Update on Kody

[Guest guest]

Hi,

I haven't had time to check the postings or even post something for

a while.

Just to remind you:

Kody was born Feb 1 2004 with rt atypical CF. That it is an atypical

one we know only for a short time after I contacted Dr. P.

Kody is Dr. Kings patient in Tarzana. Since Dr. P recommended us to

go and see Dr Colburn we did so 3 weeks ago. It was a very nice trip.

Dr Colburn was very nice and the first Dr who really explained to us

everything just because of that it was already worth it! But the

good thing was that he said that Dr King was doing a good job and

that made me feel very relieved! He put on a new cast and said Kody

is going to be ready for his shoes. So he contacted

for us and ordered them. Last sunday we started putting Kody in the

shoes and it is not easy to deal with them eventhough there are

shoes and there are suppose to be much easier.

We can not get the heel where it belongs. I get it down but not in

the back of the shoe because his leg is so swollen! So it happened

already several times that his foot slipped out. I tried to make it

more tight and that helps but still the heel is lifting from the

bottom. Does anybody know how to get rid of the swollen leg (I tried

already to massage it with some lotion)?

I think if the swelling goes away the shoe will stay in its place.

Anyway I just wanted everybody to know that he is very happy now

(without the cast)! We went to the swimming pool after taking it off

and you guys should have seen that happy face!!!

He already adjusted to the shoes and the bar he knows how to roll

with it and I'm sure he will learn a lot more things!

Thanks for keeping this site up and for all the helpful tips

Kody 2/1/04 rt atyp CF

Serendy 6/29/02