Re: Soup line rant/ Mark

[Guest guest]

----- Original Message -----

From: MTLamar@...

I've paid for my pain doctor and medication, full cost with no insurance,

because the district refuses to prescribe anything for chronic pain.

**** I have heard that the higher end meds are not covered. That is a crock of

S--t. Those who need them the most don't get them.

I pay for dental full cost.

******I thought Medicare paid for cleanings and fillings, am I assuming that

wrong?

I get no surgeries, because the only options available aren't any good. I'm

paying for counseling -- not full price, for some reason Medicare covers that.

I'm paying full price now for ALL my other medications. As I said: I get $833 a

month disability. I pay over $900 a month in drug and medical costs.

******Rediculas rules they have. They'll cut off our leg, so they don't have

to fix it. Psych drugs and Drs, ya they will pay for them to keep us out of the

state facilities which costs more. You pay more than you income in meds and

medical, and your suppose to live? how? Thank God you have a partner who loves

you and understands.

The quality of my care? One of the rotating doctors (since it's a public

health clinic, I'm not entitled to a specific primary care doctor

*****WHAT???? You are not entitled to a Specific Primary????What the.... That

doesn't make since. Where in the heck do you live?

-- the one I have treats everything BUT my EDS) told me, in response to my

osteoporosis

getting worse after a year of treatment: " You need to drink more milk and get

some

sun. " Their advise was to get skin cancer and to drink something that

aggravates my stomach problems. The response when I complained was to consider

myself

lucky I got ANY care at all. There is NO ONE in the health system of the

fourth

largest US city willing to take me as a regular patient.

*****OMG just to hard to comprehend.

My life -- and ', because he had the bad luck to fall for someone with

my problems -- is

worthless; we will have no retirement -- if our HOUSEHOLD savings is over

$5,000

you can't get Medicaid help here. You know, I don't really care about getting

married to him, I just don't want his life ruined because he's living with me!

****** Mark, Obviuosly, doesn't feel that loving you is a waste or

that you have ruined his life. All couples can end up with horrible finantial

problems. I would choose being poor and in love than comfortable and alone with

no love, anyday. Some how, you'll find strength in each other.

I had to bring him up in the Medicaid assessment, too, because it was obvious

I wasn't paying rent, and that had to be accounted for...so I get to spend

what we managed to save until we're poor enough to get some help again.

*****Exactly what everyone else does. I also played thier games while I was in

the system.

It's all I can do to not be depressed. WITH the psychoactive drugs.

Confronting the reality leaves me shaking...all my life I've been a societal

reject

because of who I love...and now, because I was born with a health problem, I

get rejected twice-over.

*****The times are changing. You are not a social reject because of who you

love, in the larger sceam of things, just closed minded individuals. If EDS

makes us social rejects then all folks with all health problems are in the same

crowd. We are just as important as anyone else.

So, yes, we're all fighting it. It's stupid, it's irrational, and it's

absolutely evil, as far as I can see.

*****Frustraiting, unfair, inhuman, rediculas, substandard care. I wish every

so called person making all these rules, had one person in their life, they

loved dearly, that was in this system. Just maybe they would think twice about

their vote. Can they all be as cold hearted as Laxitys student Doc?

God I hope not.

Cindylouwho