Re: Attn Ladies RE: Mammograms and EDS breasts- Aase

[Guest guest]

A friend's mom was just diagnosed with breast cancer ...So now she

started chemo and will have surgery after that...

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You might want to check with your friend to find out if her mother's

doctors have discussed lymphatic drainage therapy, lymph node damage

and/or removal, and the subsequent heightened risk of lymphedema

with her. Historically, doctors have done an extremely poor job of

advising patients about the risks of lymphedemea post-chemo or post-

surgery. And full-blown lymphedema is nothing to mess with - it can

be life threatening. There is a whole raft of do's and don'ts for

people at high risk. Any chemotherapy or radical mastecomy

automatically puts someone at high risk.

Trust me on this one - this is not something you mess around with or

take lightly.

There are also some energetic modalities that are proving effective

for reducing the nasty side effects of chemo, Reiki being one of

them. I have some articles and information on it if you want it.

[Guest guest]

Hi Mike,

I know that they know about these things here too. I have seen some

TV programmes and read about things regardring just that problem

related to breast cancer, so I would think that they have the

knowledge needed... I am forwarding your mail to her daughter though,

with a message that if they are interested in more information, they

can just say so. Her mom is luckily a nurse who knows a lot and knows

how to stand up for herself. She has Sjogren's syndrome, and has

worked hard to learn things in order to handle her illness as best as

she can. She had a hard time with the medical community

pre-diagnosis, in a way that so many EDSers also have had... Now she

gets good help though. It must have been extra tough back before she

got diagnosed, she was even working as a nurse at the rheumatology

ward at the county hospital... How about going undiagnosed then? It

was so ridiculous...

Thanks a lot!!! I'll let you know what they say...

Aase Marit

>

>

>A friend's mom was just diagnosed with breast cancer ...So now she

>started chemo and will have surgery after that...

>

> -----------------

>

>You might want to check with your friend to find out if her mother's

>doctors have discussed lymphatic drainage therapy, lymph node damage

>and/or removal, and the subsequent heightened risk of lymphedema

>with her. Historically, doctors have done an extremely poor job of

>advising patients about the risks of lymphedemea post-chemo or post-

>surgery. And full-blown lymphedema is nothing to mess with - it can

>be life threatening. There is a whole raft of do's and don'ts for

>people at high risk. Any chemotherapy or radical mastecomy

>automatically puts someone at high risk.

>

>Trust me on this one - this is not something you mess around with or

>take lightly.

>

>There are also some energetic modalities that are proving effective

>for reducing the nasty side effects of chemo, Reiki being one of

>them. I have some articles and information on it if you want it.

>

>

>

>

>To learn more about EDS, visit our website: http://members.rogers.com/ceda2/

>