.  LOL.  Yes, I made it to the end of the post.

If you don't mind my asking too personal a question, what was the unethical

conduct? Just curious. Yeah, they tend to band together like that and can make

up some $hit at the last minute to do some CYA.

Well, and what sense does it make for a doctor to change your med when it is

working???? Don't fix it if it ain't broke. LOL.

I hope the rheumy docs will accept you as a priority. Of course, they tend to

think that everything except fibro is a priority in this world.

Well, keep in touch.

love and hugs,

Debra V.

Subject: Stress makes it worse, yeh?

To: Fibromyalgia_Support_Group

Date: Wednesday, April 30, 2008, 8:58 PM

Like I need any more stress in my life. Do any of us? NO!

Filed a complaint against a therapist for unethical conduct.

That was a few months ago, before my troubles with " weenie " Drs peaked.

Well this therapist and her collaborators have issued thier official response to

the

allegations. It is full of exagerations, untruths, and counter allegations of us

engaging in

telphone harrassment against members of their group practice. A total pack of

lies but

pretty dense reading. I may have to hire a lawyer to help us get through it. We

have,I think,

only 10 days to complete and file our response.

Other stress- this one related to the cluster of symptoms we may call " Fibro's

sister " since

I can't find a doc that can tell fibro from a hole in the ground. Yes, I grow

bitter. The PCP I

have now told me not to take flexeril/cyclobenze prine for an extended period of

time. I

asked her " How long? " and she said she was not sure and I should ask the

pharmacist. So I

did. Pharmacist said-big sigh- " well, it is safe for long term use. I have

Fibromyalgia

patients who take it twice a day forever, for muscle stiffness and pain. Then I

have athletes

that just take it if they get a bad spasm they can't work off. " So I called the

health center

and left a mesage for the pcp saying that the flexeril is great stuff, helps

pain better than

Tylenol (DUH) and that the pharmacist said it was safe for long term use. Then I

get a call

from the health center nurse: pcp says, good that flexeril works better than

Tylenol for

pain, keep taking it. But at my next visit she wants to switch me to...what?..

..something the

nurse couldn't pronounce. So I was peaved to say the least.

I did find out that the two top rheumys for fibro in town are accepting PCP

referrals: they

are screening all referrals (which must include all relevant bloodwork, x-rays,

summary of

history of symptoms) and selecting " priority patients only " to go on a 6 week

wait list for

initial consultation. I do not know this PCP so well. She seems competent and

genuinely

wants to find out why I am so sick, But can she pull together a file that

screams " priority

patient " ? Especialy with the " weenie " eval in my medical records. As they don't

just do fibro

but all other rheumy work I suspect there are a lot of RA folks who will present

as higher

priority than me.

Okay, time to end this pity party. My hands feel like they are made of glass and

my feet

feel like I am standing on cactus.

Thank you for your support and caring to anyone who made it all the way to the

end of

this post.

Cactus, walrus, pee-pee,

Cassandra

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[Guest guest]

Cassandra,

I DID make it thru your whole post...lolol....

I wonder if they are switching you from flexeril to robaxin? My pcp

switched me from F to R when I mentioned I was taking 2 flexerils at

a time to stop the spasms. If that is the one, it works really well

and I am finding that if I take that, my neurontin and 2 of the

tylenol arthritis (can't take any other anti-inflams yet), well, I

don't hurt as much. And if I make sure to rub myself down (shoulders,

elbows, neck, hands) with my sombra stuff before I go to bed, I'm

waking up not as achy.

I am also taking probiotics (refrigerated ones, 2 a day) AND have

started taking some liquid vitamins thru Univera (aloe gold and

ageless extra). Too soon to tell how these will affect and/or assist

me in this.....but what the heck? It's worth a shot right?

Darlene

P.S. Sorry about the forms.....what a mess.......

>

> Like I need any more stress in my life. Do any of us? NO!

> Filed a complaint against a therapist for unethical conduct.

> That was a few months ago, before my troubles with " weenie " Drs

peaked.

> Well this therapist and her collaborators have issued thier

official response to the

> allegations. It is full of exagerations, untruths, and counter

allegations of us engaging in

> telphone harrassment against members of their group practice. A

total pack of lies but

> pretty dense reading. I may have to hire a lawyer to help us get

through it. We have,I think,

> only 10 days to complete and file our response.

>

> Other stress- this one related to the cluster of symptoms we may

call " Fibro's sister " since

> I can't find a doc that can tell fibro from a hole in the ground.

Yes, I grow bitter. The PCP I

> have now told me not to take flexeril/cyclobenzeprine for an

extended period of time. I

> asked her " How long? " and she said she was not sure and I should

ask the pharmacist. So I

> did. Pharmacist said-big sigh- " well, it is safe for long term use.

I have Fibromyalgia

> patients who take it twice a day forever, for muscle stiffness and

pain. Then I have athletes

> that just take it if they get a bad spasm they can't work off. " So

I called the health center

> and left a mesage for the pcp saying that the flexeril is great

stuff, helps pain better than

> Tylenol (DUH) and that the pharmacist said it was safe for long

term use. Then I get a call

> from the health center nurse: pcp says, good that flexeril works

better than Tylenol for

> pain, keep taking it. But at my next visit she wants to switch me

to...what?...something the

> nurse couldn't pronounce. So I was peaved to say the least.

>

> I did find out that the two top rheumys for fibro in town are

accepting PCP referrals: they

> are screening all referrals (which must include all relevant

bloodwork, x-rays, summary of

> history of symptoms) and selecting " priority patients only " to go

on a 6 week wait list for

> initial consultation. I do not know this PCP so well. She seems

competent and genuinely

> wants to find out why I am so sick, But can she pull together a

file that screams " priority

> patient " ? Especialy with the " weenie " eval in my medical records.

As they don't just do fibro

> but all other rheumy work I suspect there are a lot of RA folks who

will present as higher

> priority than me.

>

> Okay, time to end this pity party. My hands feel like they are

made of glass and my feet

> feel like I am standing on cactus.

>

> Thank you for your support and caring to anyone who made it all the

way to the end of

> this post.

>

> Cactus, walrus, pee-pee,

> Cassandra

>