Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 In a message dated 4/2/2004 5:00:16 AM Eastern Daylight Time, aase.m@... writes: > Thought chain for Caro and Bill Thank you everybody. I am beginning to read my emails. I was too stressed before but let me tell you; all of these prayers from many of my online friends have worked. The results for whatever reason are amazing. Here are some positive happenings: The timing, in the way that Bill's final illness pointed me out to our doctors that I need help. Thank God we choose to go to the same doctor. That was unique, as the doctor was our recommended EDS GP doctor. That finally, a social worker would sit at his bedside and help him finally apply for his SSD ... from his bed by phone. This action resulted in the timely phone appointment day of Monday, March 22, 2004. He performed poorly to the interviewers questions and she had to speak with me instead. So all paperwork from that time is coming addressed to me. This same interview generated an SSI application. However, It was that very night that he went back to the ER. He did not want to go. I wanted him to go. I was concerned that he was so stiff and could not tie his shoes. I did that. He was in pain and did not want me to see it. This, the last time he was in my home. I also suppose my absence from being at the hospital after his four admissions, showed medical staff how difficult it was for me to get to the hospital. They could not understand how he kept saying I was more ill then he, what with his double lung, liver and brain cancer. The two times I did go to the hospital, the nurses tried to persuade ME to go to the ER. That felt bad. The day I was there last Sunday, March 28th he was sitting up watching TV. He was concerned about a special chair for me. He knew I could stay there longer if I laid on my side. When I was ready to leave, he stood and walked to the hall surprising me. The next day we called, he was moaning about pain and barely talking. The next day Tuesday he could answer the phone but no longer talk. Another day and I knew not to call. I was notified that the cancer had become aggressive .... and mention of days. This status changed one more time and I was told to have family members arrive pronto. Family means his Mom. With that, she arrived Friday afternoon to see him instead of a planned Saturday. With this my MIL saw her son alive and able to hold his hand. She being a nurse was knowledgeable of his final condition more than me. Bill passed the next day at 345 PM 4/3/04. And so the paperwork continued to arrive. I received the usual SSI " not eligible letter " the day before he died. But, that allowed me to see that page two talked about a < > and how to write a plan. I presume that allows me to finally explain how my SSD funds for Bill was used. Another thought, I think my GP doctor was concerned when he found I gave up my pain prescriptions for Bill medications. I tolerated that for four months. Meanwhile, somewhere, somehow these doctors signed me up for our state aging group. I had just had my 55 birthday. So I was registered last week and the food started TODAY Monday. The food was frozen so they included a new microwave. [Of course I had one years ago, but it burned out last year.] This delivery today included county food bank foods. Besides the Entenmann's marshmallow chocolate cake, can soups that just happened to be my favorite, favorite Mott's brand applesauce with cinnamon, favorite maple cinnamon oatmeal, here was my own brand of coffee: Maxwell house, fresh day old Italian bread and 14 dinner meals. The social worker person said he apologized that they were all the < > flavor. They were all Roast Beef with mushroom and gravy, veggies and baked potato with roll. One of my favorites. So, I feel I AM in the midst of a miracle. I also feel a little strange that I have all this food and why I could not accomplished this nutrition when Bill was home. Now add to this, Meals on wheels, a hot meal with a bag lunch and fresh salad and soup. I am in heaven meal wise. That is my little ramble of appreciation everyone. Thank you all. Caro. Quote Link to comment Share on other sites More sharing options...
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