Guest guest Posted January 11, 2003 Report Share Posted January 11, 2003 Hi Louis..My goodness. Your family has unfortunately seen more than its share of Nf2. God Bless you. Do ask questions and post your concerns. Everyone is very helpful here. Carol land Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Thank you Carol, the idea is that I know that I'll learn lots of things by sharing experiences with you all Re: New Member > Hi Louis..My goodness. Your family has unfortunately seen more than its > share of Nf2. God Bless you. > Do ask questions and post your concerns. Everyone is very helpful here. > Carol > land > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Thank you Carol Re: New Member > Hi Louis..My goodness. Your family has unfortunately seen more than its > share of Nf2. God Bless you. > Do ask questions and post your concerns. Everyone is very helpful here. > Carol > land > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 Welcome . We are 50 miles west of Houston in Waller. Our son, , almost 16 now, has bilateral ANs and 100s of spinal cord tumors. I know you will find lots of information here. We can totally relate to your statement about not really having anyone to talk to about NF2. We would be lost if it were not for the knowledge and experiences that the NF2 Crew share with one another. Rhonda Becvar Waller, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Hi! I am new to the group and have so many questions--don't want to overwhelm but here goes... I want to say I am so glad I have found this group! I am the one who started the poll about birth control pills for blood control. I'm 35, I have had 2 hysteroscopic resections (2000, 2003) and I still suffer from heavy, long periods. My fibroids are a tennis ball (intramural), a raquetball, and a few golf balls too. I look thin but my uterus is 10 weeks and I also feel pressure on my bladder and sometimes bowel, and sometimes pain during sex. I would like to have a baby...I have a serious boyfriend but I am not married. Anyway I guess I am leaning towards an eventual myo but would like to put it off or avoid altogether if possible. I also would like to get a new doctor or 2nd opinion -- any suggestions in the Chicago area? My main question is whether I should keep taking the pill. I started on Jan 9 (the first day of my period as my Doc said) and I have been bleeding since then (very slight right now, but it was heavier than without the pill around day 20--almost hospital-worthy). I am supposed to start back up tomorrow. It's Ortho TriCyclen Lo. I just don't understand why I am supposed to start on what should be the 1st day of my next cycle (any doctors want to answer this?) rather than day 7 of my 'cycle.' Also it seems counter-intuitive to take hormones when they help fibroids grow. During these 7 days off the pill (sugar pills), the bleeding lessened and I feel better emotionally/physically too. I am supposed to try this for 3 months before giving up, but if it was worse on the pill than off the pill for the first month, that seems to me like chances are it won't work in 3. Any thoughts? Also wonder if any of you have been able to lessen bleeding with diet (lowfat), exercise etc? I like to exercise but it has been worsening the bleeding, so I guess I need to switch to something less vigorous. I think that's it for now. I am so glad to be part of this support group...any thoughts would be welcome. Cyndi in Chicago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi Becky, I did NOT stop BC before my surgery...I have never heard of Drs. telling you to do that. In fact, my Dr. insisted I stay on them (before, during & after surgery) as I am not supposed to try to get pregnant for at least 6-9 months following my surgery. Good luck with everything! Cindy > One more quick > question...is it typical for the doctor to tell you to > stop taking BC a week before surgery? I am worried > about heavy bleeding pre-op and my iron levels > dropping. > > Thanks and have a good weekend, > Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 What would be making her case so much more complicated than any of the rest? s. Re: New member I really hope we don't have to go the surgery route, we have an apt today at 2:40 to go back in and put casts back on. Dr Schwend did say he had another little boy that was as bad as Addisyn if not worse and he kept him from having surgery. He is pretty conservative when it comes to surgery so I know he will do whatever he can to keep that from happening. I am the one who thinks she is going to have surgery. I guess I just want her feet to change within the normal perameters of treatment and that just isn't possible. She'll have to do much more casting than the 6-8 wks. Her feet look great from what they were when she was born, it's just the creases she has on the base of her foot are still really bad. We live in New Mexico and we are going to the best doctor in town. He has gone to Dr Ponseti's seminars and is certified so I do trust him. In fact if he questions any part of treatment for a child he has contacted Ponseti in the past to get his opinion. I just think he doesn't want to give us false hope that surgery is totally out of the question. Anyway, we will let you all know how it goes and thanks for the support, it is much needed!! Mia > > > > Hi everyone, I am a new member the the group and just wanted to > > > give > > > > some background. My daughter Addisyn is just over 2 mos old > and > > > was > > > > born w/ bilateral club feet. She has been in casts since she > > was 2 > > > > wks. We had the tenotomy done 3 wks ago this Monday and we > just > > > got > > > > into the DBB today. If anyone has some tips about the DBB or > > > things > > > > to look for it would be greatly appreciated. This is > definately > > a > > > > huge adjustment from the freedom she had in the casts!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 ine So sorry for your situation. How old is your son and how long has he been havig problems? I am sure it is devasting for you having to feel your life ins in danger from your BP Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 Hi, ine Welcome to the group. I know you will find many caring and supportive folks here. Although I'm sure others will say the same thing, let me be the first to suggest you read two books: Stop Walking on Eggshells and Co-Dependent No More. Both books are real gems and of great help to many of us in understanding some of the dynamics involved with our bp kids. I can tell from your post that you love your son very much and that it must be extremely distressing to hear from another that your life is in danger and not to allow him in your home. Although things have been hellish, let me give you some hope: as you learn and grow and learn to deal with your emotions and set boundaries, you will find that you are able to separate yourself, both emotionally and physically from your son and that you can obtain a measure of peace and a life for yourself separate from your son. Best to you, Dot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 my son is 30 and has just been diagnosed for about two weeks...we all thought it was his bi polar....i am just adjusting to everything...he has lived with me for 8 years and now has gone to his dad " cause they understand him better " ... " they do not ignore him " and he can become independent...etc...the VA hospital just gave up on him and discharged him...he does not want to go into therapy...and they won't do anything else... pauline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 thanks dot, i am trying, can you tell how much the books are and where i can get them??? he just about emptied all my funds...i have to stay alive and pay bills....to include huge phones he has incurred! thanks for the kind thoughts and words of encouragement... pauline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 Hi ine, welcome to the group. I don't post often but read everyday. It has been very helpful and reassuring that I am not alone. I'm so sorry to hear about your troubles. Those are pretty big diagnoses. How old is he and has he been put on medication since hospitalization? I'm guessing he is a young adult since schizophrenia generally manifests itself in late teens, early twenties. Have you heard of NAMI? I have not attended meetings with this organization but plan to in the near future. Memb ers of this group that attend seem to become more empowered after attending meetings. Hopefully more members can share info on it with you. Glad you joined us. --- asahanna@... wrote: > > just wanting to introduce myself, i am pauline...i > have a grown son with > bpd, who currently has been hospitalized five time > in four months at the VA > hospitals...he was just diagnosed with this as he > also is bi polar, > schizophrenic, ptss...he currently is some where > (hopefully) in another state after i was > told my life was in danger and not to let him come > home again...this has > been like a living h___ and i am so confused and > worried...i just want to hear > more and learn more..... > pauline > a mom that wants help too > > > > [Non-text portions of this message have been > removed] > > > > ______________________________________________________ Click here to donate to the Hurricane Katrina relief effort. http://store.yahoo.com/redcross-donate3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 Hi ine, Sorry for what you are going through. Think most of us have lived in the web before and on " eggshells. " Not the happiest of times. Hope you can relax, put things in perspective and detach while your bp son lives out of state. How old is he? Does he call, or are you on a hiatus? I assume from your message he abused you. Wishing you peace and calm, Carol -------------- Original message -------------- > > just wanting to introduce myself, i am pauline...i have a grown son with > bpd, who currently has been hospitalized five time in four months at the VA > hospitals...he was just diagnosed with this as he also is bi polar, > schizophrenic, ptss...he currently is some where (hopefully) in another state > after i was > told my life was in danger and not to let him come home again...this has > been like a living h___ and i am so confused and worried...i just want to hear > more and learn more..... > pauline > a mom that wants help too > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Jackie, I can relate to your situation. I started my period at 12 and had cycles that sound just like yours for a couple of years until my gyn put my on birth control pills. Which I stayed on until I was 26 and was ready to start planning a family. Of course, as soon as I was off the pills the crazy cycles started again, only this time I was skipping months at a time instead of bleeding for months. After 2 yrs of dealing w/ this, DH and I pursued infertility testing. I was just dx w/ PCOS and a T-shape uterus in July, and I just had the lap/hyst w/ metroplasty 4wks ago. While we have diff MAs, the surgery is basically the same. I would be glad to share more specific details if you'd like. T-shape remodeled 10/06/05 goldengirl1128 goldengirl1128@...> wrote: Hi! My name is Jackie, I'm 21 and I was recently diagnosed with having a bicornuate uterus and polycystic ovarian syndrome. I got my period when I was 15 and from that age on, I have had an extremely irregular cycle, sometimes lasting up to 9 months or more. This coming Christmas season I am due to have surgery removing some of the tissue in my uterus that is cuasing some of the problem, I believe I'll be having a Metroplasty so if anyone here has advice or a similar condition just let me know. thank you! Share bookmarks: http://groups.yahoo.com/group/MullerianAnomalies/links/ Share files: http://groups.yahoo.com/group/MullerianAnomalies/files/ The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/ es/ The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 - I really can't tell you how happy I was to read your reply to my post. To know that someone has, and has gone through what I have to go through really makes me feel a lot better because I've been really nervous about the whole situation lately (it keeps me up at night). Before I have the surgery, my gyno is putting me on Biest and Progesterone to regulate my ovaries, and next week I'm actually meeting with a surgeon for a consultation. I'm basically scared about the sugery itself, and the recovery. I was wondering if you went on either of those pills to regulate your period. I too was on birth control for about 3 months, but I took myself off of it becuase it made me depressed and I'm not too willing to go back on it, which is why I will be taking Biest and Progesterone. I was wondering what you are doing now to regulate your cycle and how the surgery went. THANK YOU again, it feels great to have someone to talk to -Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 Hello Laptwo, Welcome to the board. This is a very safe place to share your day and the experiences your daughter has. You are not alone and you will find we all have similar fustrations. My dau, age 17, also felt she was stupid and ugly at 15. Just keep complimenting your daughter, find one thing you think is beautiful and let her know. I tell my dau she has a perfect nose. Give her something to latch on to. I hope you are able to join in your daughter's counseling and that her counselor is familiar with BPD. If you can not, I liked the idea, write a letter to counselor. I wish I had never let my dau see one on her own... giving her privacy. My dau fooled them all and I am sure she made me look like a bad guy. > > Hello. I have a 15 year-old daughter who is currently in counseling. > She has displaying most of the signs of BPD. I have been trying to > educate myself on the disorder. It is like living with two different > people. One minute she is my little girl and the next, she can be > totally out of control. At first, I didn't want to face reality with > the cutting and her mood swings, but my goal now is to do what I have > to do to save her before it is too late. I think (not only because > she is my daughter) she is very intelligent and beautiful. She is > always downgrading herself as stupid, fat and ugly. > > I am hoping with some support, I can help her. > > Thanks for listening. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 Laptwo, It is up to your daughter to help herself. You can lead her to water (therapist) but you can't make her drink. Good luck to you, Many of us have been there. Carol -------------- Original message -------------- > Hello. I have a 15 year-old daughter who is currently in counseling. > She has displaying most of the signs of BPD. I have been trying to > educate myself on the disorder. It is like living with two different > people. One minute she is my little girl and the next, she can be > totally out of control. At first, I didn't want to face reality with > the cutting and her mood swings, but my goal now is to do what I have > to do to save her before it is too late. I think (not only because > she is my daughter) she is very intelligent and beautiful. She is > always downgrading herself as stupid, fat and ugly. > > I am hoping with some support, I can help her. > > Thanks for listening. > > > > > > > > People joining this list must read the guidelines and agree to them before > posting. Send questions or concerns to WelcomeToOz-owner . " Stop > Walking on Eggshells " , a primer for non-BPs, and " Hope for Parents: Helping Your > Borderline Son or Daughter Without Sacrificing Your Family Or Yourself " can be > ordered via 1-888-35-SHELL (). For table of contents, go to > http://www.BPDCentral.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 Hi there and Welcome! My name is DebbieL, very similar situation to yours. Know that you are not alone in all this w/your daughter. We have been and are there too. My daughter will be 19 in Jan. She started her behaviors at 13. Mine is a success story, so don't give up hope. You will make it through this. Are you having trouble getting her to go to school? Has she cut, what behaviors does she exhibit? First step is getting yourself some good books to read, educate yourself. SWOE would be one, and another, Co-Dependent No More. You could go back here and read some of the past posts. Look for my email, then read mine. You will read about what I have done and what worked for us in getting my daughter " back " and on the road to recovery. If you like, I could email you away from the group, but don't leave here. There are a lot of people here w/some good, sound advice and experience. Don't despair, know that we all have felt your grief, guilt, frustrations, fears and tears, and feelings of helplessness and hopelessness. Here's a hug coming your way................ Let me know what I can tell you to get you started. DebbieL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hi laptwo, I have just joined the group and saw your email as I was looking at the messages for the first time. I feel for you well and truly as I have a 16 year old daughter who is giving me a lot of concern. I too have been remembering the " little girl " she used to be. She is in big trouble mentally and re the shape her life is in and is a high suicide risk. She uses marijuana and has sex. She left home earlier this year but came back after 3 suicide attempts. Unfortunately she won't currently attend counselling. But at least she isn't cutting and burning herself anymore. I have 3 other children. My 17 year old (almost 18) is a classic BPD. Her emptionality, rages, abuse of me in particular (but not only), self-focus and irrationality are hard to cope with. It is a learning curve though. Hopefully I will come to cope better but it is tough. Last night after a ghastly set of experiences re her end of school formal, I was almost convinced I was horrible and crazy. I'm still not over that actually, hence my joining this group. Both the 16 year old and the 17 year old are uncontrollable. I can see a lot of my husband's self-centerdness and anti social behaviour in them. My long termhusband is another variety of personality disorder. It comes down to our being in a DV situation and I am trying to deal with that. I am very confused about it all. But, if I had lots of money, I guess I'd be buying a house and leaving, taking whoever but I guess not the 17 year old. I want to live free of abuse. All the best with your concerns. > > Hello. I have a 15 year-old daughter who is currently in counseling. > She has displaying most of the signs of BPD. I have been trying to > educate myself on the disorder. It is like living with two different > people. One minute she is my little girl and the next, she can be > totally out of control. At first, I didn't want to face reality with > the cutting and her mood swings, but my goal now is to do what I have > to do to save her before it is too late. I think (not only because > she is my daughter) she is very intelligent and beautiful. She is > always downgrading herself as stupid, fat and ugly. > > I am hoping with some support, I can help her. > > Thanks for listening. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 In a message dated 11/18/2005 2:14:02 PM Eastern Standard Time, arielseeker@... writes: I have 3 other children. My 17 year old (almost 18) is a classic BPD. Her emptionality, rages, abuse of me in particular (but not only), self-focus and irrationality are hard to cope with. It is a learning curve though. Hopefully I will come to cope better but it is tough. Last night after a ghastly set of experiences re her end of school formal, I was almost convinced I was horrible and crazy. I'm still not over that actually, hence my joining this group. Both the 16 year old and the 17 year old are uncontrollable. I can see a lot of my husband's self-centerdness and anti social behaviour in them. Hello airelseeker, and welcome! Sounds like you could you some support and advice yourself. I'm sorry you are dealing with this, and especially with two of them. The chaos and drama you must live with each day. And the other two siblings I assume are okay? Does your husband support you in your dealing with the two BPD girls? THis is a big first step. I am responding to you because mine is a success story with my daughter. She is going on 19, her behaviors began at 13. If you want, go through all the past posts from me, or I could just elaborate here for you. Let me know. We did the contract and it worked for us. What worked was changing myself, changing my reactions to her actions. I would react in a totally exact opposite than I normally would act. This made her change her thinking and begin to rationalize. This is when her behaviors turned for the better. Let me know if I can help you in anyway. You are not alone, we are here for support and advice and the occasional hug as needed DebbieL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 I took my grandson to lunch where is Mom (my daughter) waitresses today. The hostess came over to say " hello " . She is 's age and told me (in front of krisitn) how lucky K is for having a Mother who helps her out so much. She said she had her 16 yr old daughter when she was in high school and that her Mom always helped her and how fortunatte she knows she was for her Mom's help. She went on to say I am doing a wonderful thing by helping krisitn. Krisitn was right there all the time the Hostess was saying these things to me. Krisitn not only ignored what she said, but changed the subject. Why would I expect anything more? Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hi Jean, This event triggers some things in me too. Our son and his fiancee hate his older brother. We think older brother is a great human being. I am sure if anyone told younger brother how nice his brother was the younger brother would just be disgusted and furious. Nothing is going to convince him that his brother is a decent, compassionate good guy. What to do? I don't know, but I understand how you must feel. PJ I took my grandson to lunch where is Mom (my daughter) waitresses today. The hostess came over to say " hello " . She is 's age and told me (in front of krisitn) how lucky K is for having a Mother who helps her out so much. She said she had her 16 yr old daughter when she was in high school and that her Mom always helped her and how fortunatte she knows she was for her Mom's help. She went on to say I am doing a wonderful thing by helping krisitn. Krisitn was right there all the time the Hostess was saying these things to me. Krisitn not only ignored what she said, but changed the subject. Why would I expect anything more? Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 In a message dated 11/18/2005 4:45:01 PM Eastern Standard Time, cascorsam@... writes: She went on to say I am doing a wonderful thing by helping krisitn. Krisitn was right there all the time the Hostess was saying these things to me. Krisitn not only ignored what she said, but changed the subject. Why would I expect anything more? Jean Good for the hostess! Now maybe it might sink in with K? One can only hope. DebbieL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 In a message dated 11/18/2005 11:23:10 PM Eastern Standard Time, arielseeker@... writes: The usual child control stuff is not applicable to us, I think. It is too late and I should not be living with my husband. But I do use consequences as much as I can and try not to engage when anyone is behaving pathologically. Easier said than done. At times now, when I'm in the middle of a bad time in the home, my fantasy is just to walk out. But of course I am too responsible, etc - don't forget the etc. Wow, sounds like you are in a way too far gone situation. You need to get out. How about finding yourself a local support group and go to some meetings. No one has to know where you are going, sounds like they wouldn't care anyway. So sad, so let him control everything. Me, I would stop doing anything for anybody. Take care of myself. I would tell him, hey, you want to control everything? Be my guest. Is there a chance you could go find yourself some small part time job? Something simple, like it would be a hobby and get you out of the house. Hell, I'd even stop cooking at this poing. Let king tut do it since he's insisting on doing all the shopping. Sounds like my house during my divorce. The creep wouldn't leave the entire year and a half we were going through it. And yes, he too was an obsessed alienator. He totally brainwashed my daughter, hence her troubles began. But guess what? After all is said and done, she is here, living with me! Doing great! And, doesn't give a hoot what her father does. So, it backfired on him, but not before he totally destroyed her emotionally and psychologically. It was a long five years with her, and guess who wasn't the supportive parent of her? Thank god I have a great boss or I would have been unemployed a long time ago. So, hang in there, easier said than done, I know. But you have to look out for you. Let him deal with them, since he seems to know whats good. Hugs, DebbieL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 Debbie L, Our bruised babies come back to us because they know we are trustworthy, stable and there for them. Oddly enough, they crave the structure and guidelines. Carol -------------- Original message -------------- > In a message dated 11/18/2005 11:23:10 PM Eastern Standard Time, > arielseeker@... writes: > The usual child control stuff is not applicable to us, I think. It is too > late and I should not be living with my husband. But I do use consequences as > much as I can and try not to engage when anyone is behaving pathologically. > Easier said than done. At times now, when I'm in the middle of a bad time in the > home, my fantasy is just to walk out. But of course I am too responsible, etc - > don't forget the etc. > Wow, sounds like you are in a way too far gone situation. You need to get > out. How about finding yourself a local support group and go to some meetings. > No one has to know where you are going, sounds like they wouldn't care > anyway. So sad, so let him control everything. Me, I would stop doing anything > for > anybody. Take care of myself. I would tell him, hey, you want to control > everything? Be my guest. Is there a chance you could go find yourself some > small part time job? Something simple, like it would be a hobby and get you out > of the house. Hell, I'd even stop cooking at this poing. Let king tut do it > since he's insisting on doing all the shopping. Sounds like my house during > my divorce. The creep wouldn't leave the entire year and a half we were going > through it. And yes, he too was an obsessed alienator. He totally > brainwashed my daughter, hence her troubles began. But guess what? After all > is said > and done, she is here, living with me! Doing great! And, doesn't give a hoot > what her father does. So, it backfired on him, but not before he totally > destroyed her emotionally and psychologically. It was a long five years with > her, > and guess who wasn't the supportive parent of her? Thank god I have a great > boss or I would have been unemployed a long time ago. So, hang in there, > easier said than done, I know. But you have to look out for you. Let him deal > with them, since he seems to know whats good. > Hugs, > DebbieL > > > Quote Link to comment Share on other sites More sharing options...
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