Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 BERnie, What causes the lightheaded, dizzy, woozy feeling after a hot bath??? I LOVE my baths but lately if I have it at my usualy temperature 9and in the shower too) I get dizzy and feel sick and like I am going to faint and get the shakes and feel really woozy and YUCK. I just put it down to being so tired and fatigued and everything. but your post has made me wonder if maybe there is more to it. also I have noticed that whe I change position especially from sitting or standing to lying down my heart beats so HARD and fast and SCARES me a LOT. I have tried to expalin this to my doc's before but they said it (the heart thingy) was becasue I have mitral regurgitation (it is only trivial thought)??? but I now WONDER!!!! Thanx for any help Sharon > Hi Jill: > I sent you an e-mail off list. Did you receive it? > > Also, my 17 yr. old OI, POTS, HEDS w Marfans has developed petechia, > about 15 on her legs from groins down. They are not situated in joints > but are primarily on muscle areas. Also, about 2 weeks ago I noticed > her having the occasional small bruise, size of dime or less, of unknown > origin. > > Seven days ago her Florinef O.1mgm was increased to BID, 8am and 6pm. > Has anyone ever experienced this and is this a consequence of increasing > the fluid and salt retention. > > Additionally, approximately 3 weeks ago she was stated on midodrine > 10mgm I believe, once a day Mon. to Fri at 4 p.m. and 3 times a day > Sat. and Sun (non school days) when she does not take the long acting > Dexedrine 10mgm. Has anyone experience this. These petichiae very much > resemble tiny, tiny spider veins. It certainly would make sense to me > that increased vasoconstriction with Midodrine could cause miniscule > bleeding from some surface vessels. I am taking her to the > paediatrician today but I know he is not familiar and wondered if anyone > could shed some light or had this occur. The midodrine is very, very > helpful and she notices a large decrease in fatigue but her greatest joy > has been the ability to relax in a bath and soothe her muscles without > getting lightheaded, woozy and totally exhausted when she gets out. > That may seem like small potatoes to other folks but it is a huge, huge > thing to her. > > Any experience others may have had or guidance would be appreciated. > With thanks! Bernie, Totonto > > > > > Quote Link to comment Share on other sites More sharing options...
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