Guest guest Posted September 28, 2002 Report Share Posted September 28, 2002 Hi , Thanks for your reply - it does sound like there are similarities between Finlay & . How has Finlay been? Does he feed OK? When was he diagnosed? We are currently being referred to Asunta (not sure of her second name) the chief endrocronologist at St s in Tooting (where was born). I've heard that Asunta studied and worked with Dr Stanhope and shares his views, so maybe we will not be referred to him. I'll let you know. It's quite early days for us just yet. It's good to hear that you are also experiencing the opposite end of the spectrum now with big boy Logan! bye for now Rae > Hi Rae, > Really enjoyed looking at 's pictures - my son Finlay - (nearly > 3) was 3lbs 5oz at birth - born at 38 weeks by c section - sounds > like we had similar obstetric histories! Ive recently had baby > number 2 who was a whopping 8lbs 6oz - so a completely different > experience!!! > We live in New Zealand but I am from Scotland (Fife) so I'm always > interested to read about the care and treatment of RSS kids in the UK > just incase we ever end up back over there! > Do you see Dr Stanhope in London? > Anyway welcome to our group > > Mum to Finlay (nearly 3) 83cms, 10kgs and Logan (5 months) and almost > as heavy as his big brother!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2002 Report Share Posted September 28, 2002 Hi Helen, Thanks for your reply. We have a feeling that we've been very lucky with 's feeding so far. We've built up the amount over time and I don;t think we'll try to increase the milk now she is starting solids. We're still feeding her 6x a day (7.30/10.30/14.00/16.30/19.30/23.00) and use fast flow teats. She has Gaviscon to help with her reflux and that just blocked up all the smaller teats! She's only on fruit & veg so far but seems to take a reasonable amount (with her being my first, it's difficult to know what is a good or little amount!. Ho wmuch does Mattius eat? However, I have to say that some days it is a real struggle to get her to take more than 3oz at each feed - yesterday was a prime exmaple - it took over an hour for each bottle of constant struggle and irritability, after which she had still left 1oz and would not take a drop more! We're just keeping our fingers crossed that she carries on with more good days than bad! Bye for now Rae p.s. I love Mattius's photos - particularly the one with the long hair ....! > > Hi everyone, > > > > I am mum to , who is 6 months old and recently diagnosed as > RSS. > > I'd like to say hi and let you know that I am reading the messages > on > > the board, and look forward to posting again in the future. > > > > 's history until now: she was born at 35 weeks weighing 3lbs > 3oz > > (1046g) and measured 36cm (14 in) Severe asymmetric IUGR had been > > picked up on ultrasound and we were having regular growth scans > until > > she was delivered by c-section. All dopplers were fine. When she was > > born she had very little body fat, and a large head in comparison to > > her body. > > > > She has been growing well, altho is way off the growth charts. She > is > > now 8lbs 13 oz (4050g) and measures 53.5cm (21in). > > > > She has been diagnosed with RSS as she fulfills many of the > > characteristics, namely normal head size, reduced weight and height, > > broad forehead, small chin, blue sclera, dilation of the left > > ventricle, low set ears, curved little fingers and triangular face. > > You can see some photos of her on http://www.pidcock.co.uk/emily > > > > She seems to feed OK so far - she has 5oz of milk 6x a day and is > > eating two solid meals of fruit or veg. Some feed times are a real > > fight, but this is probably normal with any baby. She sweat a lot at > > night, but her blood sugar levels were OK at birth. This is somthing > > that she will be tested for soon when we meet with the > endrocrinologist. > > > > I would love to hear other people's stories and also to know if > there > > are any of you in the UK (altho I realise this is a predominantly US > > site). > > > > Bye for now > > Rae & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Introducing I just thought I'd take a quick minute and put up a couple pictures of . Now that we're home, we're trying to get settled into some semblance of a routine - which will change yet again next week when Jakob goes back to school. http://f1.pg.photos.yahoo.com/ph/tsmclaughlin/album?.tok=ph_f3lBB0wfSYC8F&.dir=/\ 92c2&.src=ph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 What a cutie!! He looks so healthy. Another advantage to c-section is a perfect head!!! Routine? Forget about it! LOL! Congratulations again! Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Congratulations . is beautiful!!! Louisa > Introducing > I just thought I'd take a quick minute and put up a couple pictures of . Now that we're home, we're trying to get settled into some semblance of a routine - which will change yet again next week when Jakob goes back to school. > > > http://f1.pg.photos.yahoo.com/ph/tsmclaughlin/album?.tok=ph_f3lBB0wfSY C8F&.dir=/92c2&.src=ph > > > Quote Link to comment Share on other sites More sharing options...
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