New to Talipes

[Guest guest]

Hi Everyone,

Im from the UK, and have recently found out during my 20wks scan

that my baby has unilateral talipes equinovarus(on right foot). The

babies left foot looks fine.

I have been given no information regarding Talipes and dont know

anyone with this condition. So pretty clueless!

Anyway done a little researching, found out that the ortho doc I

should see is useless! Have been told to stay clear of this doctor.

However have been recomended a doctor in Sunderland who does Ponseti

method and worked in America with Dr Ponseti. This is not to far

away from where I live so going to ask to see him.

However when does treatment start after birth? I will be having a C-

Section at a different hospital. Also baby is due last week of

November, so not to far away from Christmas.

If it has weekly casts what happens at Christmas and New Year? Will

the depart still do a weekly cast? Worried Docs will be on holiday

and disrupt treatment.

Any info and positive messages appreciated.

Julzd

[Guest guest]

Hi Julz

Just read your e-mail and noticed that you are from the UK. I am from Beverley,

near Hull, and have a 6 month old boy called Ben with unilateral (left)clubfoot.

Mr G V is our consultant (Hull Royal Infirmary) and he and his team of

physiotherapists are Ponseti trained and are excellent.

I have heard of the consultant in Sunderland (Mr DeKiewet?) and he is said to be

excellent also. Another option is Naomi of Manchester-you can actually

e-mail her with general questions and she always answers! Another good source of

info about the treatment is Dr Ponseti's website (you should be able to find it

on google or something similar-let me know if any problems).

In answer to your query, the treatment usually starts 7-10 days after the baby

is born-weekly plaster casts for 6-7 weeks. This is usually followed by a

tenotomy (tiny incision in the achilles tendon to stretch it), then back in

plaster for a full 3 weeks. The foot is then fully corrected but this needs to

be maintained with boots and bar (often referred to as DBB) which are worn 23

hours a day for 3 months and then night time and naps only until age 4 or

thereabouts. The first week in the boots was a nightmare but no problem

thereafter. Check out the Markell website (makers of the boots).

We also found out about Ben's talipes at the 20 week scan. It was upsetting at

first but the more you find out about it the easier it gets. Ben's foot looks

completely normal now and the boots he wears at night are just part of his

routine

Where abouts in the UK are you by the way?

Rich

New to Talipes

Hi Everyone,

Im from the UK, and have recently found out during my 20wks scan

that my baby has unilateral talipes equinovarus(on right foot). The

babies left foot looks fine.

I have been given no information regarding Talipes and dont know

anyone with this condition. So pretty clueless!

Anyway done a little researching, found out that the ortho doc I

should see is useless! Have been told to stay clear of this doctor.

However have been recomended a doctor in Sunderland who does Ponseti

method and worked in America with Dr Ponseti. This is not to far

away from where I live so going to ask to see him.

However when does treatment start after birth? I will be having a C-

Section at a different hospital. Also baby is due last week of

November, so not to far away from Christmas.

If it has weekly casts what happens at Christmas and New Year? Will

the depart still do a weekly cast? Worried Docs will be on holiday

and disrupt treatment.

Any info and positive messages appreciated.

Julzd

[Guest guest]

Hi Julz

Just read your e-mail and noticed that you are from the UK. I am from Beverley,

near Hull, and have a 6 month old boy called Ben with unilateral (left)clubfoot.

Mr G V is our consultant (Hull Royal Infirmary) and he and his team of

physiotherapists are Ponseti trained and are excellent.

I have heard of the consultant in Sunderland (Mr DeKiewet?) and he is said to be

excellent also. Another option is Naomi of Manchester-you can actually

e-mail her with general questions and she always answers! Another good source of

info about the treatment is Dr Ponseti's website (you should be able to find it

on google or something similar-let me know if any problems).

In answer to your query, the treatment usually starts 7-10 days after the baby

is born-weekly plaster casts for 6-7 weeks. This is usually followed by a

tenotomy (tiny incision in the achilles tendon to stretch it), then back in

plaster for a full 3 weeks. The foot is then fully corrected but this needs to

be maintained with boots and bar (often referred to as DBB) which are worn 23

hours a day for 3 months and then night time and naps only until age 4 or

thereabouts. The first week in the boots was a nightmare but no problem

thereafter. Check out the Markell website (makers of the boots).

We also found out about Ben's talipes at the 20 week scan. It was upsetting at

first but the more you find out about it the easier it gets. Ben's foot looks

completely normal now and the boots he wears at night are just part of his

routine

Where abouts in the UK are you by the way?

Rich

New to Talipes

Hi Everyone,

Im from the UK, and have recently found out during my 20wks scan

that my baby has unilateral talipes equinovarus(on right foot). The

babies left foot looks fine.

I have been given no information regarding Talipes and dont know

anyone with this condition. So pretty clueless!

Anyway done a little researching, found out that the ortho doc I

should see is useless! Have been told to stay clear of this doctor.

However have been recomended a doctor in Sunderland who does Ponseti

method and worked in America with Dr Ponseti. This is not to far

away from where I live so going to ask to see him.

However when does treatment start after birth? I will be having a C-

Section at a different hospital. Also baby is due last week of

November, so not to far away from Christmas.

If it has weekly casts what happens at Christmas and New Year? Will

the depart still do a weekly cast? Worried Docs will be on holiday

and disrupt treatment.

Any info and positive messages appreciated.

Julzd

[Guest guest]

Hi Julz

Just read your e-mail and noticed that you are from the UK. I am from Beverley,

near Hull, and have a 6 month old boy called Ben with unilateral (left)clubfoot.

Mr G V is our consultant (Hull Royal Infirmary) and he and his team of

physiotherapists are Ponseti trained and are excellent.

I have heard of the consultant in Sunderland (Mr DeKiewet?) and he is said to be

excellent also. Another option is Naomi of Manchester-you can actually

e-mail her with general questions and she always answers! Another good source of

info about the treatment is Dr Ponseti's website (you should be able to find it

on google or something similar-let me know if any problems).

In answer to your query, the treatment usually starts 7-10 days after the baby

is born-weekly plaster casts for 6-7 weeks. This is usually followed by a

tenotomy (tiny incision in the achilles tendon to stretch it), then back in

plaster for a full 3 weeks. The foot is then fully corrected but this needs to

be maintained with boots and bar (often referred to as DBB) which are worn 23

hours a day for 3 months and then night time and naps only until age 4 or

thereabouts. The first week in the boots was a nightmare but no problem

thereafter. Check out the Markell website (makers of the boots).

We also found out about Ben's talipes at the 20 week scan. It was upsetting at

first but the more you find out about it the easier it gets. Ben's foot looks

completely normal now and the boots he wears at night are just part of his

routine

Where abouts in the UK are you by the way?

Rich

New to Talipes

Hi Everyone,

Im from the UK, and have recently found out during my 20wks scan

that my baby has unilateral talipes equinovarus(on right foot). The

babies left foot looks fine.

I have been given no information regarding Talipes and dont know

anyone with this condition. So pretty clueless!

Anyway done a little researching, found out that the ortho doc I

should see is useless! Have been told to stay clear of this doctor.

However have been recomended a doctor in Sunderland who does Ponseti

method and worked in America with Dr Ponseti. This is not to far

away from where I live so going to ask to see him.

However when does treatment start after birth? I will be having a C-

Section at a different hospital. Also baby is due last week of

November, so not to far away from Christmas.

If it has weekly casts what happens at Christmas and New Year? Will

the depart still do a weekly cast? Worried Docs will be on holiday

and disrupt treatment.

Any info and positive messages appreciated.

Julzd

[Guest guest]

Welcome Julzd! Congrats on your pregnancy!

Is this the doctor you were given a referral for?:

Gavin P. de Kiewiet

Sunderland Royal Hospital

Kayll Road

Sunderland SR4 7TP

England

Fax: 44.199.565 3973

We've heard really good things about Mr. deKiewiet on this board. I

haven't seen any of the families who see him posting lately,

hopefully they'll check the board and see your note! Have you been

to the STEPS talipes board also?

They like to start the casting treatment on the baby within the first

10 days after birth. Casts are changed every 5-7 days. If you're

still going through casting during the holidays, they'll work the

cast change schedule to accomodate the baby. (they *should* at

least!) I'm sure you can discuss this with the doctor ahead of time

to find out when he'll be out of the office and who covers for him

while he's gone. The doctor should be willing to meet with you ahead

of time (in person or on the phone) to discuss the treatment and

answer your questions.

Have you been to Dr. Ponseti's website?

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

There's additional internet information here:

http://pages.ivillage.com/ponseti_links

There's lots of info here on our board too in the files, links and

photos sections too.

I hope this helps some! Enjoy the rest of your pregnancy and keep us

posted. Don't worry, your baby's foot will be just fine- my daughter

is now 4 and no one can tell the difference between her clubfoot and

her " good " foot! Ask any questions!

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

http://ponseticlubfoot.freeservers.com/

[Guest guest]

Welcome Julzd! Congrats on your pregnancy!

Is this the doctor you were given a referral for?:

Gavin P. de Kiewiet

Sunderland Royal Hospital

Kayll Road

Sunderland SR4 7TP

England

Fax: 44.199.565 3973

We've heard really good things about Mr. deKiewiet on this board. I

haven't seen any of the families who see him posting lately,

hopefully they'll check the board and see your note! Have you been

to the STEPS talipes board also?

They like to start the casting treatment on the baby within the first

10 days after birth. Casts are changed every 5-7 days. If you're

still going through casting during the holidays, they'll work the

cast change schedule to accomodate the baby. (they *should* at

least!) I'm sure you can discuss this with the doctor ahead of time

to find out when he'll be out of the office and who covers for him

while he's gone. The doctor should be willing to meet with you ahead

of time (in person or on the phone) to discuss the treatment and

answer your questions.

Have you been to Dr. Ponseti's website?

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

There's additional internet information here:

http://pages.ivillage.com/ponseti_links

There's lots of info here on our board too in the files, links and

photos sections too.

I hope this helps some! Enjoy the rest of your pregnancy and keep us

posted. Don't worry, your baby's foot will be just fine- my daughter

is now 4 and no one can tell the difference between her clubfoot and

her " good " foot! Ask any questions!

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

http://ponseticlubfoot.freeservers.com/

[Guest guest]

Welcome Julzd! Congrats on your pregnancy!

Is this the doctor you were given a referral for?:

Gavin P. de Kiewiet

Sunderland Royal Hospital

Kayll Road

Sunderland SR4 7TP

England

Fax: 44.199.565 3973

We've heard really good things about Mr. deKiewiet on this board. I

haven't seen any of the families who see him posting lately,

hopefully they'll check the board and see your note! Have you been

to the STEPS talipes board also?

They like to start the casting treatment on the baby within the first

10 days after birth. Casts are changed every 5-7 days. If you're

still going through casting during the holidays, they'll work the

cast change schedule to accomodate the baby. (they *should* at

least!) I'm sure you can discuss this with the doctor ahead of time

to find out when he'll be out of the office and who covers for him

while he's gone. The doctor should be willing to meet with you ahead

of time (in person or on the phone) to discuss the treatment and

answer your questions.

Have you been to Dr. Ponseti's website?

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

There's additional internet information here:

http://pages.ivillage.com/ponseti_links

There's lots of info here on our board too in the files, links and

photos sections too.

I hope this helps some! Enjoy the rest of your pregnancy and keep us

posted. Don't worry, your baby's foot will be just fine- my daughter

is now 4 and no one can tell the difference between her clubfoot and

her " good " foot! Ask any questions!

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

http://ponseticlubfoot.freeservers.com/

[Guest guest]

Hi Julz,

Congratulations on your pregnancy! Babies can start treatment at only

a few days old. Our daughter was 8 days old. It sounds like you have

done a good bit of research already and are on the right track. There

are a couple of people in the group from England and I am sure they

will chime in. As far as casting goes, I am sure you will be able

to work around the hols. If you already know who you will be seeing

you can plan it so that the casts are changed a little earlier or a

little later than a week apart and make all your appts at one time.

We made about 6 appts all at one time after Zoe's first cast. Some

parents who have traveled miles and miles with their babies to Iowa

City to see Dr. P have their casts changed every 5 days to speed the

process, so they can get back home. I will let someone else comment

on what is the longest is. The cast after the tenotomy stays on for

3 weeks, so I am sure a few extra days over the week period will not

be a problem.

Enjoy your pregnancy!!! Where do you live? We will be in Brentwood,

Essex for Xmas.

Louisa

6-27-99

Zoe 2-22-4 RCF FAB 18/7

> Hi Everyone,

>

> Im from the UK, and have recently found out during my 20wks scan

> that my baby has unilateral talipes equinovarus(on right foot). The

> babies left foot looks fine.

>

> I have been given no information regarding Talipes and dont know

> anyone with this condition. So pretty clueless!

>

> Anyway done a little researching, found out that the ortho doc I

> should see is useless! Have been told to stay clear of this doctor.

>

> However have been recomended a doctor in Sunderland who does

Ponseti

> method and worked in America with Dr Ponseti. This is not to far

> away from where I live so going to ask to see him.

>

> However when does treatment start after birth? I will be having a C-

> Section at a different hospital. Also baby is due last week of

> November, so not to far away from Christmas.

>

> If it has weekly casts what happens at Christmas and New Year? Will

> the depart still do a weekly cast? Worried Docs will be on holiday

> and disrupt treatment.

>

> Any info and positive messages appreciated.

>

> Julzd

[Guest guest]

Hi Julz,

Congratulations on your pregnancy! Babies can start treatment at only

a few days old. Our daughter was 8 days old. It sounds like you have

done a good bit of research already and are on the right track. There

are a couple of people in the group from England and I am sure they

will chime in. As far as casting goes, I am sure you will be able

to work around the hols. If you already know who you will be seeing

you can plan it so that the casts are changed a little earlier or a

little later than a week apart and make all your appts at one time.

We made about 6 appts all at one time after Zoe's first cast. Some

parents who have traveled miles and miles with their babies to Iowa

City to see Dr. P have their casts changed every 5 days to speed the

process, so they can get back home. I will let someone else comment

on what is the longest is. The cast after the tenotomy stays on for

3 weeks, so I am sure a few extra days over the week period will not

be a problem.

Enjoy your pregnancy!!! Where do you live? We will be in Brentwood,

Essex for Xmas.

Louisa

6-27-99

Zoe 2-22-4 RCF FAB 18/7

> Hi Everyone,

>

> Im from the UK, and have recently found out during my 20wks scan

> that my baby has unilateral talipes equinovarus(on right foot). The

> babies left foot looks fine.

>

> I have been given no information regarding Talipes and dont know

> anyone with this condition. So pretty clueless!

>

> Anyway done a little researching, found out that the ortho doc I

> should see is useless! Have been told to stay clear of this doctor.

>

> However have been recomended a doctor in Sunderland who does

Ponseti

> method and worked in America with Dr Ponseti. This is not to far

> away from where I live so going to ask to see him.

>

> However when does treatment start after birth? I will be having a C-

> Section at a different hospital. Also baby is due last week of

> November, so not to far away from Christmas.

>

> If it has weekly casts what happens at Christmas and New Year? Will

> the depart still do a weekly cast? Worried Docs will be on holiday

> and disrupt treatment.

>

> Any info and positive messages appreciated.

>

> Julzd

[Guest guest]

Hi Julz,

Congratulations on your pregnancy! Babies can start treatment at only

a few days old. Our daughter was 8 days old. It sounds like you have

done a good bit of research already and are on the right track. There

are a couple of people in the group from England and I am sure they

will chime in. As far as casting goes, I am sure you will be able

to work around the hols. If you already know who you will be seeing

you can plan it so that the casts are changed a little earlier or a

little later than a week apart and make all your appts at one time.

We made about 6 appts all at one time after Zoe's first cast. Some

parents who have traveled miles and miles with their babies to Iowa

City to see Dr. P have their casts changed every 5 days to speed the

process, so they can get back home. I will let someone else comment

on what is the longest is. The cast after the tenotomy stays on for

3 weeks, so I am sure a few extra days over the week period will not

be a problem.

Enjoy your pregnancy!!! Where do you live? We will be in Brentwood,

Essex for Xmas.

Louisa

6-27-99

Zoe 2-22-4 RCF FAB 18/7

> Hi Everyone,

>

> Im from the UK, and have recently found out during my 20wks scan

> that my baby has unilateral talipes equinovarus(on right foot). The

> babies left foot looks fine.

>

> I have been given no information regarding Talipes and dont know

> anyone with this condition. So pretty clueless!

>

> Anyway done a little researching, found out that the ortho doc I

> should see is useless! Have been told to stay clear of this doctor.

>

> However have been recomended a doctor in Sunderland who does

Ponseti

> method and worked in America with Dr Ponseti. This is not to far

> away from where I live so going to ask to see him.

>

> However when does treatment start after birth? I will be having a C-

> Section at a different hospital. Also baby is due last week of

> November, so not to far away from Christmas.

>

> If it has weekly casts what happens at Christmas and New Year? Will

> the depart still do a weekly cast? Worried Docs will be on holiday

> and disrupt treatment.

>

> Any info and positive messages appreciated.

>

> Julzd