Re: Jill Hand

[Guest guest]

BERnie,

What causes the lightheaded, dizzy, woozy feeling after a hot bath???

I LOVE my baths but lately if I have it at my usualy temperature 9and

in the shower too) I get dizzy and feel sick and like I am going to

faint and get the shakes and feel really woozy and YUCK.

I just put it down to being so tired and fatigued and everything. but

your post has made me wonder if maybe there is more to it. also I

have noticed that whe I change position especially from sitting or

standing to lying down my heart beats so HARD and fast and SCARES me

a LOT.

I have tried to expalin this to my doc's before but they said it (the

heart thingy) was becasue I have mitral regurgitation (it is only

trivial thought)??? but I now WONDER!!!!

Thanx for any help

Sharon

> Hi Jill:

> I sent you an e-mail off list. Did you receive it?

>

> Also, my 17 yr. old OI, POTS, HEDS w Marfans has developed petechia,

> about 15 on her legs from groins down. They are not situated in

joints

> but are primarily on muscle areas. Also, about 2 weeks ago I

noticed

> her having the occasional small bruise, size of dime or less, of

unknown

> origin.

>

> Seven days ago her Florinef O.1mgm was increased to BID, 8am and

6pm.

> Has anyone ever experienced this and is this a consequence of

increasing

> the fluid and salt retention.

>

> Additionally, approximately 3 weeks ago she was stated on midodrine

> 10mgm I believe, once a day Mon. to Fri at 4 p.m. and 3 times a day

> Sat. and Sun (non school days) when she does not take the long

acting

> Dexedrine 10mgm. Has anyone experience this. These petichiae very

much

> resemble tiny, tiny spider veins. It certainly would make sense to

me

> that increased vasoconstriction with Midodrine could cause miniscule

> bleeding from some surface vessels. I am taking her to the

> paediatrician today but I know he is not familiar and wondered if

anyone

> could shed some light or had this occur. The midodrine is very,

very

> helpful and she notices a large decrease in fatigue but her

greatest joy

> has been the ability to relax in a bath and soothe her muscles

without

> getting lightheaded, woozy and totally exhausted when she gets out.

> That may seem like small potatoes to other folks but it is a huge,

huge

> thing to her.

>

> Any experience others may have had or guidance would be appreciated.

> With thanks! Bernie, Totonto

>

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