new member

[Guest guest]

Phyllis, I am so sorry for what you are going thru! It really is unfair. My

1st suggestion is you HAVE to get a new Dr.! He is pathetic......My 2nd

suggestion is to email me privately if you'd like. I can help you find another

Dr. and can also be very empathetic to what you are going thru as I am in a very

similar situation.

Take Care,

Jill

JillLarion@...

new member

Hi everyone,

I am new to this group and was diagnosed with FMS 4 years ago.

However, the past 6 months have been the worst ever. My hips and

legs are in severe pain and anytime I hold my 11 month old nephew

(who is very tiny) my right arm ends up hurting severely for weeks.

I have also recently started having severe migraines that last up to

a week. It has not been fun. I also have 2 autistic boys and a

husband that is very unsupportive and not only unhelpful, but he

pretty much makes everything worse. My stress level is through the

roof. I went to see a new rheumatologist this week and he started

asking me about my childhood and my marriage and said I was depressed

and prescribed Trazidone. I asked about Lyrica and he pretty much

shook his head and said that only helps with the pain and wouldnt

prescrib it. He pretty much gave me nothing for the pain, just said

that if I get some sleep with the trazadone the pain will get

better. His resident suggested possibly water therapy but he shot

that down too saying try the trazadone first.

I was able to get a handicapp parking sticker, but can not apply for

disability. For the past 13 years I have been a stay at home mom,

doing odd jobs from home (in home daycare for most of the time and

selling avon). None of it comes close to helping with the bills

(especially with two autistic kids) but working outside the home is

impossible for me. The number one reason I am stuck in my marriage

is I have no way to support myself and the kids (even with support

from him).

I am mostly just looking for a supportive group to discuss and vent

with.

Phyllis

[Guest guest]

Hi Phyllis,

I would 2nd the person that said to find a new Dr. You need one that

will support you. I started going to an Internist Dr several years

ago. When my syptoms started to flare up, he suggested a

rhuematologist. The rhue... ran a bunch of tests and I followed up

with the rhue. She basically said that it wasn't arthritis and that my

Internist was doing a good job with the meds he had me on.

What I'm getting at is you really need to find a Dr willing to listen

to you and to be able to try different med/options.

As far as an unsupportive hubby. I was married to one of those. It is

a difficult situation to be in. I can offer a listening ear and cyber

hugs.

Hope you can get on the right track with the pain.

Hugs,

Deb in MN

[Guest guest]

THanks Deb. I am just so doctored out. And nothing has gotten better. Any

tips any of you have, I would greatly appreciate them.

Phyllis

Re: new member

Hi Phyllis,

I would 2nd the person that said to find a new Dr. You need one that

will support you. I started going to an Internist Dr several years

ago. When my syptoms started to flare up, he suggested a

rhuematologist. The rhue... ran a bunch of tests and I followed up

with the rhue. She basically said that it wasn't arthritis and that my

Internist was doing a good job with the meds he had me on.

What I'm getting at is you really need to find a Dr willing to listen

to you and to be able to try different med/options.

As far as an unsupportive hubby. I was married to one of those. It is

a difficult situation to be in. I can offer a listening ear and cyber

hugs.

Hope you can get on the right track with the pain.

Hugs,

Deb in MN

[Guest guest]

I hope this is helpful to you as for applying for disability you said

you cant leave your hubby cause you can not support your self please

apply for SSI for your 2 boys first They will get it very fast with

being atustic my son has asburgers which is a mild form of atusim. once

they are on SSI they will automaticly get a state medical card (some

states you have to go in and apply but every child on SSI gets a state

card). to apply all you have to do is call 18007721213 and have your

kids social security numbers and birth dates and information to prove

who you are. they set up an appt at a time to call you on the phone

they ask a bunch of questions and they send papers in the mail to get

there records it is very easy to apply. after they are approved if you

decided to leave your hubby then you call social security to tell them

and they raise the checks to an amount that does not count your hubbys

income. once you are out of the house you can then apply for SSI for

your self.

[Guest guest]

Sharon,

She's been a stay-at-home-mom for 13 years....she has to have worked at least 4

years full time out of the last 10.

Also, with SSI no one in the home can make over around $800/mo (depending on the

state). Also, you can't have anything worth over $3,000. Including cars,

stocks and bonds, etc. Does not include your home though.

I have spent the last 6 months trying to figure this out since I'm in a similar

situation........please tell me if I'm missing something! I even asked one of

the social security ladies I talked with if basically SAHM's were " screwed " if

they became disabled while taking care of their children. She said, " Yes " .

Jill

new member

Hi everyone,

I am new to this group and was diagnosed with FMS 4 years ago.

However, the past 6 months have been the worst ever. My hips and

legs are in severe pain and anytime I hold my 11 month old nephew

(who is very tiny) my right arm ends up hurting severely for weeks.

I have also recently started having severe migraines that last up to

a week. It has not been fun. I also have 2 autistic boys and a

husband that is very unsupportive and not only unhelpful, but he

pretty much makes everything worse. My stress level is through the

roof. I went to see a new rheumatologist this week and he started

asking me about my childhood and my marriage and said I was depressed

and prescribed Trazidone. I asked about Lyrica and he pretty much

shook his head and said that only helps with the pain and wouldnt

prescrib it. He pretty much gave me nothing for the pain, just said

that if I get some sleep with the trazadone the pain will get

better. His resident suggested possibly water therapy but he shot

that down too saying try the trazadone first.

I was able to get a handicapp parking sticker, but can not apply for

disability. For the past 13 years I have been a stay at home mom,

doing odd jobs from home (in home daycare for most of the time and

selling avon). None of it comes close to helping with the bills

(especially with two autistic kids) but working outside the home is

impossible for me. The number one reason I am stuck in my marriage

is I have no way to support myself and the kids (even with support

from him).

I am mostly just looking for a supportive group to discuss and vent

with.

Phyllis

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Phyllis,

I would like to welcome you to the group. I would also like to tell

you that I am pretty new here also and venting is something that we

all do.

I know how it feels to hurt when you hold a baby. When my grandson

was a baby I couldn't hold him either, it made my pain even worse and

I got to the point that I just couldn't hold him at all and that just

about killed me. I have learned how long I can hold him and when to

put him down. Now he is old enough that he doesn't want to be held

all the time and he has also learned that when he wants me to hold

him that I am going to be sitting down and he sits on my lap.

As far as your husband goes, I have the same problem. My husband and

kids are not helpful at all. As a matter of fact I have been on

strike for a week now. I don't cook or clean at all. The only

laundry that I do is my own and I have even taken 6 bath towels and

that is what I use, when they get dirty I will wash them only.

Needless to say my house is a disaster and I also run a business out

of my home so I just meet my customers elsewhere to give them their

products.

I don't take anything from the doctors anymore because everything

they gave me made me really tired all the time and I take care of my

grandson and my great-nephew during the week and I can't be tired all

the time. I take all natural products that actually give me energy

because if I just sit all day that makes the pain worse. I do have

times that all I can do is sit but then I live on my heating pad and

massager.

I don't understand why your doctor wouldn't give you the Lyrica or

the therapy. I went through therapy twice and the second time they

put me in the heated pool and boy did that help out.

The only thing I can say is see if you can be referred to a different

doctor and see if that helps. I know I have been to several doctors

about this and have been told different things by each doctor.

That's all I can say. I'm sorry you are having such a hard time with

the pain, I know how it can be, I'm sure everyone in this group knows

how you feel.

I hope you get to feeling better.

>

> Hi everyone,

>

> I am new to this group and was diagnosed with FMS 4 years ago.

> However, the past 6 months have been the worst ever. My hips and

> legs are in severe pain and anytime I hold my 11 month old nephew

> (who is very tiny) my right arm ends up hurting severely for

weeks.

> I have also recently started having severe migraines that last up

to

> a week. It has not been fun. I also have 2 autistic boys and a

> husband that is very unsupportive and not only unhelpful, but he

> pretty much makes everything worse. My stress level is through the

> roof. I went to see a new rheumatologist this week and he started

> asking me about my childhood and my marriage and said I was

depressed

> and prescribed Trazidone. I asked about Lyrica and he pretty much

> shook his head and said that only helps with the pain and wouldnt

> prescrib it. He pretty much gave me nothing for the pain, just

said

> that if I get some sleep with the trazadone the pain will get

> better. His resident suggested possibly water therapy but he shot

> that down too saying try the trazadone first.

>

> I was able to get a handicapp parking sticker, but can not apply

for

> disability. For the past 13 years I have been a stay at home mom,

> doing odd jobs from home (in home daycare for most of the time and

> selling avon). None of it comes close to helping with the bills

> (especially with two autistic kids) but working outside the home is

> impossible for me. The number one reason I am stuck in my marriage

> is I have no way to support myself and the kids (even with support

> from him).

>

> I am mostly just looking for a supportive group to discuss and vent

> with.

>

> Phyllis

>

[Guest guest]

In a message dated 4/17/2008 1:30:50 P.M. Pacific Daylight Time,

avon2251w@... writes:

I was able to get a handicapp parking sticker, but can not apply for

disability. For the past 13 years I have been a stay at home mom,

doing odd jobs from home (in home daycare for most of the time and

selling avon). None of it comes close to helping with the bills

(especially with two autistic kids) but working outside the home is

impossible for me. The number one reason I am stuck in my marriage

is I have no way to support myself and the kids (even with support

from him).

Hi, Phyllis, and welcome to the best group that I have been able to find for

fibro and chronic pain. I have been dx'd with fibro for about 12 years, but

had it most of my life. Having two autistic boys, you should qualify for

SSI for them. Have you tried applying for that? Also, you would qualify for

Medical or whatever medicaid your state has and some supplemental income. It

might sound strange, but I have found and so have friends and family that

Head On helps with headaches...even migraines.

I'm sorry that you don't have a supportive husband, but at least you have

found the right group to help support you. Again, I welcome you here very

much!!!!

Love and gentle hugs,

Debi/Central Cal.-55

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Spam, unwanted mail, and even viruses.

Copy and paste forwards into a new email and place parenthesis around the

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**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

Phyllis, welcome to the group. You are going through lots of trials. I know

what fibro can do to limit our options in life. It truly does. When some

people would just say " get out of the situation " , it is not that easy with a

disease like this one.

I also have a little boy diagnosed with autism. He is almost 6 and was put in

special ed. He does not fit the traditional autism mold though. But he is on

the " autism spectrum " with what they call " PDD " .

Anyway, glad you are here. Vent anytime.

hugs,

Debra V.

Subject: new member

To: Fibromyalgia_Support_Group

Date: Thursday, April 17, 2008, 11:20 AM

Hi everyone,

I am new to this group and was diagnosed with FMS 4 years ago.

However, the past 6 months have been the worst ever. My hips and

legs are in severe pain and anytime I hold my 11 month old nephew

(who is very tiny) my right arm ends up hurting severely for weeks.

I have also recently started having severe migraines that last up to

a week. It has not been fun. I also have 2 autistic boys and a

husband that is very unsupportive and not only unhelpful, but he

pretty much makes everything worse. My stress level is through the

roof. I went to see a new rheumatologist this week and he started

asking me about my childhood and my marriage and said I was depressed

and prescribed Trazidone. I asked about Lyrica and he pretty much

shook his head and said that only helps with the pain and wouldnt

prescrib it. He pretty much gave me nothing for the pain, just said

that if I get some sleep with the trazadone the pain will get

better. His resident suggested possibly water therapy but he shot

that down too saying try the trazadone first.

I was able to get a handicapp parking sticker, but can not apply for

disability. For the past 13 years I have been a stay at home mom,

doing odd jobs from home (in home daycare for most of the time and

selling avon). None of it comes close to helping with the bills

(especially with two autistic kids) but working outside the home is

impossible for me. The number one reason I am stuck in my marriage

is I have no way to support myself and the kids (even with support

from him).

I am mostly just looking for a supportive group to discuss and vent

with.

Phyllis

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Phyllis,

Welcome to our family!! My you have your hands full don't you. I'm glad you

found us...this is a great place to rant and rave and you get lots of support

too!!!

Hugs,

/Mi

new member

Hi everyone,

I am new to this group and was diagnosed with FMS 4 years ago.

However, the past 6 months have been the worst ever. My hips and

legs are in severe pain and anytime I hold my 11 month old nephew

(who is very tiny) my right arm ends up hurting severely for weeks.

I have also recently started having severe migraines that last up to

a week. It has not been fun. I also have 2 autistic boys and a

husband that is very unsupportive and not only unhelpful, but he

pretty much makes everything worse. My stress level is through the

roof. I went to see a new rheumatologist this week and he started

asking me about my childhood and my marriage and said I was depressed

and prescribed Trazidone. I asked about Lyrica and he pretty much

shook his head and said that only helps with the pain and wouldnt

prescrib it. He pretty much gave me nothing for the pain, just said

that if I get some sleep with the trazadone the pain will get

better. His resident suggested possibly water therapy but he shot

that down too saying try the trazadone first.

I was able to get a handicapp parking sticker, but can not apply for

disability. For the past 13 years I have been a stay at home mom,

doing odd jobs from home (in home daycare for most of the time and

selling avon). None of it comes close to helping with the bills

(especially with two autistic kids) but working outside the home is

impossible for me. The number one reason I am stuck in my marriage

is I have no way to support myself and the kids (even with support

from him).

I am mostly just looking for a supportive group to discuss and vent

with.

Phyllis

[Guest guest]

I'm new with the group plus recently diagnosed with fibromyalgia. Been

having pain since July but thought it was from my arthritic hip but

didn't go away after hip replacement. Took many tests, doctors and my

GP and I searching for an answer. We first discovered I had severe RLS

but then had pain after just doing simple things in yard on one of our

spring days. Went into see GP and we both at the same time

said " fibromyalgia " . She did the tender point check and I have 15 of

the 18 with more tenderness on the left side. I'm a retired nurse (not

by choice) and had to know everything I could and my GP knew I would

start searching. Have found some articles and sites on web but decided

to try joining a group to find out more and have support. If anyone

knows of web sites for family and friends to understand, please let me

know.

[Guest guest]

Hi Folks,

I'm a new member and found this group via Google. I want to thank the

creators for the wealth of information on PSC that was organized for

us. I was diagnosed in the past 3 months with both PSC and NASH. I

know that having both increases my odds of developing Cirrohosis and

other complications. My reading on PSC seems to consistently indicated

that most people develop cirrhosis and, then, liver failure within 10

years. Am I reading the literature correctly? And. I know and my

doctors confirmed that I am at higher risk in that I have two separate

diseases that my odds of developing complications are even higher.

But. Is there a typical course in terms of progression with PSC?

Thanks for any help you can give and I look forward to the day when I

can give something back to the group.

Steve

[Guest guest]

Thanks Ian. Your info is very helpful in that there appears to be

no " typical " progression.

> >

> > Hi Folks,

> > I'm a new member and found this group via Google. I want to thank

the

> > creators for the wealth of information on PSC that was organized

for

> > us. I was diagnosed in the past 3 months with both PSC and NASH. I

> > know that having both increases my odds of developing Cirrohosis

and

> > other complications. My reading on PSC seems to consistently

indicated

> > that most people develop cirrhosis and, then, liver failure

within 10

> > years. Am I reading the literature correctly? And. I know and my

> > doctors confirmed that I am at higher risk in that I have two

separate

> > diseases that my odds of developing complications are even higher.

> > But. Is there a typical course in terms of progression with PSC?

> > Thanks for any help you can give and I look forward to the day

when I

> > can give something back to the group.

> >

> > Steve

> >

> >

> >

>

>

>

> --

> Ian Cribb former P.Eng. (resigned in good standing)

>

>