Re: ... copies of past due notices ... using the right keywords

April 22, 2004

In a message dated 4/10/2004 4:36:58 PM Eastern Daylight Time,

moondancer@... writes:

> I am sorry but am totally misunderstanding the part about you making above

> the SSI limit-were you making over 800 dollars? per month?

Yes, But ... subtract rent of 940, Medicare and other stuff. You get sick and

the final SSD is in a range you barely can keep the place you are at.

Or, I just do not qualify for SSI at all. I have/had no resources or a

working car after over ten years of being sent home on disability almost every

year.

And, this recent disability is for five years. With a fixed income, how am I

supposed to replace my car, pay car insurance and all those extra things that

happen?

> I mean I'm sure his income was included in the calculations but I have seen

> many couples where both have SSI or SSD........ So I totally don't

> understand what they are trying there.

His income was ZERO. But that meant nothing they said. He said he was

disabled and had not worked since 1997. That also meant nothing. They said my

income

for family of two, was two much. But if the second person in my house was a

child I would have gotten a benefit. If Bill was not my < > spouse I could

get benefits. If I had a room mate living with me each could get benefits.

But, not the spouse.

> I like your idea about rare disease discrimination.............. that was

> definitely rude and unfair treatment........ No matter what you have, visible

> or not, rudeness should make them lose their jobs...

>

> Have you talked to your social worker about that.......... I e-mail mine

> often......... she normally answers me right back....... that comes in handy

> ........

I do not know if she is the Internet type. All this is so new considering

I've been ignored ... my whole life until two days before Bill passed. I do not

remember who, but I was told to call the cancer doctor office and say I was in

crisis. They called me back to ask why. I told them Bill was MY caretaker.

They told me but he is dying! He has been in hospital on and off for two months.

They asked me what was my disability. I told them.

This nurse of course had no clue what EDS was, but she knew what Autonomic

Dysreflexia and Autonomic Dysfunction was and was horrified! She called a social

worker. Weird. After all this time all it took was for my hubby to be dying

:-<. But, I am told not to go there. Because of these events, suddenly I was

interviewed by Aging groups and ended up with meal on wheels and a one time

rental assistance. This only after they watched me pay ALL my RENT bill and NOT

be

able to pay for Bills funeral. I suppose, now they believed me. That, by the

time I got my SSD and subtracted rent, Medicare, medical insurance, mandatory

utilities, Bills prescriptions, my prescriptions, cancer pain medicine, phone,

taxi to hospital, doctor office visits, chemo therapy visits, etc. I was

" pass " broke. You notice food was not on that list. Nor payment to some twenty

or

thirty doctors after all those months of hospital meals, test, x-rays, MRI,

scans, etc., etc. I now know I was and still is medical indigent. Talk about

needing the right keywords to get help.

> Keeping all of your situations in my prayers ............

> Hugs and Love- TJ

Thanks

April 22, 2004