Re: son diagonsed with veds

March 29, 2004

Welcome to the group, Connie!

I seem to remember that there are some from Alberta but I just can't remember

who! Sorry! I'm sure that they will speak up. There are also quite a few with

VEDS that can be very helpful to you and your son. Everyone is so supportive

and helpful to one another and we're glad that you are here. I have a daughter

with type 3 as I have but with many other bits and pieces of the other kinds

it seems.

Glad you found us!

March 29, 2004

Welcome to the group Connie!

I still don't know what type of EDS I have yet, but I should know sometime

next month. This is a great ,wonderful, loving and very knowledgeable group!

Sincerely, S.

son diagonsed with veds

> hello, i am a new member

> my son was just diagnosed on March 12,2004 with eds type 4. He also

> had a bowel obstruction operation on March 8, 2004. He is coming

> along very well. I am from Alberta, Canada and would like to see if

> anyone else from alberta is on this group and has veds. I will also

> talk to anyone else.

> I need lots of encourage of what to except in the long run. We are

> going to see a genetic doctor in April. There is certain things he

> knows what he can and can't do. He has a good sense of humor with

> this disease. He is 17 years old.

> Thanks to all that is listening

>

> Connie Zorn

>

> To learn more about EDS, visit our website:

>

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