Lymes Disease & Lupus from Sharon

[Guest guest]

Hi everyone,

I too have been lurking around. I've only posted once. I've had lupus

for about 20yr. now. I've had my ups and downs. No serious organ

involvement yet. Thank God.

My family doctor says I have lymes disease. I have apt. with

Infectious Disease doctor the 4th. I know a lot about lymes as I

worked with my family doctor for 10yrs. and she has a lot of lymes

patients, but none with lupus. I know you can get false positive

results when you have lupus. (Dr.Fletcher) says I need to go on

I.V. antibiotics for 6wk. but I really do not want to do that,

because it can cause a really bad flare. I feel bad enough now, I

don't need to feel worse. She also says I have EBV,CMV,Mycoplasma

Pneu., low magnesium and vitamin D. I've been on prednisone 10mg but

I am trying to decrease it. It's hard to tell if my joint pains,

fatigue and brain fog are from decreasing prednisone or a flare. My

ANA is down from 1280 to 640. Also the headaches are back with a

vengence. I have them everyday.

My Rheumy. will not communicate with my family doctor. She thinks she

is just searching.

I have really learned a lot from you guys. You all are great.

Hope everyone has a restful night.

Sharon M.