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EDS NIH Protocol officially started

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Hi everyone,

I am at NIH right now after a totally exhausting day of tests, history taking

again, physical, etc...

The new protocol under Dr Clair Francomano ( who is so wonderful and greeted me

today with a hug!) will be seeing and following 300 patients. The study now

focuses primarily on the muscularskeletal problems/pain and the cardivovascular

problems. I am the first patient in the new protocol so they are all excited

and I have had at least 2-3 doctors hovering around me all day.

For those close enough to Baltimore, MD. and Harbor Hospital, I know they would

love to hear from you. They do not pay for transportation though.

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