to Maureen re: hair

[Guest guest]

Maureen I have to hair loss especially on top of my head i am thin on top. When my dad passed away 12 yrs ago i went completely bald. then my hair grew back my hair don't look to bad i have learned to deal with it i to have wigs but i don't wear them cause i always thought people can tell i have one on or if the wind blew hard enough it would blow off my head so i stopped wearing mine i do my hair but the days i don't feel like doing my hair i wear a hat most of the time. I look at it this way if people don't like the way i look they don't have to look at me at all. that is just the way i feel about it. i am comfortable not wearing a wig or a hat at all. like you said you have to learn to live or deal with it and i have.

Love Kimi

[Guest guest]

Amen Maureen.

I completely agree with you! You go with the flow, accept it and get the best out of it. If you think of it as beating you, it will.

Mojo

Re: : Hair Falling Out

Hi, and all!I've probably had lupus all my life, but wasn't diagnosed with it until almost all of my hair had fallen out. I became bald, and had to wear wigs for almost 5 years before the hair grew back. I still have patches where I have nothing, but at least I can cover up the spots with the hair that is there.In my experience, after trying creams, injections, pills, and rubs, I truly think that the thing that helped me most was accepting the hair loss and working with it. Yes, it is terrible to beome bald or to have such large patches that you can't cover them. And to have your hair sail away on the wind -- yipes!But after I became resolved to my bald state, I found that there were some things to be grateful for:1) When you have to wear wigs, you NEVER have a bad hair day!2) You can change your look at the drop of a wig -- no messy dyes or dos...you can be long, short, teased or straight and any color of the rainbow. (And I got a lot of laughs watching my neighbors' reactions to my frequently-changing looks!)3) When I didn't have to fuss over my hair, I had to look more deeply inward -- and found that being bald builds character. Or, rather, you BECOME a character. Quite a lively one, at that.4) For the people who would insist that I wasn't sick because I didn't look it, I had only to doff my wig and they'd change their tune. There are other positive things, I'm sure. But these are the most obvious ones to me. I've also discovered happiness with hats...but that's another email! :)Maureen Prattwww.maureenpratt.com "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies