Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Trying to figure out how not to struggle with your health issues is a difficult thing to do. And then, when you think you've just about gotten there something happens, and you start it all over again. If possible I just try to keep busy doing stuff. Even if I am really tired I makes sure I rest actively, doing something. I also force myself not to think about it. I know it's easier said than done. Believe me. I have some really bad days, but I find that if I start whining I just feel worse. Don't misunderstand me, we need to whine as well, but it is very important to look around you and to see the good things in life. I hope there's plenty in yours to keep you thinking about that. It's worse when everything just starts going bad. My family makes it so much easier for me. Their presence, their support, their laughter make me forget the bad stuff a lot. Especially since when I was diagnosed they weren't giving me much chance of having any kids at all. I hate prednisone with a vengeance. I hate the way it makes me look, I hate the way it makes me feel, I hate the way it makes me ACT. I am happy when prednisone free. Still, unfortunately I get the bad news now and then and there I go on 60 or 40 mg for 6 months. I used to look at the pills in the morning and say to myself " I wonder what would happen if I didn't take it " , or " I've had enough " , or " I hate you prednisone " . That would just stir my emotions up even more. So now when I do have to take it I don't fight it. I just say " this is something that will make me look ugly, feel ugly, and act ugly, but it's something that will keep me going " . It still is an awful feeling taking it, but it's better when I don't fight it. BOTTOM LINE! It's a very difficult thing, but you need to find something that you can hold on to help you get through this period and hope it'll be a short period. Take Care , the sun will come out soon. Try and remember that. Mojo Tiny Whine > Hi all, > > Since I started steroids again, my doc has me doing the " 4 for 4 > days, then 3 for 4 days " etc. thing. Didn't really sleep last night > since I'm still on the 4 for 4 days. Going in for an abdominal CT > scan today. Rheumy thinks I may have pancreatitis. Had to drink a > big container of barium last night and have to drink another one an > hour before the test. It has improved over the years, but it still > bothers me to swallow liquid metal. I'm slowly starting to feel > better again now that the steroids are going, but I'm just depressed > a bit in general about the whole health roller coaster. It's really > really difficult for me to be forced to be less active than I want to > be. I haven't figured out how to not struggle with that yet. > > Have a great day everyone. More tomorrow when I'm full to the gills > with barium. > > > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/lupies > Quote Link to comment Share on other sites More sharing options...
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