Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Well, I saw the geneticist yesterday and I am now an official EDSer. He diagnosed me with the hypermobile type (no big surprise there, at least to me). I was slightly dismayed when I told him that I had some concerns about the possibility of having the vascular form due to a diagnosis of vasodepressor syncope, mitral valve prolapse, easy bruising, thin skin, etc. (along with a maternal-side family history of varicose veins, maternal grandfater had an aortic aneurysm, mom had some sort of colon tear) and his response was " people with the vascular type aren't hypermobile. " I told him that, from what I understood, it is common for symptoms to overlap from one type to the next. So, my question is how many of you with the vascular form are also hypermobile in multiple joints? Oh. and another odd question... can anyone fold their tongue backwards so that the tip is aimed to the back of the mouth and the top surface (where the taste buds are) is actually touching itself (without using your teeth or roofof your mouth to hold it)? When he asked me if I could touch my tongue to my nose, I said that I used to be able to, but couldn't any more, but that I could fold my tongue backwards. He seemed impressed by this and wanted to take a picture of it. I knew none of my friends could do it, but now I wonder if any other EDSers can... Thanks! Hawthorne, CA Quote Link to comment Share on other sites More sharing options...
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