update

[Guest guest]

i went to see my lupus doctor on monday and had the most horrible

day i went full of hope but came away feeling like i was a

hypercondriac of the highest degree. i was diagnosed by this clinic

as having sticky blood and sle about 3 years ago, blood tests have

backed up the lupus diagnosis but he test for sticky blood was

borderline.well on monday after months of getting worse i went for

my appointment that i have had to wait a year for only to be told

(after giving him a four page list of my problems and symptoms)that

i need to be seen at an obesity clinic as i have no joint problems

as such but most of my pain is my muscles worsened by my weight, i

am not slim by any lenght of the imagination but i`mnot obese

either.then he goes on to tell me that i priberbly haven`t got

sticky blood which he then confuses by saying i have all the

symptoms visible to the eye.all of my symptoms on my list are saying

that my lupus is problematic and they have put me on 50mg of

mepacrine every other day which won`t start making any difference

for 3/6 months,he spent the whole time contradicting himself and

confusing me.he is not the normal doctor i see although this is the

second time i have seen him and i came away feeling terrible and

that it was all my own fault that i had lupus, how can i lose weight

when i`m constantly bouncing around on steroids and have been for

the past two years. i was never this big until i was put on the

prednisolone.i am now down to 5mg a day and not allowed to come off

it yet.i am also on paquinel and diclophenac and azathioprine in

various doses. my lupus started when i was active and working full

time and only weighed 13 stone which for my height was

reasonable.now i just am at a loose end i rang my rhuemy and cant

see him until the end of july and i can`t even see my gp until next

week, sorry to be raging but needed to air it . have been really

depressed and this didn`t help. thanks for listening to my garbled

post , love mandy