RE: - Attn Mike- sorry for the delay

[Guest guest]

TJ, Things are so miserable for you and your Mom right now - I'm so sorry.

I will be praying for you both! Hang in there!

Love Lana

Love Lana 0 :-)

- Attn Mike- sorry for the delay

Hugssssss Mike-

Sorry it took me so long to write back- this cold is a nasty one- has had

my butt in bed a lot the past few days....... I come out only for a sip of

coffee-diet coke and meds...... sit through a few e-mails but by the time I

get to the end, rooms spinning so I go back to the drawing board. Its just

plain miserable- like swallowing cement blocks....... I did have an Aunt

pick me up some dri ix or al and I think its helping some as it was

beginning to try to go up to my ears- I hate that feeling..........

I lost my voice, - well not completely, I still have a squeak- Mom has

coughing and she too is miserable as all get out......... but other than

that- things are the same.

I did go to the site and check out the book and will definitely make an

order through there......... thanks much..........

I love the fact too that some of the money helps EDSr's.........

Mom and I both experience leg cramps- I do not as much since diagnosis of

EDS and all the medicines I am on- but I do think my best fighter for it was

that quinine- 260 mgs every night......... tastes horrible...... even though

you don't have it in your mouth for long- just like a grapefruit rind but

sure has helped me a lot....... and another plus is mosquitoes seem to hate

it and stay away from me if I do go out. Mom is on nothing for hers- I

asked why she didn't ask her dr for quinine - just to try- he told her , no

one says it works for them......... well so? Why not see if it will for

her......... what a flake.......... so not sure that he gave her anything at

all for that......... don't believe he did.

When I get a leg cramp the only thing I can do is get up and walk back n

forth, back n forth...... a bit hard to do when you can't stand long........

Her remedy is to hope ( dressed ) into the shower stall and aim the hot hose

at her legs........

I have tried direct pressure on one during the spasms but that only

worsened it...... am not sure why- but it did...... so I don't touch them

any more at all...........Not sure on mom- will have to ask her if she's

tried that one.

I guess for your second technique- I've tried but in a different way- if

they were in my toes- ( a few yrs ago ) - I would put them on the edge of

something - chair, wall, whatever was handy and push down with my toes

making them do the opposite of what they felt like they wanted to do. And

yes that did help at the time ( but only for my toes )

I think mine are caused by thrombosis in the past and now due to leg

muscles being so whats the word I want- hmmmmm- darn it, I can't think of

the word for the life of me........... since the operations and such and not

being used as much - they have become _____________________ lol that didn't

help............. they have no umph- no pizzazz- only thing they can do

right is hurt........... the muscles have atrophied??????????? yes yes thats

the word but not sure of the spelling....... whew , I'm glad I got that out-

otherwise I'd have been up all night trying to remember the word I was

trying to think of............ Plus , before this happened, dr said I was

lacking mineral I do believe........ many years ago so unsure now

really.......... I do take loads of calcium because I can't intake it any

other way than by a pill...... because he told me that should help......

well, it did but not totally---- and I've had some doozies - I mean actually

throw me out of a deep sleep to a standing, screaming position...........

Mom has too but hers is most likely from diabities? Is that normal do you

think to be one of the diabetic symptoms - maybe someone on the board with

diabeties has the same problem, if so holler....... would love to give her

some relief..... Why is May 12th taking so long to get here........... I so

bad want her in to that dr........

Thanks again for all your help- again sorry for the delay........ Hope

you are as well as can be- and that goes for the rest of you out here as

well...........

Hugssssssssssssssssss TJ

... the book is available at ?

...any of your " weird stuff " to help with a quick remedy for leg

cramps?

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You can generally, but not always, find it at and Noble or B.

Dalton. Unfortunately, any time I have seen it at either, they have

usually just had one or two copies. It isn't stocked like a top ten

best seller item.

What I do on most of the books I pick up like this is to just go to

the " EDS Today " website, click their link to amazon.com, and order

direct that way. I have always had excellent results and EDS Today

gets a small commission that way. As Bonnie reminded me earlier

today " ....then EDS Today DOES get a commission...may not be

directly to YOUR pocket but it DOES help other EDSers!!! LOL "

Quick fix for leg cramps depends on cause and where.

In terms of just getting rid of a cramp when one hits, there are

three manual techniques that work. Technical names are (1) Direct

Pressure (2) Reciprocal Inhibition and (3) Origin-Insertion

Approximation.

The first is just what it sounds like, deep, direct pressure right

in the middle of the cramping muscle. Using the calf as an example,

you would take your fist and simply push the muscle into the leg

bone and hold the pressure until the cramp let go. (And for you

anatomical purists on the list, yes, I know there is no such muscle

as the calf - the " calf " is made up of the gastrocnemius and soleus

muscles. Any time we slipped in class and said either calf or thigh

it cost us points). Problem with this technique is that it might be

in a muscle difficult or impossible to reach easily on yourself,

especically while in the midst of an eye-watering cramp.

The second method simply means making the muscle perform the

opposite action of the cramp. Let's say your back muscles (your

extensors) are cramping - just bend forward, arching your back. The

extensors can't stay shortened (cramped) when you do this.

The third isn't worth describing because it assumes a knowledge of

anatomy of kineseology that most people don't have and isn't as

effective as either of the first two anyway.

These can get rid of a cramp in progress but they don't address the

cause of the cramp. They are definitely just symptomatic

treatments. In order to stop getting the cramps in the first place,

you need to know why you are getting and then treat the cause.

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca