Ruth

[Guest guest]

Well to make my story short - I was always healthy growing up. Back

in 1999 I decided to have an elective surgery to remove my bunion on

my foot. Well they had to put a pin in my foot till it healed. Well

apparently my body rejected the material of the pin and caused me to

have a major stroke 1/8/00 During that night in the hospital I was

dx'd with TTP which is a rare blood disease that has to do with your

platelet count - technically mine were so low I should have died on

the table, but during the next few days of testing in the hospital I

ended up being dx'd with Lupus SLE involving the kidneys - so your

surgeries may have brought your lupus to a head - as I am being told

my body rejecting that pin brought my lupus to a head - Unfortunetly

I have only gotten worse, my docs have labeled me with What can go

wrong will go wrong when it comes to Deanna - so I came and made this

support group because I couldn't really find any that made me feel

comfortable - and we have only gotten better since =) Thanks to all

the members

So it is quite possible that your sugeries brought about the lupus.

Speaking of cook books - if you ever want to share recipes with us

you are more than welcome - we had a recipe exchange several years

ago -

Well good luck on your books and keep us informed, remember to jump

into any and all conversations you want - we love to be a family here

and joke and such and your always welcome to join in.

Huggles

Deanna

> Avoiding sulfa and sulfonamides is no problem for me. When I take

> sulfonamides like Bextra, Celebrez, Indocin, etc. I get really

sick so on

> my charts say no sulfonamides. Then Dr. decided to mark it no

SULFA.

>

> As far as I can tell I have never taken SULFA in my life.

>

> If this is Lupus then maybe the reaction to the sulfanomides was

part of it.

>

> Most of this started happening big time about 4 years ago. I was

injured at

> work and ha 5 major surgical repairs in one year. A bit much. I

almost

> went bonkers with it. At one point I just literally sat and bawled

in my

> Dr.s office and told him I can;t do this.

>

> He was such a sweetie. He says yes we can. He gave me some meds

teh next

> year that got me through some bad stuff.

>

> I might try and work on my cookbook now. I put one together a few

years

> back as Christmas present for my family.

>

> I am currently writing two different book. I am writing one book

on Once a

> Month Coooking and I am writing another one on being a servant to

others

> through cooking. The last one is about a hostess ministry through

churches.

>

> Take care,

>

> Ruth