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Re: Plantaris/Atypical

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Hi

My daughter Chelsea also had Atypical/plantaris. Also missed by a

good Ponseti doctor. Chelsea had bilateral clubfoot, but only one

was atypical. She was treated with the Ponseti method from 1 week

old. The normal clubfoot responded very well to the Ponseti method -

casting, tenotomy and the Markell shoes, however the atypical (left)

foot was shorter, fatter, and there was a crease in the sole of her

foot. The big toe on her left foot also curled upwards. Her left

foot stayed in the cast, but it wouldn't stay in the Markell shoes.

Her left foot had a strong tendency to relapse. She went through

several sets of serial casts. Finally, when the brace

became available, we started using that and that saved her - it was

the first time I didn't have to wake up several times a night to put

her shoe back on. She had a second double tenotomy after she turned

1, and a three week cast, and she has been in the brace

since then. Dr. Ponseti has the most experience treating atypical

clubfeet at this time. I would definitely suggest that you contact

him. The second tenotomy and the shoes really did the

trick.

Meredith

Mom to Chelsea

1/29/04 BCF

> I was just doing some surfing around on the computer and came

across

> some info on atypical clubfoot and plantaris. These are described

> as short stubby fat feet. Dr. Ponseti's site says that these feet

> freguently slip out of casting even when done by a qualified

doctor.

> Does Tommy have this? He does not have a deep crease along the

> bottom of his foot but there is one above the heel. Dr. Herzenberg

> would know to diagnose this, wouldn't he?

>

>

> Tommy Lee 4/23/04 BL CF

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I agree. You should contact Dr. Ponseti. If it wasn't for this group

I wouldn't have known better. I'm glad I did. We are seeing him on

Monday. Ava's R foot is Atypical. The treatment is much different

then treating normal CF. He has spent the last two years developing

the treatment for this. It hasn't yet gone to print in the

orthopaedic journal so I don't know if many of the Ponseti certified

docs are aware yet. I would definitly seek his opinion.

I can't say we had much trouble so far with the Markell shoes but

like mentioned before they do slip on the Atypical foot. I think she

will need another tenontomy on that foot. The heel doesn't seem like

its down. Well see soon enough. I just could kick myself to have to

put her through this again. I do have a good feeling that it will

work for her this time and be alot less painful.

KK

Livi 01/03

Ava BCF R-AT/DBB 2wks and worthless.

> > I was just doing some surfing around on the computer and came

> across

> > some info on atypical clubfoot and plantaris. These are

described

> > as short stubby fat feet. Dr. Ponseti's site says that these

feet

> > freguently slip out of casting even when done by a qualified

> doctor.

> > Does Tommy have this? He does not have a deep crease along the

> > bottom of his foot but there is one above the heel. Dr.

Herzenberg

> > would know to diagnose this, wouldn't he?

> >

> >

> > Tommy Lee 4/23/04 BL CF

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