Epstein Barr Virus post transplant

[Guest guest]

Well, they finally have a diagnosis for me which explains all the fevers

I've been having. I've got Epstein Barr Virus (that's Mono). I didn't

have it before transplant, and I don't know where I picked it up, but

I've got it now. I've been sick for about about three and a half weeks

with no appreciable lessening of symptoms (my main symptom is fever up

to 102 F). They've lowered my prograf dose from 3mg twice a day to 2mg

twice a day, and they just prescribed Vatrex for it (which the insurance

co is refusing to pay for and will cost me $1,100 if I can't get an

override)

Anyhow, I'm wondering if anyone else has been in this situation and how

things worked out. I know there are some pretty bad potential

complications of EBV when you're immune suppressed (lymphoma etc). but I

guess I'm wondering what the range of experiences with this is. Like I

say, I've already been sick with this for three and a half weeks, and

I'm wondering if I should expect months more of illness, or what....

Thanks for any wisdom out there!

athan