Re: Hand controls

[Guest guest]

I know exactly what you mean Jo it isn't that you aren't grateful for

those who help out and drive you around but being able to drive

yourself is INDEPENDANCE the ability to go where you want, when you

want regardless of ANYONE else with a car and chair etc with the

necessary modifications this is a real possibility

For me the only modifications I have (SO FAR) is that I am only

allowed to drive an Automatic and I have an electronic spinner knob

on th esteering wheel which is a little tiny wheel that clips into

the steering wheel so that you can legally drive one handed and mine

also has the indicators etc on it, so that I can legally drive with

ust my stronger left arm and without using my weaker left leg.

I know that in the future I will most likely need more modifications

to keep my independance and when the time comes I will be there ASAP

to keep my independance.

Sharon

> Hi Aase Marit,

>

> Yes, I am Jo in the UK and I know what you mean about losing track,

> I've only been here a short time so I'm still getting to know

people!

>

> Thank you again for your information and help regarding hand

> controls. The links and data about the systems that are easier on

the

> upper body are going to be really helpful to me, as I honestly

don't

> think my upper body strength is going to be up to the normal

systems

> sadly. But I am determined to get driving! I will spend some time

> looking into the options and getting advice form where ever I can.

> I'm actually spending a week in my EDS specialists hospital soon

for

> physical and occupational therapy assessments, so it may be

something

> I can ask them about too. as they are very keen to find adaptations

> to make life more manageable for me. here's hoping that along with

> the wheelchairs and stair lifts they have a booklets for car

controls

> too! :-)

>

> I am glad that you have received so much help and advice form your

> centre and have found a system that works for you. It is so

> liberating to have transport and the freedom to drive places

yourself

> isn't it? It frustrates me so much having to rely on people to get

> anywhere. That's not to sounds ungrateful for everything they do

for

> me, it's just hard having to plan everything I do around other

> people's schedules. I long for the day I can decide to do something

> and just get in a car and go do it again. I guess the only downfall

> for me may be the costs as I'm a poor freelance writer rather than

a

> fabulously wealthy author - although I'm working on it! Either that

> or finding a single, handsome millionaire of course! I will have

to

> look closely into what provisions and help their would be for

getting

> the special adaptations I would need and how much it may costs me.

> Fingers crossed I wont have to raid my local bank hee-hee!

>

> Anyway thank you again for your help and support, I really

appreciate

> it. Please take care and know I'm thinking of you.

>

> Love and hugs....Jo

> xx