Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Hi Mia, I don't have any experience with Atypical CF but there are plenty of families here who have. I would definately go out to Iowa. We flew from Ohio to Iowa for treatment. The Mc house is very nice, we were very comfortable there. There are plenty of things to do in Iowa City and surrounding area and there are parents of kids with cf there all the time. We will be going back in November for a recheck. Alaya had severe bilateral cf. The drs here couldn't understand why we wouldn't just do surgery. We are so glad we went to Dr. P. You will love him. Joanne Quote Link to comment Share on other sites More sharing options...
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