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I'm a new Lupie

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Hi,

My name is and I was diagnosed in March with Lupus. I have

Raynaud's, Pectus Excavatum, a slight butterfly rash, and excess

fluid around my heart. I am 22 years old, I graduate from college in

June, and I'm getting married two weeks after that. Needless to say

my life has become a little bit more complicated than I was

expecting it to be. My family has always been an emergency room

family, we only go when someone needs stitches or is seriously ill.

I am finding it very challenging to go to the doctor and the

cardiologist every week and every other week. I'm not sure what to

say and what not to say and so I end up telling them every little

thing that has happened to my body since the last time I saw them.

Anyway...just wanted to pop in and say hi. I am looking forward to

getting to know you guys.

~

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